6 year old has an EHCP. Doubly incontinent.
His section F states
"A structured programme to work on independent toileting skills.
This should be created with busybody and with the support ofinvolved practitioners such as the school nurse. It will need to beconsistent at school and at home.
• This programme must include strategies provided by the Occupational therapist:
o Play -
Play based activities such as using dolls house sized characters and bathroom set including toilet, bath and sink, and do some play with DS to see what comes up for him around using the toilet. Use the characters to explore different emotions around using the toilet.
o Interoceptive work
Talk about body sensations and different ways your stomach, bladder and bottom feel. Find different words and phrases to
express how these states feel and note the ones that make sense to DS.
o Fear around the toilet
Help DS feel more comfortable with the toilet – getting him to Flush the toilet after he’s done a bowel movement in his nappy is a good start. Dropping some toilet roll down the toilet can also help him get used to interacting with the toilet without a demand to use it. DS's feet should be on the floor to support the appropriate level of sitting balance.
o Targets
When DS is starting to explore the toilet again without fear, introducing playful ideas such as toilet targets can help this
become a fun activity rather than a feared one."
We are stuck.
Last spoken with a school nurse around 18 months ago. She helped with some ideas. His products are supplied by the continence service, they are unwilling to provide active support until he has had a neurodevelopmental assessment. There is a significant communication element to this issue. He is awaiting a ND assessment but have at least a year until his initial appointment.
February 2022 I arranged a SI OT to support me at home with a few bits, she gave me some ideas for toileting which has now been put in his EHCP. They do not work hence waiting on a ND assessment. The provision can not be provided until he's had it but it has been in his EHCP now in excess of a year.
Is there anything I can do? Surely if he has a provision and an assessment needs to occur to enable that provision to happen we should be arranging that assessment sooner?