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Here you'll find advice from parents and teachers on special needs education.

Help with advice and guidance for 3.9 year old son with ASD

9 replies

gabana · 27/11/2022 23:03

I have an only child (3.9 yr boy) ,until he turned 3 I was thinking he is having speech delay only. he was a quiet baby. not much crying. just picky eater. but someone pointed out how he seems avoiding eye contact and not listening to what I was telling which lead me to google and I was surprised that he ticked everything in Mchat screening. he cant imitate, no gestures, few words. wont respond to his name,lining things up, obsessed with trains and kept jumping and spinning most of the time. I put him into nursery they helped with referals with speech and OT.
I immediately started researching and worked on my son.
I found mumsnet to be really helpful. I am forever grateful to Lingle's posts. I followed her recommendations books , hanen and teachmetotalk, floor time, moondog's calender etc.
my son now has many words and speaking in short sentences but not conversational.I mostly worked or showed him books. in a book if i ask where and what he can answer. Nursery also said he shows great improvement. but in last few months I have noticed his other sensory issues teeth grinding, hand flapping, being anxious, head down and I feared it could be selective mutism, I was shocked he hit me n hid his face when i took him to a new group class. same behavior at christmas market. he doesnt sit down to draw or paint or color. he didnt like brushing teeth before but recently he is screaming and crying. difficult behaviours. I feel exhausted. the energy with which I started to teach him speech , receptive lang is now draining. I work but reduced hours. I cant stop work due to financial reasons.
I read about ABA therapy but cant afford it. I tried ptivate speech therapy but wasnt effective so left in between.
can someone please guide me. any free resouces or youtube channels you follow which helped your child to become conversational and funtional.
Thank you in advance.

OP posts:
gabana · 27/11/2022 23:05

just realised its a long post. thanks for reading.

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Thatsnotmycar · 28/11/2022 10:37

Does DS have an EHCP? If not you can apply for an EHCNA yourself. IPSEA have a model letter you can use. SALT and OT can be included in EHCPs without sitting on the normal waiting lists.

You might have already seen these as they are often posted on MN, but in case you haven’t these 2 OT resources may be helpful - One two

Also if you haven’t already it’s worth reading the explosive child and the out of sync child as well as looking at Yvonne Newbold’s resources.
 And if you don’t already receive it you can apply for DLA.

gabana · 29/11/2022 14:22

Thanks. That OT resource is helpful.

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Scratchybaby · 30/11/2022 12:11

@Thatsnotmycar thanks for posting - I don't think I've actually seen those in all my days stalking MN for tips!

I was also recommended The Out of Sync child by an OT (we're on her waiting list and she gave me recommended reading while we wait!) so I second that one. I found The Explosive Child harder simply because I wasn't as great at working out how to apply it to a younger, pre-verbal child. But the advice is still very good.

I'm finding Instagram has some great, free, bite-sized tips that parents can implement that are genuine and evidence-based:
www.instagram.com/the.well.balanced.ot/ The Well Balanced OT has lots of tips relevant for children with ASD-related sensory issues
www.instagram.com/meaningfulspeech/ Meaningful Speech (and a host of other SLTs specialising in echolalia and children with ASD) have really useful tips for helping your DS progress towards fuller language acquisition

ABA can be great, but it's ultimately about tailoring the way you approach teaching with your child so they are more likely to want to engage and stay motivated. If you've already made such great progress you may already be doing it and you don't even realise it :)

Thatsnotmycar · 30/11/2022 12:37

@Scratchybaby, @blanktimes needs the credit for the first link as I stole it from her posts.

Scratchybaby · 30/11/2022 12:41

haha thanks!

gabana · 03/12/2022 21:06

Thank you @Thatsnotmycar @Scratchybaby

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EHCP22 · 20/12/2022 19:05

Hi,
When it comes to ABA you can be the tutor for your child. You will have to pay a Behavioural Psychologist to train you and to monitor progress etc. every few months (maybe more frequent initially) but in my experience it definitely worth it.

gabana · 24/12/2022 00:23

Thanks . Will try this.

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