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Here you'll find advice from parents and teachers on special needs education.

Dyspraxia advice?

15 replies

Manchego1 · 20/04/2022 22:02

Hello,
I wanted to ask advice about other people’s experience of dyspraxia.
Has anyone been diagnosed with dyspraxia but met the major baby milestones (sitting, crawling and walking) ?
I know my son was around 13 months when he walked and if I try to think back to his early motor skills - it was just jumping, threading and copying my lines that he couldn’t complete at the 2 year check. Everywhere you read about dyspraxia it says children usually don’t meet the milestones.
He used to be an excessive dribbler - he’d have a noticeable pool of dribble around his neck and didn’t really stop until 3 1/2 - 4 years old.

He’s 6 now and I just feel he’s really struggling with quite a few things with coordination and processing and I believe it’s making him sad and anxious to the point he sometimes says he hates himself 😔 which is so sad and I want to help him. We are trying our hardest to support him and value his effort and make him feel good - it doesn’t matter what he achieves. I just want to make sure we haven’t missed something.
He has always struggled with balance and coordination, much like his dad (who’s mum always thought was maybe dyspraxic - but my partner dismisses it now), he is very messy and fast when eating, gets very emotional and anxious , seems to seek unbalanced key friendships but is very liked by lots of people (every setting he’s been in he’s sought out the more ‘powerful’ friend that he is ultimately unsettled with iykwim), he often appears overwhelmed in busy/ noisy places and struggles to focus on his activity (e.g. riding a bike or he was invited to a climbing party and his eyes are on everything but ahead). He has a block with swimming and has been unable to lift his feet of the floor of the pool or put his head under (I believe he’s really scared) and we keep praising him on his effort and personal success but he sees all the other children moving up all the time and is sad (he’s been having weekly lessons for nearly a year).
He’s doing ‘ok’ at school so I know wouldn’t ring alarm bells but I know he’s a very able mathematician and just is very irregular with his recall of key facts and similarly his reading can be so inconsistent. I was a Primary teacher for years and if he was in my class I would be wondering how I can help him, why can he be so inconsistent. Something just puzzles me. I have tried to raise some concerns - particularly his self esteem and friendships but the school has been under enormous pressure with Covid and I know there are high needs in every class - every meeting disappears so quickly. He appears like he’s doing ok at school but we see so much more at home that I know school wouldn’t see. I’m going to make an appointment with the GP as I feel we need help with his anxiety and self esteem. He’s such a lovely, kind, empathetic six year old and I want him to feel that too.
I just wondered about other people’s experiences as I just want him to feel like he’s understood by all and not just us.

OP posts:
ittakesavillage2 · 21/04/2022 20:16

Have a look at the Dyspraxia foundation. It's very useful and helpful. It does impact them in all sorts of ways but the first step is definitely an assessment

Sammyspurs · 02/05/2022 13:04

Sounds like it could be global dyspraxia. Get a referral to OH and paediatrician. They’ll be able to diagnose and hopefully put your mind at ease. Good luck

jollyhollyday · 07/05/2022 12:14

Came on here looking for advice and found this fantastic post.

I believe my DD9 may have dyspraxia and I've thought this for a few years. I've raised concerns to 3 teachers previously but with the disruption of Covid, nothings been done.
Yesterday I approached her teacher again and asked if the SENCO could maybe ring me as her teacher was meant to ring me after Xmas and nothing had been done.

Some of what she displays are:
Going up /coming down stairs one at a time (she always has)
Her balance is not right, she doesn't like uneven or narrow surfaces(early on in school she refused to go up the slope to canteen without holding a teachers hand
She doesn't skip, hop, avoids running
She mainly plays by herself and avoids what all the others play

I can't give her too many instructions in one go as she gets agitated and forgets what I tell her
I can tell her to go upstairs and hang her clothes up and she will go up and completely forget and not do it
She flaps her hands when excited or worried
She has a complete aversion to maths which we are working hard with, including hiring a tutor(her teacher isn't concerned she had 3/15 recently nor that DD didn't understand it when i went through it)

I'm worried I'm making more of it to the school and really had to pluck up courage to bring it back up (last time was during a parents eve call in early Nov when I mentioned it)
Is there anyone who experienced similar or know how to approach the SENCO
Thank you

jollyhollyday · 07/05/2022 18:54

Anyone?

TeenPlusCat · 07/05/2022 19:08

@jollyhollyday Sounds like dyspraxia to me. I have, since this week, 2 DDs officially with dyspraxia.

My DD2, now 17, still has trouble walking down stairs without a bannister, was also a late hopper and skipper (I remember exactly where she finally got sipping - Colchester Zoo when we were on holiday).

My DD1, now early 20s, was forever bumping into things and hurting herself, and also organisational difficulties.

Both have varying degrees of poor working memory, sensitivity to sounds, lights & textures. Both hopeless and things like ball games.

I would:


  • find a relevant age checklist from the dyspraxia foundation & fill it out

  • talk it through with the SENCO

  • ask the GP for referral to Occupational therapist

  • more scaffolding and support doing new tasks (so eg starting secondary will need more help for longer being organised than average y7

  • more practice learning any new skill - so we had to pick and choose what was important

  • extra time for GCSEs

  • lots of understanding and encouragement

  • checklists / phone alarms


Both my DDs learned to swim well, and ride bikes (after a fashion). DD1 drives. DD1 learned to type for school which helped her, DD2 found it ore of a hinderance, but she also has dyslexia so that might have impacted as she doesn't like computer work.

TeenPlusCat · 07/05/2022 19:10

Flapping can be a trait of ASD. There is an overlap between dyslexia, dyspraxia and ASD. Might be worth looking at something regarding autism in girls just to rule it out.

jollyhollyday · 07/05/2022 19:39

Thank you both so much for replying, really means a lot when you are so unsure of things

Japril · 09/05/2022 08:22

@TeenPlusCat My dd who is 12 sounds similar to your daughters.
Dyspraxia has come on to my radar via my ds who was referred to an OT and scored on the 1st percentile in his motor skills assessment, we have a paediatric appt in a couple of weeks.
Dd still can’t tie her shoelaces (so that they stay done up), is shocking at sport, messy handwriting and is clumsy and disorganised. As she is hypermobile I have always connected these things to that but am increasingly wondering if she may be dyspraxic. We are about to begin assessing her for ASD so may mention it then.

jollyhollyday · 09/05/2022 08:24

@Japril I hope you get sorted soon. I'm not sure if my DD is hyper mobile I will have to research this. I'm hoping her teacher will have arranged an appointment with the SENCO when I collect her later...not holding out much hope

Japril · 12/05/2022 19:20

@jollyhollyday did the appointment with the SENCO get sorted?

jollyhollyday · 12/05/2022 19:24

Thanks @Japril the appointment is tomorrow so will update you once I've seen her
Really hope she listens to me 🫤

jollyhollyday · 13/05/2022 11:57

Fantastic meeting who listened and agreed with my observations
As previous poster said I've rung GP for referral to OT and the school have advised me to get referred to neuro team which currently has 2 year waiting list as she thought there were definitely some symptoms which sat in the ASD group.
Came away with lots of print outs and tips to help her in the meantime. She reassured me by time comp comes there will be things in place to have helped her
Massive relief to have been listened to and for her to agree and to help me get things into place
Left there quite emotional
Thank you guys for all your help

TeenPlusCat · 13/05/2022 12:12

So glad jolly

AReallyUsefulEngine · 13/05/2022 13:41

Jolly in some areas you can self refer to OT, it could be worth investigating if you can in your area as it might be quicker than via the GP. The school don’t have to wait for a diagnosis to provide help either. You could ask if they offer something like the jump ahead or Fizzy programme.

jollyhollyday · 13/05/2022 13:56

@AReallyUsefulEngine thanks for this I will look into those -anything to help speed up the process

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