Please or to access all these features

SEN

Here you'll find advice from parents and teachers on special needs education.

Parenting ASD kids

5 replies

ASDmum2 · 27/03/2021 19:34

I have 2 ASD kids, late teens and verging on adulthood. I love them entirely.

But it's been hard parenting them, especially through their teenage years. I find myself feeling like I'm always walking on eggshells, to avoid saying things that might "trigger" them - there's little laughter in our house, because they misunderstand us (parents) and take offence and get upset.

I guess we also misunderstand them, to not always know beforehand what they will find upsetting. So almost every encounter is fraught and a potential opportunity to upset or be upset myself. Each and every day.

My trouble is that I can't ever see them growing up and becoming very different to how they are now. I know it's not the maternal ideal, but I am looking forward to my kids leaving home - to them growing up, to not having to constantly bite my tongue or mentally parse every thought before I speak. I feel guilty that I'm looking forward to their departure.

I feel worse because I think the autism is the issue that I can't adapt to (the irony!) and that is something my kids will have all their lives, not something they will grow out of. I mean, I try to accommodate their needs, as a result of the autism, but it's hard work.

I guess I'm just here to moan about how hard, tiring and some times heartbreaking it is to parent my autistic children. And I don't see it getting any better, possibly easier if they leave home but I know that actually that will bring with it a whole new level of difficulty for all of us.

Anyone else who is worn down?

OP posts:
lollipoprainbow · 29/03/2021 16:16

Oh yes !! I have an ASD dd 8.5 I'm a single mum and constantly feel like I'm walking on eggshells. I worry about the future so much and wonder if she will ever be able to live a normal, independent life.

BananaBreakfast · 30/03/2021 07:34

Hugs... My heart is breaking watching my funny happy girl turn into an anxious recluse.

ASDmum2 · 30/03/2021 19:51

Flowers to you both, it's so hard and there's no break from the worry.

OP posts:
BTE152 · 08/05/2021 23:52

@BananaBreakfast that sounds so familiar- my DD12 has turned from happily doing sleepovers and overnight school trips to being completely socially isolated. It's breaking my heart. We've just received a diagnosis of Autism in the last week. Seems she's been masking for years 🥲

Dontjudgeme101 · 14/05/2021 08:47

I have just found this thread and l feel exactly the same as you all. I have a 15 year old Dd. She is waiting for a Asd Assessment and l feel the say way. She has been doing blended learning. The funding has run out and hopefully she will be able to get more funding to continue. It’s hard as you all know.

New posts on this thread. Refresh page