ADOS assessment today

[Peachyqueen]

My lovely, gorgeous 7yo DS had his ADOS assessment today (after a 18 month wait!). He coped with it all really well.

The SLT doing the assessment said at the end that her findings would go to the consultant and we would hear from her for a final "result", for lack of a better word. She did say, however, that based on what she had observed today that "its highly likely he will be over the threshold". I am now kicking myself for not asking her to clarify this statement!

She did say that her findings need to be assessed together with all the other information they have gathered to make a decision, however I am assuming from this that "over the threshold" means on the spectrum.

(I apologise if this questioning offends anyone, this is all so new to me and I am here to learn)

I feel like I should be doing something, or researching or looking into things but I don't know where to start or to look. I don't want to let my boy down by not doing something that in hindsight would seem ridiculous to overlook. He already gets support from school to help him focus and learn.

I honestly don't know what to do with myself, I feel like I should be doing something but I don't know what that something is? I know I have to wait for the final report but I also think I shouldn't be wasting time waiting.

And I have no idea what I'm hoping to achieve by posting this either! I guess I just need to get it out of my head and speak to other parents in similar, if not the same, place as us.

Don't berate yourself, everyone can look back with hindsight and wish they had acted differently. It doesn't help anyone and only makes you feel worse. Take a breather, diagnosis can leave you feeling adrift.

Does DS need more support in school? Does he have an EHCP?

Do you get DLA? If you don't you should apply.

DS is doing OK in school. He really struggles with maths and handwriting but reads very well. It's more the social side and actually focusing/concentrating that he struggles with. I will, however, be asking to meet with the Senco & his teacher regarding any further support he will hopefully be eligible for, once we have a diagnosis. I'm hoping the consultant can signpost us to local support networks too, to help support us in this.

I don't think he requires or would be eligible for an EHCP, but I may be wrong. I'm going to look into that further.

From what I've read on the gov.uk website, he wouldn't be eligible for DLA.

Most children who have ASD meet the criteria for DLA, that's not to say they are all awarded it easily, but you are eligible and should apply. In order to get a diagnosis DS' difficulties must "limit and impair everyday functioning". Have a look at the Cerebra guide. I would hazard a guess you naturally do things and make adjustments you don't even realise count.

EHCPs cover social and emotional development too, not just academic needs. Have a look at IPSEA or SOSSEN. You don't need to wait for a diagnosis, support in school should be needs led, not diagnosis based.

@10brokengreenbottles

Most children who have ASD meet the criteria for DLA, that's not to say they are all awarded it easily, but you are eligible and should apply. In order to get a diagnosis DS' difficulties must "limit and impair everyday functioning". Have a look at the Cerebra guide. I would hazard a guess you naturally do things and make adjustments you don't even realise count.

EHCPs cover social and emotional development too, not just academic needs. Have a look at IPSEA or SOSSEN. You don't need to wait for a diagnosis, support in school should be needs led, not diagnosis based.

I guess we need to wait for the formal diagnosis before we pursue anything.

I'll have a look at the things.you suggested, thank you. I don't have a clue at the moment so it's really helpful.

You don't need to wait for a diagnosis. DLA, EHCP and support in school are needs led, not based on a diagnosis.

Hi all,
We get the results back tomorrow for our sons ADOS assessment. Am so very nervous about it!

I have been reading your thread op. As l have a child who is waiting for stage 2 ASD Assessment. I hope everything went well for you.