Please or to access all these features

SEN

Here you'll find advice from parents and teachers on special needs education.

DS9 with HFA and terrified of getting things wrong, making mistakes.

2 replies

TheCunkOfPhilomena · 12/10/2020 14:42

I'm so worried about DS9 (in year 5) and wondered if anyone had been through something similar and had any advice please?

DS was diagnosed with high functioning autism in February, just before lockdown. We and his primary school have sort of known this for quite a while but the waiting time for the assessment was 2 years.

His school is fantastically supportive and the SENCo is especially good.

DS has never, ever, misbehaved at school, he is often referred to as a 'role-model' and is working at greater depth in all areas except for art. I say this because it illustrates how much of a perfectionist he is, he is absolutely petrified of getting something wrong and his teacher shouting at him. This has become more pronounced since he returned after lockdown.

He is so scared that it's affecting everything now. He's not sleeping well, he usually gets me up about 2/3am and takes forever to settle again (mostly by reading books, listening to audiobooks). He doesn't say what he's frightened of, just that his body won't let him sleep.

His new teacher this year is stricter than the ones he's had for the past two years but she's not (as far as I know) awful and she's never told him off but she has shouted at other children in the class and he can't cope with this.

This morning I had a call from the SENCo who said he'd broken down just as he got to school and she'd had a good chat with him and he'd said that he's not coping and he doesn't want to be at school. She thinks he's worn out as he puts on a front of being 'perfect' at school and when he gets anxious he works even harder to try and feel better but it's not working, it's not a sustainable coping strategy. I agree completely, sometimes I pick him up and he's worn out and so very emotional.

All he wants is to be with me or his dad and he regularly begs me to let him stay at home to learn, I know this is because of home learning during lockdown. I've told him it isn't possible plus I really want him to see his friends as it took him a long time to make them and I'd hate to see him go back to being lonely again.

Sorry, I'm probably not making sense, I feel so emotional today, my brilliant and loving DS is hurting and I really don't know how to help. He has hurt himself in the past when he's been like this and I'm so scared he'll do it again or he'll run away from school (he has mentioned this). He's very bright and good at covering up how he feels but he has shit self-esteem (something that he had support for in the form of counselling via the school) and he internalises everything negative until he reaches breaking point which is where we are now I think.

Thanks if you read all that and especially if you have any ideas what to do next.

OP posts:
Ellie56 · 14/10/2020 13:05

@TheCunkOfPhilomena

I suspect part of the problem here, if not the problem, is that unpredictable, shouty, scary teacher.

I was at an autism conference once and one of the speakers explained that the way we feel when we are running late for a very important meeting is the way people with autism feel all the time.

And then the way we feel when we are stuck in a traffic jam and know we are going to be late for that very important meeting, is the way those with autism feel when something unexpected happens or something changes suddenly, like when this teacher starts shouting.

So your poor little boy goes to school every day in a high level of stress thinking, will she shout today, who will she shout at, will it be him she shouts at. It must be a bit like going somewhere every day where a tiger is chained up in the corner of the room that is fine most of the time, but every so often it has been known to break free and eat someone. Imagine sitting in a room for hours with that tiger wondering if it's going to break free today and eat you. I wouldn't sleep the night before - would you?

And when the teacher starts shouting everyone turns round to look. You know that yourself when someone starts shouting in the street - you turn round to see what's going on. And your son, especially if he has sensory issues, could find that difficult to cope with too.

When my son was a similar age, I wanted to tell his TA about something really good he had done at home. He was horrified. "Oh no! Don't tell Mrs S!" When I asked why not, he explained, "Because she'll tell Mrs B (the teacher) and she'll tell all the children, and they'll all put their eyes on me and that's scary."

So the classroom is a really scary place. No wonder your son wants to stay at home to learn. It's calm, quiet and safe there, and (presumably) nobody shouts.

Apparently not wanting to make mistakes is common in autistic children. My son absolutely hated writing, because when he made a mistake he would have to rub it out and he didn't like the mess it left behind. When the school gave him a laptop to work on he found it so much easier and less stressful.

As you say the SENCO is approachable, I think I would first talk to her, tell her everything that's been happening, and how it's all getting worse and that your son begs to stay at home and is talking of running away from school, and ask what they can put in place to help and support him.

Maybe your son could have a time out space when the stress gets too much and where he could work on his own for a bit. You could ask for an EP to come in to observe and advise what provision might help. If you think it would help, ask about him using a laptop.

I'd also see if you can get a referral to CAMHS or similar. Obviously living in this high state of stress is not sustainable and will likely get worse as he gets older and moves on to secondary school, which is likely to be bigger, louder, busier and more unpredictable than the primary school.

The psychiatrist who assessed my son after a disastrous experience in mainstream FE, told me that the incidence of mental health issues among those with autism is much higher than it is in the general population, so you really need to do all you can to safeguard your son's mental health now.

You may want to consider requesting an EHC Needs assessment. Although your child functions well academically, he has mental, emotional, social communication needs and (possibly?) sensory needs which may need specialist provision to be put in place through an EHC Plan. Information here:

www.ipsea.org.uk/asking-for-an-ehc-needs-assessment

So called "high functioning" children and young people with autism are often very much misunderstood, because they appear to be coping well, but they are not. I know a girl who had a complete nervous breakdown at 15 because she couldn't cope in mainstream school. She was then in and out of education for years before at age 19, she eventually got an EHC Plan and went to a very small specialist placement, where she was finally able to do her A levels.

I would also start looking at secondary provision now (look outside your own local authority as well) as it may be that your son needs a specific mainstream school that has good provision for, and experience of autistic students or even a small specialist autism specific setting, rather than your local school.

Good luck. Flowers

ProudMummyofbg · 15/10/2020 13:47

A big hug for you first of all. You’re an amazing mum. Secondly has the school tried a buddy within the class who can act as a mentor should any need arises?

New posts on this thread. Refresh page