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Here you'll find advice from parents and teachers on special needs education.

Sensory Processing Disorder / Occupational Therapy - advice ?

2 replies

beingniceiscool11 · 08/02/2019 18:40

My 4.5 yr old DD has been identified by the paediatrician as having sensory processing issues and there was an Autism Spectrum Disorder chart on the letter sent to the GP that I got sent a copy of, showing that she had some scores for ASD but they seemed low... but I don't know if I was interpreting the chart correctly.
But either way I don't think she has many features of autism spectrum disorders - maybe a few things but nothing that stands out as any one clear thing. She seems to have some proprioceptive difficulties ie. doing things too hard / spatial awareness/clumsiness and she is prone to repetitive loops of things sometimes/ meltdowns if things don't happen exactly as she was expecting or if she is interrupted doing something/something is moved in the house.

I do think she has clear sensory processing issues and they are affecting her getting dressed, wearing certain clothes, noises and bright lights and unfamiliar routines or places/people cause anxiety. She also has really bad night terrors at times.

We have been invited to go to a Sensory Information Group to get strategies to help her as parents & I think she would benefit from some Occupational Therapy to help with her sensory integration.
The problem is that her Dad (who I am separated from since she was 1 year old) doesn't think that she has any difficulties outside the norm, although he does agree that he has witnessed some of the same things as I have. He has even gone and bought her sensory socks with no seams etc but he said he doesn't want to "put her through" Occupational Therapy, as if it's some awful thing that will traumatise her or knock her confidence. He said I was being overly negative about her (even though it would have been pointless for me to also list all the ways she is thriving and all her above average abilities...because the topic we were discussing was the things she was struggling with).
He seems to insinuate at every turn that somehow I am just being anxious and I am sending her the wrong messages - that there is something wrong with her and he is blaming me for certain things. I have observed that the sensory issues became more noticeable and acute when she started going overnight to him again and I think she has been stressed from this huge change.

She also has said she doesn't want her Dad to get her dressed and she has started to say she doesn't want to go to his house because she has described him being very rough and in my opinion abusive to her when losing his temper when she's been difficult to get dressed due to her sensory meltdowns - which he is also denying that she has).
One minute he says he has no difficulties with her, the next he says he is always calm and gentle even though getting her dressed is frustrating.
He was verbally, physically and psychologically abusive to me in the relationship which is why I left him. Apparently not badly enough though for CAFCASS to limit contact in any way. They recommended shared care when he took me to court. So now I am sharing parenting with him but I think he is losing his temper with her regularly and she says he is frightening her and she feels insecure being with him on her own. Social Care Child Services won't investigate as they say maybe her sensory issues are causing her to perceive something as rough when it's not/they said it's not quite reaching their threshold as being at risk of "significant harm". I would argue though that a child with perhaps special needs who is having a parent who is regularly denying their needs and in fact actually making their issues worse by being violent to them causing more trauma, is significant harm.
He is also saying he doesn't think it's appropriate to attend the Sensory Information Group, that we don't need to get professionals involved as he doesn't think she has sensory issues , that it's behavioural in his mind. (Not what the paediatrician said).
But he looks after her nearly half the time ! So how am I supposed to navigate co-parenting with him, in these circumstances and when she keeps saying she does not want to be on her own being looked after by him /gotten dressed by him. Surely shared care can't work/isn't serving the child when only one parent will accept that she has sensory issues and take steps to support her through the healthcare providers ?

OP posts:
BackforGood · 08/02/2019 19:02

I can't help you with the courts / legal / shared care side, but it seems to me it would make sense that you go to the information sessions, and you make what changes you can / give her what support is advised.
You can inform him of what works for her / what makes a difference, and it is up to him if he tries to take them on board - after all it would make his life easier, you'd have thought, if it makes her more able to cope with being dressed etc.
At the very least, you would be better informed and you could make life less stressful for her in your half of the week.

beingniceiscool11 · 08/02/2019 19:11

Thank you BackforGood, yes you're right. That is kind of what I have been doing already in that I've been researching and reading books on highly sensitive children and meltdowns and trying to understand and find ways I can help her eg. such as massaging her feet/stroking to get them ready for putting socks on and only buying clothes that I know won't cause difficulties for her, keeping to a routine or preparing her in advance if something different will be happening.
The problem is that she comes back from her Dad's so disregulated often that my entire say 2-3 days with her in between I am spending all the house she isn't at school, dealing with epic meltdowns, clinginess, night terrors for hours etc. Then for example if she's with me for 5 days in a row, by day 3-5 she is calm and regulated again and then she just goes straight back to him again and the cycle continues so her routine is constantly changing with her going back and forth, and when it's half term or whatever it changes again as he wants to have her for more days in a row etc.
I guess maybe it's something I have to accept but it doesn't seem to be working for her and it's stressful and so much energy for me as well which leaves it hard for me to get any work done because I am exhausted from 30 minutes of trying to get her off the ledge of something simple like putting socks on. All whilst sleep deprived from the night terrors or nightmares she's had the night before.
Sad

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