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SEN

Here you'll find advice from parents and teachers on special needs education.

being led a merry dance by the dx system and losing faith altogether any other parents felt like this ???

3 replies

staydazzling · 06/03/2018 17:01

i have since summertime last year visited my GP asking for an assesment for my 5 year old ds. for behaviours that concern me i.e bouncing off the walls every waking minute morning,noon,night, ill or well attention span is low, seems to have low understanding of danger charges headfirst into situations, listening is terrible.demand avoidant, obsessive behaviour, etc and did absolutely zero.because then he was under 5. They did offer me parenting classes which i took,because " if they decide to do it later on you can say youve done them" Hmm a course which has no SEN angle Hmm but its free and cant do me any harm. The HV agreed to ring his class teacher to ask about my concerns and rang me back about it which was nice , then rang me again due to something else onthe paper work and again to schedule a home meeting to discuss moving forward which ive had to do at a fairly inconvienient time. Im just about done with it all tbh i feel so distegarded,dismissed and low and powerless and lost faith in everything. Im being led a good merry dance at my expense, to prove 'im worthy' of help , when what i asked for is an assesment, i wish id never bothered what an utter waste of time meanwhile my son is just left to drift. If theyve no intention of helping my child i wish theyd just say so and leave us alone. SadAngry

OP posts:
staydazzling · 06/03/2018 20:50

sorry should have said seeking a dx for suspected ADHD

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obviouslymarvellous · 07/03/2018 18:30

Hi I've been where you are and am still muddling my way through. We ended up getting a private OT assessment done and then a diagnosis from a NHS consultant/Paediatrician afterwards. I am still battling on though as one of my twin DDs is showing many ASD traits, she masks at school though but is hideous at home. She is obsessive only wears certain clothes etc is still bouncing around at 11pm won't let go of me in playground suffers separation anxiety is childlike and is very aggressive. School won't back me up so am in a loop at the minute trying to get a further referral. However we have made some headway by going private with the original assessments is that something you could look into? X

staydazzling · 09/03/2018 23:03

x im off to sleep but thanks very much for the reply will read properly later. quite a few have mentioned private actually. it seems a good option

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