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Here you'll find advice from parents and teachers on special needs education.

Got diagnosis... what now?

27 replies

Billynomateswontbemyfriend · 03/02/2012 21:08

So, after 18months plus of wondering, worrying, pushing and pulling...

DS1 (3.8YO) finally got a dignosis of 'being on the spectrum' today. A plan will be put together to get a more formal diagnosis in the next few weeks. This is not news to me.

What happens now? I am feeling relieved but anxious.

I would be so grateful to hear of people's experiences please. Did you tell people? Did you wait for more results? So far, have told my mum and DH. Neither really want to believe it, but I've known for atleast a year that something wasn't 'quite right'.

Also, I have questions about medication. I am adament that I do not want DS1 medicated at this time. He is 3YO. There is nothing about his behaviour that needs to be changed at this point. I just need to work out ways to deal with the way he is. I can refuse to give him meds, right? He is not aggressive etc.,

thanks,

OP posts:
Billynomateswontbemyfriend · 07/02/2012 06:17

mom what age was your son when you took him out of school? One very big question I have is what to do about school. I just cannot fathom how DS1 will cope with it (or how the teachers will cope with him) without it being extremely stressful and potentially dangerous (I have no doubt that DS1 is capable of making a break for freedom or wandering off without thinking of the consequences) and would ike to continue home schooling (he has a tutor at the moment which is working well academically and then I organise playdates in the afternoon (which he sometimes enjoys and sometimes does not).

OP posts:
momnipotent · 07/02/2012 08:51

He was 6. I'm in Canada, and it was the year that he started 'proper school' (grade 1). He freaked out in ways that I hadn't expected, to the point where he was violent with me when I was trying to get him out the door, and it became impossible to even speak to him. He is generally a very sweet-natured lovely little boy, I had never seen him like this. He would be OK on the weekends and then would become sullen on Sunday afternoon and by Monday morning he was just miserable and crying and that alternated with screaming and kicking and hitting. At school he was just sobbing away in the classroom the whole day, the teacher would take him aside and try and talk to him, or he would go out into the hallway but he couldn't seem to calm down. I volunteered in his sister's class down the hall and part of it involved supervising in the playground and if he saw me he would come over and cry and cling. :( We lasted 3 weeks before I pulled him out. Then we went to see the counselor but they just kept pushing me to put him back into school, drug him if necessary, and I wasn't prepared to do that. He started back to school 18 months ago (age 8) and for the most part it is OK, except on the first day of each school year when everything is new again.

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