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SN undiagnosed genetic conditions

This forum is for Mumsnetters to discuss undiagnosed illness.

possible autism/Non verbal - need help!!!

5 replies

Laura55 · 29/04/2022 00:35

Hello everyone, I’m here because I’m very anxious, scared and confused.
My DD was recently referred as she shows signs of autism and the nursery nurse finally listened to me! To make this as short as I can, my daughter is 2.4y, she doesn’t talk but if she does say a world she most likely doesn’t know what it means. She counts to 10 on her fingers even if she doesn’t pronounce the words correctly and said maybe 5 words but not regularly. She’s trying very hard but the words just aren’t coming out, we sing, dance, talk, read but the only way she started saying little things here and there was by watching Ms Rachael.
We had speech therapy today and the therapist confirmed that she is showing signs and she will further refer her but there is a LONG wait so we need to focus on her speech for now. I’m 22, I don’t have any kids in my family so I don’t know what I was expecting but I didn’t expect them to tell me the “speech therapy” will be done at nursery by the staff members that got another 4 kids each to focus on and won’t have time to actually sit down with her and do the actual therapy. I’ve been looking into private therapists but they’re very expensive and the only ABA therapist we have is in central London which is quite far to go to every day. I feel like I’m failing her and she doesn’t get the best help she can get, I’m looking into things I can do myself to help but I’m so clueless.
Does anyone know how I can help my possible autistic DD? Speech, behaviour, development and just day to day life as I feel like I’ve been doing everything’s wrong now. Sorry for the long post, desperate times here! 😭

OP posts:
pigwood · 14/12/2022 22:26

@Laura55 are you still having problems ? Only just read your post and realised it's from quite a long time ago.
We went through this with our daughter so I can maybe help answer any questions you might have 😁

AmyLaila · 02/02/2023 11:24

Hi,

I would like some advice please. Please do share your experience.

mthrofflwr · 06/02/2023 05:16

@LLaura55 any updates??

Laura55 · 30/05/2023 01:11

Hey! Late, but my daughter ended up getting diagnosed 2 months ago, she’s 3y5m now, says simple words like juice, mama/daddy, grandma/grandpa, mickey, dumdum, etc. behaviour got better as soon as she started speaking, now that i can understand/provide what she needs she seems to have less tantrums. We had 4 sessions of group speech and language which were an absolute fail, not for us. She had meltdowns, I don’t think they took into consideration her diagnosis and just taught all kids the same way. I started doing some things myself, like naming every single thing she touches 20x until one day she started repeating everything. She has been referred to occupational therapy this month, she’ll be doing sleep therapy and sensory therapy as well. xx

OP posts:
Laura55 · 30/05/2023 01:14

Please read my other reply! x I haven’t been on here, have you got any help with your situation?

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