Claiming DLA undiagnosed ADHD ASD

[threewillys]

My son is six he has had problems since about 18 months old-two years. I have taken him to the doctor quite a fair few times over the years I feel like I do not get taken seriously by my doctor who is old school.
My son has severe anxiety sensory issues dislikes loud noises lights being in the car, change of routine. This is as well as his extreme hyperactivity and lack of danger awareness.
I talked to the school in reception they agreed he had issues but did not discuss it further and said to take my son to the doctors which I did numerous times. This year I finally had Enough I went into the school in tears as getting him ready in the morning was pushing me to breaking point of him not liking the feel of his socks shoes and uniform. He runs off won’t get dressed and cries if his socks don’t feel right.
When it comes to bath or shower time he will run off hide and scream the house down he’s nearly seven now I can’t lift him like I used to be able to do. This is a fraction of things he will do in the car he gets anxious and upset asks how long it will take over and over or if I’m lost and if I get stuck in traffic all hell breaks lose of him becoming hysterical.
The school this year have told me they have concerns about his extreme hyperactivity and his anxious behaviours. The school have now referred him on for assessment but told me it’s a long waiting time.
I’ve been to the GP in the meantime and said the school have now referred him so what I’ve been saying all these years is valid he has just pushed me aside once again and told me to wait on the school I asked for a letter to send to the DLA to support what I am claiming and he wouldn’t write me one I think he just thinks I’m after the benefit money which is not the case but my son needs a lot more extra care than the average child I work full time but the extra money could cover his swimming lessons as he loves swimming and it’s the only time he is quiet and focused.
I’ve got two older boys 10 & 12 and they were nothing like my youngest son I have always known something isn’t quite right but so hard to get people to listen it’s very upsetting and frustrating.
I’ve now filled the DLA form out myself following the cerebra guide with no medical reports or back up so I think if will be rejected anyway. What can i do if this happens what other support can I get for my son while I wait.

I’d ask for support to fill the form in
Sure they contact the school etc themselves.l but not sure

I’ve been advised to get adult carers people to help with my form as they are very experienced and get decent results as they word things more appropriately
It’s so hard to get the support at times I’m the same being fobbed off etc but finally getting somewhere after being referred to parenting team and working with them they have lots of contacts so see if there is anything similar in your area

Ifs frustrating I’ve been saying for years he will grow out of it etc there is only many times I can say that as he’s seven next month and he is no better then he was at four in fact his aniexty is much much worse. We went on holiday there was a fair there my oldest sons wanted to go well I walked in and my youngest he went ballistic lay in the floor wouldn’t get up saying he hated the noise and the lights and crying his eyes out and asking me to help him. I had to carry him out he was that bad and then the GP tells me it’s normal it’s far from normal. Wish someone would help him I’ve tried I do my best it’s so hard

Hi i too am frustrated with the bloody system ive known since my daughter was around a year old that she is autistic as it runs in the family. I sent her to nursery when she was around 2 and hated it so much i took her out and felt they were uneducated teenagers. I then took her to a steiner school she went 3 weeks and had severe behaviour problems was dangerous when near roads along with all the other signs. I took her to the doctors and said she needs to be in school to get referral. I then decided to fill out dla with the celebra guide myself with no evidence but did a weeks diary and found i do a hell of alot more for her than a child of the same age. Im waiting on a decision. Could you tell me if you get your decision and write to me please.

threewillys i know how you feel its so hard i also have a 2 year old to look after and find hes doing much better than his older sister who is still having accidents everyday and night. I don't have a single bit of evidence for the dla but they go on the care needs not diagnosis so thats why i filled it in because its difficult looking after a child with these specific needs. I have a constant trapped nerve in my shoulder blades because im constantly doing usian bolt after her.