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SN undiagnosed genetic conditions

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possible ASD or ADHD

2 replies

Bean221112 · 14/01/2019 11:52

hi all firstly i am very new to mums net.
I have been trying to look for advice about my 6yr old son, recently he has been showing more signs of the possible ASD although school aren't very good at spotting the sign unless i ask them specific Qs.

my son was born premature and had a few health problems. he was meeting all his milestone with flying colours but his behavior wasn't quite right. At 3 yrs old he would attack me punching kicking biting and slapping. at this point he gave me a thick lip and black eye. the reason behind this was i would allow him to have my phone. theses situation would be the very start. i would put him on to his bed for time out and to calm down but he would then take his bedroom apart. He would then throw objects at me. i informed GP that this wasn't just a faze. this has know continued but he is obviously a lot bigger and stronger now and there isn't much i can do to keep him calm when the switch goes, on the other hand he can be so attached to me that he has to do everything with me. He has never been comfortable in loud unfamiliar or crowded places, he would as a toddler cover his ears and hide his face behind his trusted magic nanny blanket ( his words). know he has started school he only has 2 friends and if they don't want to play with him. he will go and sit alone on a so called "friendship bench" but because he struggles with strangers he wont communicate with them. its heart breaking to know he is feeling so isolated at a place where he should be feeling safe and comfortable but i know he isn't as he often tells me he doesn't like school because hes on his own alot and it makes him feel sad.
i have taken him to the GP who has made a referral but she asked for a report from the school which i know i will have to fight for. ( not got the best relationship with school because of there lack of communication with me) .
has anyone else been through similar experiences. my GP has said she thinks its more ASD than ADHD but to be honest said he fits both categories so i'm a little confused. he does have very hyper moments where he becomes over excited at small things. he is very chatty to his siblings and family but not other children, he struggle to understand that if i'm talking he should listen. talks over people all the time about himself and what he wants to do or is doing. he doesn't understand when its someone else turn to talk. he struggle to see emotion or show it majority of the time. if he hurts me and i cry he shows no emotion and just walks away or continues to shout or hit out. i'm at a total loss at the moment and just want to help him but when you cant get to the route of the problem all i seem to do is make things worse. any advice or help would be very much appreciated.

Thank you in advance cora

OP posts:
Deborah47 · 25/06/2019 18:10

Hi I hope someone can help me,my son is 11,I have always known he was different from his siblings from the very start,he couldn’t speak from a small child,they said when he goes into reception at school there was going to be someone there to help him but there wasn’t I had done some training as a teaching assistant so I taught my son to speak myself then he was Having learning difficulties didn’t want to leave me because of this..got to the point where the school was on my back,Now at this time I had a tumour on my cervix Harrys dad was great so was my best friend who lived one door but one away...I had to go into hospital and have a full hysterectomy and my ovaries basically everything taken away.harry stayed with my besti and his little best friend (her son) I had major complications and had two blood transfusions.anyhow..when I came home I just had I sick feeling inside that something wasn’t right...yes! They were having an affair..it had been going on for a few yrs ..but this isn’t about them..straight after that,Harrys behaviour deteriorated he was fitting at the thought of going to school and started having absences.. at 9yrs old he starts pulling his hair out he is practically bald on top of he’s hair,I’m getting no help from the doctors..harry is now shouting inappropriate things at people when we are in public he doesn’t go to school he won’t wash he doesn’t sleep for days..the Autism Doctor is saying there isn’t anything the matter with him,only the last 3 mornings he has come into my room at 4:30 to say bye mom I’m just going for a bike ride and runs out the apartment..I am on my last legs at our apartment..because when he has a episode he punches himself in the face head buts the walls screams like someone is about to kill him..he is so vulnerable he has met some kids that have got him smoking weed..I have no control over my child Wots so ever and I’m so terribly scared I’m going to loose him,I love him so dearly 😰

Squeekybummum · 14/12/2019 14:47

Hi I'm currently going through the pathway for ADHD with my son, husband was diagnosed a couple of years ago. Its such a long drawn out process. We have been going to a few groups and courses, these are what we have found ourselves as there is nothing in my area.
All i can say is educate yourself with both conditions. Google has been my best friend lately. We have also been told by specialists that you probably won't have just 1 condition, so your little one probably has both, but 1 heightens more than the other in different situations.
I began writing all my sons traits down so when we had meeting i had them to hand and could just list them. Good luck x

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