How to cope?

[Whatthesausage]

Ds3 has very poor muscle tone and poor control, amongst other issues and is currently undergoing tests, the paediatric team suspect genetic at this stage but we are awaiting results from recent mri also. He has global development delay. He started physio this week and in that respect I feel better as I know he is now getting some help albeit slower than id like. What im asking is how do people cope with others constantly undermining and being dismissive of their Los challenges and problems. Im finding it really hard, people say things like oh hes just lazy, or a bit slow or he will catch up. Makes me angry for him, he tries so so hard just to make the smallest of movements, feel like im always battling for him, i know i shouldn't but recently things said have been getting to me. Any one got any coping mechanisms? Tia x

Side point first - They suspect genetics but waiting on mri? Can you push for then to do bloods anyway? They won't actually know ours but genetic unless they check his chromosomes surely?

As for the rest you just have to keep battling until people learn to shut up. Learn some shut down answers.

He's just lazy.
Really? Even though he has to work twice as hard as most kids to achieve the same? That's not my definition of lazy.

He'll catch up!
Well we hope so but that doesn't change how hard things are right now

He's a bit slow!
sorry, what?
Well he's behind our Jordan who could do blah blah blah
Because he has GDD, and has to work harder than most kids to achieve the same

When people talk about out put, talk about input.

How old is he?

I think people say things like that to try and make you feel better. They think it will comfort you to think your child is lazy or slow rather than they have a medical problem.

My ds also has gdd. I felt like everyone else was in denial that there is actually a serious problem because they kept saying, the same sort of stuff.

Best options is to share the severity or just smile and ignore. They mean well they just have no idea.