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SN undiagnosed genetic conditions

This forum is for Mumsnetters to discuss undiagnosed illness.

How do i get the Dr's to listen to me?

4 replies

Ratinthehat · 12/01/2018 17:24

My d's is 9 (nearly 10) since he was a toddler he has been very volatile he flies off the handle over a mufti day or someone coming round that he wasn't expecting. He was a nightmare to get potty trained and want dry during the day until he was 8. He also has no comprehension of personal space and hangs off me all the time. He drives his sister mad with his constant touching and he doesn't understand why people don't like it.

Over the course of his life I've taken him to the Dr's only for them to say it's me. They say as he's not like it at school it's my parenting and I need to set tighter boundaries (funny it's never his dad's fault) I have 2 other dcs and they aren't like it and whatever I try doesn't work. He just goes into these rages where there is no talking to him. He throws himself about and just goes nuts. He has no patience for his brother and is just nasty to him. It also bothers me he has no compassion for others. I once accidently put a knife through my hand and had to go to hospital. He didn't even react and just went nuts that it was his dinner time and where was his dinner?

I dread weekends because I know it's going to be nothing but him screaming at everyone and picking on his younger brother who he has no time for whatsoever. Maybe it is just me but I don't know what else to do!!

OP posts:
Ratinthehat · 12/01/2018 23:23

I think ive put this in the wrong place.

OP posts:
DianaXXX · 09/11/2018 20:10

Hi

Did you get any type of diagnoses for him ?

BlackeyedGruesome · 29/11/2018 12:21

This board seems quieter than chat but you could drop a link into the goose and carrot thread.

Try to write a list which covers the three areas of triad of impairments. Take it to the GP and ask for a referral to a paediatrician.

Do a Sen parenting course. The powers that be do like to send you on them, repeatedly. You can say you are using the strategies but there is still a problem.

keelo123 · 11/01/2019 04:17

I know exactly how you mean with all what you have said and I really do sympathethise with your situation. Don’t let what the GP says make you feel that your instincts are not correct. A mother knows her child! Not only that, a mother is the voice of her child when things like this happen. Speak up for your son and stand your ground and don’t back down. Don’t be pushed aside if you see there is a problem. Demand that you want a second opinion and a third and fourth if needed, request the referral that your son deserves and keep on requesting until things start moving forward!!

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