Why was my post about Montelukast deleted?

[Montelukastwarning]

my posts isn’t break any site rules so why was it deleted?

What was your warning?

Im on montelukast so eager to
.learn what your post said!

Just looked it up out of interest, asthma medication?

And just in case DS had been on it since he was 8 (12 years) and it has been life changing in a positive way. Some people react badly and many don't.

Sorry about your son

Following for any information as DC has just been put on this for severe hayfever

What was it about? By the posts on this thread sounds like it was a 'warning'. It does have potential side effects for some and this should be clearly explained when its prescribed; its also life changing in a good way for others. If it was around this it was probably deleted if it wasn't a discussion but more of a don't take it x, y, z happened to my child.

This was probably why the thread was deleted, don't follow a thread on MN for information! If you have concerns speak with the prescriber or the pharmacist, there's a lot of information in the patient safety leaflets too.

The side effects aren’t always explained properly/well known. I was prescribed it for my asthma. Looking at the side effects and my medical history they probably shouldn’t have. I had a relapse of my clinical depression and started self-harming again. Feel so much better since I stopped taking it.

I thought it was important information

This potential side effect is definitely listed in the patient information leaflet, the NHS website also:

https://www.nhs.uk/medicines/montelukast/side-effects-of-montelukast/

Prescribers take a balance of risk on anything they prescribe as everything has potential side effects. In this case it does sound like perhaps it wasn't the best decision, but this wont be the case for everyone yet some might read this instead of the extensive information out there based on research etc and decide to stop taking it or stop their children taking it without considering other factors. Glad you are feeling better now, i expect its taught you to read info about stuff you're taking. Its definitely not a secret this can have serious side effects.

Haven’t you already asked on a specialist sports FB anyway? You’d need to check the banned substance list if you did.

It gives me chronic nightmares. But I was more at risk of self harm by leaving the constant post nasal drip and clogged sinuses because that was unbearable to me.

Yes. It's been a miracle drug for my son but within a week of going on it my daughter (then 10) was violently depressed, it was scary to see

What was your post about @Montelukastwarning

I read your thread and unless it later took a turn the information you gave seemed quite reasonable and similar to information already available online. I knew the risks myself before my child was prescribed montelukast, but felt they were downplayed by the doctor when prescribing-

My son's consultant took great care to explain the potential mental health risks.

My daughter's asthma nurse didn't even mention them

I know which one I think is the better practitioner.

My son was fine thankfully, but my daughter's mental health deteriorated very rapidly and if I hadn't known about the risks I wouldn't have known why. You cant just bury this kind of stuff in the small print of a leaflet

I read your post OP as I take montelukast periodically to manage my allergies (I don’t have asthma). I didn’t think it broke any of the guidelines and I like to read posts like that, not because I believe everything I read on mumsnet but because when someone posts with links to credible sources it then gives me a prompt to do more research myself and be more informed on the subject that matters to me

Me too

I read it and thought it was informative. It was based on experience, and the yellow card reporting scheme so can't see how it was against rules/libellous.

I would like to know as was thinking about asking. I’ve been on it maybe 6 years and the last 6 months I feel like the world is ending for a day and can’t stop crying then I’m fine in between. Wondering whether I trial stopping them

As a counter argument it’s made little difference to my clinical depression but has been life changing for my asthma. It’s going to be different for different people and it’s a balance. Obviously if it affects you then it isn’t right for you. I don’t think that’s a reason to never prescribe it for a person with a history of clinical depression and self harm. It was probably worth trying.?

It was a miracle cure for one of my children, caused the other to plummet into a horrible depression.

I definitely wouldn't want to see it stop being prescribed, but I think it is essential people (and their families) are aware and alert for the potential mental health risks.

It was an absolute game changer for one of my kids when they were young. They were on it for a few years with no issues. Different medicines have different side effects in different people, that’s why prescribers are meant to monitor patients with what they prescribe.

Hi @Montelukastwarning

Thanks for flagging this. It looks like your thread was removed in error and we're really sorry for any frustration and confusion caused here. We've reinstated your thread now.

Yes, but it wasn’t mentioned to me. And it really should have been!