MN Can we please support/highlight this? Pelvic Organ Prolapse

[Shakey15000]

PELVIC ORGAN PROLAPSE

There. In big letters. Affects so many of us (there are some really supportive threads on MN) but it needs awareness raising.

I belong to APOPS-

www.pelvicorganprolapsesupport.org/pelvic-organ-prolapse-the-silent-epidemic-3

A really informative and helpful site. There is also a FB site that again, is extremely informative and supportive.

The founder has recently embarked on a large campaign to highlight awareness. I enquired if she had approached Mumsnet (as it seems obvious) and she informs me that yes, she had approached MN but sadly had no response?

Is this something that can be rectified revisited? It's such a huge, invisible and relatively unknown condition that I'm sure MN would be a great advocate. Perhaps MN could invite the founder to a Webchat?

I, for one, have suffered, am still suffering in fact. I considered myself to be quite well informed and I'd never heard of it! I actually though it was predominantly a "male" thing, then realised I was muddling it up with prostate

Anyhow, would anyone like to badger suggest a Webchat about it? The founder has said she is more than happy to send the book and I'm quite sure she's also jump at the chance to use MN's worldwide platform to raise awareness.

Thanks in advance

I am completely ignorant about this. By the sound of it i shouldn't be. Thanks OP.

Sound like a gold idea to promote this HQ

I also have/had a prolapse. My symptoms have improved greatly since upping my exercise (I am able to run, thankfully) and losing weight.

However, it still is there - I constantly have the awful low back ache & exhaustion that it brings.

Fully support a webchat, no personal experience but have realised how lucky I have been (so far) not to have had issues following DD's traumatic forceps delivery. Raising awareness and allowing women to make informed choices is vitally important and MN could play a big part in promoting that.

Hi all,

We've discussed this in office and we'll definitely be doing a webchat on pelvic organ prolapse in the future. We don't have a specific time and date for this yet (and it might take us a while to find one) but it's definitely going ahead.

Many thanks to all who contributed.

FANTASTIC!! Thanks so much

Please do. It is a big deal for a lot of women, after childbirth and for years after.

Thank you@ HQ

Hi all, we've been in touch with Sherrie Palm at Pelvic Organ Prolapse Support.org who has agreed to join us for a webchat on Tuesday 23 January between 9 and 10pm. We'll start a new discussion thread for this approx one week before-hand where you can post up advance questions. As soon as this is up we'll link to the new thread from here and also promote across the site.

Many thanks to you all for suggesting this.

Thank you so much! A worthy topic indeed

Thanks - I will put the date on my new calendar

@RachelMumsnet

Hi Rachel, do you know when members can post questions on the webchat in advance type thing?

Thanks!

Update (for anyone interested) I'm back at work following sphincter repair, on a phased return so not too bad. Awaiting next appointment with urogynae around Easter to discuss next steps ref prolapses. Bladder leakage has definitely worsened sadly, as has the need to "splint", perhaps the most depressing, degrading aspect of this bloody condition

Hi all

Here's the link to the webchat on Jan 23rd for anyone to post any questions in advance

www.mumsnet.com/Talk/mumsnet_live_events/3144287-Webchat-with-Sherrie-Palm-of-Pelvic-organ-prolapse-support-organisation-Tuesday-23-January-9-10pm

Hi Shakey15000 - Thanks so much for re-posting the link for Q's, it seems there's huge support for this issue amongst MNers all women

We're grateful for your persistence in leading the charge

@FlissMumsnet

No problem Any chance of it being pinned on the "active" board? in for a penny...