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Defining the purpose of SN:Children

33 replies

lougle · 02/03/2013 22:29

Hi MNHQ

The SN:Children topic has been an absolute life-line to me since my DD was suddenly diagnosed with significant SN at 2 years 9 months. She's now 7 years 3 months, so I have been posting there 4½ years now.

For many of us there, it is a place where we can share our deepest fears for our children, our most hideous experiences and our darkest journeys. As well as cake, chat and frivolity, of course.

I'm sure you didn't expect that topic to be so widely used, nor so powerful when you created it. I know there were issues around inadvertent offence when posters stumbled across threads in Active Convos and posted as if the child were NT. You made the topic 'opt in' for that reason.

Recently, we have had a surge of posters who have no intention of sharing the community we have created. No intention of giving and taking support as the opportunity arises. They are simply there to 'educate' us. To raise the subject of their agenda.

Please could you define the purpose of the board in the top intro thingy which would make clear that SN: Children is a topic for supporting people who care for children with SN, not a topic to harass the parents who are already tired, downtrodden and vulnerable?

It's kind of like shooting fish in a barrel Sad

OP posts:
Icedcakeandflower · 03/03/2013 07:08

I think the posters are looking for publicity, and are best ignored. Or hide the thread. Then report.

By posting on the thread, and it was at 12 pages last time I looked, their agenda zooms up on websearch results.

Maryz · 03/03/2013 07:32

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lougle · 03/03/2013 07:44

Nice idea.

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Maryz · 03/03/2013 09:26

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lougle · 03/03/2013 09:29

Yes, Rowan said they were taking a look, but it's gone quiet from mnhq now...takes time I guess.

OP posts:
Maryz · 03/03/2013 09:31

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Message withdrawn at poster's request.

Maryz · 03/03/2013 09:58

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Message withdrawn at poster's request.

lougle · 03/03/2013 10:02

Thanks Maryz Smile

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