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ED- A man’s story

20 replies

Bionicman · 02/01/2025 19:29

Hi All,

Name change for this one:

I have noticed an awful lot of threads pop up over the last month or so about ED, the common theme is usually that the woman thinks it is about them, and they often feel hurt and rejected. Quite often Porn gets thrown into the mix along with a host of other possible causes, most of which are pretty unhelpful.

It is reported that 80% of men will experience some form of ED at some point in their lives, with the likelihood increasing with age.

There are two categories for ED
Psychological and physiological. Most young men will have psychological whilst older (50+) will generally have psychological ED although of course there are exceptions.

Men often get a lot of slack for being on Mumsnet, but there are scenarios where a man’s opinion can be helpful, especially in areas such as ED. Even more so if said man has experienced it……….

I was diagnosed with Peyronies disease in 2020, this then led to ED approximately a year later.

ED ruined me, it destroyed my relationship, and it crippled my mental health. Unlike a lot of men, I was determined to get better. I wasn’t even middle aged, I regularly went to the gym, I wasn’t overweight, and I had what most would class as a healthy lifestyle. The thought of a sexless life scared the shit out of me so I put on my big boys pants and began my ED adventure .

My journey started on Franktalk. For any wives or girlfriends who are struggling with their partners ED, I would urge you both to go onto the forums and read the many thousands of posts over the last 10 or so years. I must have spent weeks in total, gathering information and focusing on how I could get better. I had atrophy, which meant my first plan of action was to find a way to get back my nocturnal erections – a vital part of a healthy penis and without them, atrophy happens which meant in my case, I lost 2 inches. If every man who had ED, and refused to get help knew that they could and probably would lose anywhere from 1-3’ ( depending on the length of time without NTE ) I am sure more would seek medical help.

My first port of call was my GP – My doctor was little to no help, but I was referred to my local urologist. 6 months later and I was still waiting for an appointment…..If you can afford it, I would strongly suggest you go private for a first assessment. I paid £300 and I was seen the following week. In total I saw three urologists , all privately and they all helped in some dorm
or another. Some more than others.

In the meantime, I experimented with a cocktail of drugs and supplements. Along with a healthier lifestyle such as quitting smoking, drinking less, and eating less fatty foods, the only drugs that worked for me were PDE5’s – or Viagra and other brands. I can’t even remember the supplements I was taking, but at one point I was having 10 different supplements a day to try and combat my ED.none worked, it just meant my bedside drawer was a colour mix of probably over 500 pills and tablets at any given time.

PDE5’s will work for approx. 75% of men .There are two brand leaders, Viagra and Cialis. Viagra is the better known pill – It is usually blue and is taken 30m prior to sexual activity. Try not to have foods high in fat prior to taking and don’t have any alcohol. Effects usually last 2-4 hours but I got quite a bad headache and occasionally some blurred vision. Viagra typically comes in 10mg and 20mg tablets and men with low blood pressure should check with their doctor first as all PDE5’s lower blood pressure which could result in fainting.

Cialis comes in 2.5mg and 5mg for daily use and 10mg and 20mg for use prior to sex. The 10mg and 20mg pills last up to 36 hours so really take the ‘lack of spontaneity ‘ out of the equation. I found them to be a little weaker than viagra but I had very little side effects. As far as I am aware food and alcohol had less of an impact but alcohol + PDE5 is never a great idea due to the lower blood pressure.

It is important to remember that PDE5’s do not increase libido, they do not prevent premature ejaculation and they will only work if the man is sufficiently aroused.

If a man has a venous leak - where blood leaves the penis quicker than blood flows in they are unlikely to work although a cock ring can help - but it must not stay on for more than 30 minutes.

The 5mg daily Cialis worked great for me and after a week of popping a pill each evening, my NTE began to come back, although admittedly not like they were when I was in my 20’s!

I bought my pills online, I bought the generic sildenafil ( Viagra ) and tadalafil ( Cialis ) at roughly half the cost.

At the same time I was battling with my Peyronie’s, which confounded my issues. This isn’t a thread about the PD so I won’t go into any detail but it did mean that I (thankfully) couldn’t do injections. There are two types of injectables - Tri-max and Quad-max.

These are injected into the penis 20 minutes before sex and they are like viagra on steroids. As men get older, and the pills become a greater health risk, or when over time they don’t work as well, they will usually end up on the injectables. The erection typically last for 2 hours although a lot more planning is needed but Sexual stimulation is not needed.

There are also vacuum pumps, which although they can work well it’s not exactly a sexy way to get prepared before sex!

I want to make it clear to any woman that ED is not because of you! It is something that is generally speaking, out of our control and a man with severe ED could have a dozen naked porn stars doing naughty things to him and nothing will happen.

Talking about porn….a common theme on MN is that porn causes ED.
There have been many studies trying to connect the two and approximately 60% of the studies found that porn does NOT cause ED Whilst 40% do.

Porn causes SD, or sexual dysfunction and whilst ED is part of SD, porn is generally not seen as a major contributing factor to ED.

Porn will decrease libido, especially if it is watched regularly and close to sexual intercourse. This will then make it harder to get sexually stimulated and the desire to watch sex will be less. Porn can also cause premature ejaculation and delayed ejaculation, both forms of SD along with PE.

When I first saw my urologist he told
Me to watch more porn - no joke - this was to get as much blood flow into the penis as possible so the blood cells could be regularly oxygenated. The way I see it is, if a man can get hard watching porn but not sex, he has got SD and not ED. If he can’t get hard, then he has ED. If he can get hard but then goes soft he either has a venous leak or it’s partially physiological.

As my journey continued, I was told to try shockwave therapy. I had already heard of this and had done my research and I knew it wasn’t for me. The results were either very short term or it could worsen the ED. It’s not something I would recommend to anybody.

After two years of seeing various urologists, having tests, and taking all kinds of medication, I came to the realisation that physical ED very rarely gets better and over time will only ever get worse. Coupled with my Peyronies, which meant even if I could get hard, sex was near impossible anyway, my final solution was an implant.

I had my implant in 2022. I went private as I wanted to choose my surgeon, with it being such a delicate part of the body. Healing was tough, over 2 months of not being able to sit down comfortably or walk properly but once fully healed I wished I had done it two years earlier. It changed my life, cured the Peyronies and means I will never have to worry about ED again. I feel like superman in the bedroom now, and even out of the bedroom, my friends have all seen a noticeable
improvement in my mental health.

An implant is the last resort, there is no going back, I will never be able to have a natural erection again and I will need 2 or 3 further surgeries to replace it but i honestly could not be happier.

I hope this post doesn’t come across as egotistical and I hope no one takes any offence to what I’ve written. I also hope it’s not too long or boring. Although I’m sure there’s plenty I’ve missed out as well.

There are so many myths and theories online about ED, and of course you can google, but in my experience nothing beats hearing about it from someone who has battled it and conquered it.

Thanks for reading

OP posts:
Joyfulincolour · 02/01/2025 21:04

Well, thank you @Bionicman for sharing this on here. You've given a really detailed but factual account and I'm sure it will help many people. You are right in that many women post on the sex board feeling that their partner's ED is their fault. I hope they find this post reassuring. I'm glad to hear that your treatment has had the physical effect that you needed, but also the benefits to your mental health must feel like an added bonus. I think we sometimes underestimate how sex and our ability to enjoy it do actually effect our lives. The psychological effects should not be underestimated & I'm often saddened by the number of posts on here talking about things like penis size. I'm sure this too can be really damaging for men's self esteem & mental health. Although I am female, I have seen how devastating ED can also be for men & couples in relationships.

Thank you for being brave enough to share this. I'm sure many people will find it reassuring. Enjoy the superman status, both in & out of the bedroom 🤩

fishinghat · 03/01/2025 13:28

An absolutely right on post. Weel done. You have obviously done your homework and worked hard to improve your situation. The only thing I could add is that 750 mg of L-Citrulline (amino acid) taken 6 times a day can really help recover erections. It is not a cure but does help significantly. It also causes a serious increase in libido in both men and women if that is the issue.

Bionicman · 03/01/2025 13:46

Thankyou both of you, I hope others will find it helpful as well.

@fishinghat I tried L-citrulline, it certainly gave me more energy but I'm not convinced it helped in the trouser department, but obviously everyone's body is different and what doesn't work for one might work for others.

OP posts:
beeloubee · 03/01/2025 21:14

Focused shockwave may help your ED

Bionicman · 04/01/2025 12:35

beeloubee · 03/01/2025 21:14

Focused shockwave may help your ED

I always advise against any kind of shockwave therapy, I have heard horror stories, at best it’s a waste of money, at worst it will make the ED worse.

like anything, some may benefit but most won’t and for those that do benefit from it , it’s certainly is not a long term cure.

OP posts:
LeatherJacketWedding · 12/04/2025 23:57

Thank you @Bionicman, it was a really informative read and something I’m (as a wife) majorly and silently struggling with. Can I ask for a little more info about the implant please if it’s not too personal. For starters how does it work? Was it/is it painful at all? Are you in the uk? Is it available on the NHS? What are the costs involved?
Thank you in advance if you choose to answer these questions, it’s very complex but I feel entirely on my own in this.

Smithey885 · 13/04/2025 09:55

@LeatherJacketWedding - I completely forgot I wrote this! ( under a different username)

I wrote it as a resource for those ( men and women ) struggling with ED to show there is always a solution as long as a solution is wanted.

An implant is always a last resort, once a man has one he will never have a natural erection again. For most, this isn’t an issue as typically they won’t get erections any way, but I could so it was perhaps a little more daunting for me , especially at 37.

In short, the corpus Cavernosa, where the blood flows to give an erection is modified and a tube so to speak is fitted either side. There is a pump in the ball sack which when pumped releases saline solution from a reservoir placed in the abdominam. Neither the reservoir or tubes are visible, and the pump is only noticeable when touched. When an erection is needed, the pump is squeezed, how many times it is pumped depends on how hard one wants the erection to be. The penis stays erect until a small button is pressed adjacent to the pump. In theory, an erection could last for days or even weeks.

three years on, it is not painful in the slightest and is nuts part of me now. The first 6-8 weeks after the operation were painful, walking and sitting was difficult and I had to wear XXL jogging bottoms for the first 6 weeks!

I am in the UK, it is available on the NHS but there is a huge waiting list and all other options have to be exhausted prior to getting one. Even then, you won’t get to choose your surgeon or the type of implant which both are vitally important so I went private at a cost of around £13,000.

They last on average 10 years before a revision is required, but I wouldn’t change my bionic Willy for anything!

Hope this helps but feel free to ask with any more questions.

as mentioned in my OP, I would urge you and your partner to trawl through frank talk. It genuinely was a lifesaver for me and knowing I wasn’t alone was such a relief.

LeatherJacketWedding · 13/04/2025 10:27

Thank you so much for replying, it’s heartening to know that it’s a viable option. Myself and Dh are late 40s and I’m not ready to say goodbye to that part of our marriage yet. My Dh is just grateful to be alive so as I say it’s a complex issue. It’s still early days for us as he doesn’t seem to want to look at options, and as it’s a medical issue it’s not like I can see the doctors alone (or I’d even want to). It’s 100% ED not SD.
Thank you again, and thanks for the recommendation, I’ll definitely look through Frank Talk and encourage Dh to do the same.

Smithey885 · 13/04/2025 10:35

LeatherJacketWedding · 13/04/2025 10:27

Thank you so much for replying, it’s heartening to know that it’s a viable option. Myself and Dh are late 40s and I’m not ready to say goodbye to that part of our marriage yet. My Dh is just grateful to be alive so as I say it’s a complex issue. It’s still early days for us as he doesn’t seem to want to look at options, and as it’s a medical issue it’s not like I can see the doctors alone (or I’d even want to). It’s 100% ED not SD.
Thank you again, and thanks for the recommendation, I’ll definitely look through Frank Talk and encourage Dh to do the same.

If Your DH has got ED in his late 40’s I’d urge him to seek medical help urgently. For two reasons-

ED under 60, certainly under 50, is almost always a sign of underlying health issues, heart disease and diabetes being the main culprits. It he doesn’t get help, it won’t go away or get better and his health may well deteriorate.

secondly, when a man no longer gets natural erections, Night time erections in particular, there is no fresh blood flow to the penis which causes scarring and the corpus cavernosa becomes much less elasticity. Which means a smaller penis.

think of the penis as a rubber band - the more you ply it and stretch it, the bigger it gets. An old elastic band that hasn’t been stretched for a while is much more rigid and won’t stretch as much. The penis works in the same way.

A man with ED, with no NTE can expect to lose between half an inch and an inch in length for every year he ignores his ED.

tell him that and look at him rush to the urologist….

PermanentTemporary · 13/04/2025 12:45

This is such a great thread, thank you Bionic/Smithey. As dp and i head into our 60s I know we'll encounter this and it's good to have this resource.

Smithey885 · 13/04/2025 13:34

Thankyou @PermanentTemporary i was sad to see it disappear into the depths of the same old ED. Threads but glad it’s been brought back to life, even if it’s just temporary!

there is very limited knowledge about ED and lots of myths surrounding it outside the medical professionals and those that have been there and nothing beats a first person account IMO.

MarkingBad · 14/04/2025 00:33

Thanks @Smithey885 for an informative and honest post.

I suppose it is difficult not to take it personally for any partner when their partner seems to lose interest and sex diminishes while remaining important to the partner. However it's good to hear it spoken.

May I ask out of pure curiosity, now you have had the implant for a while, and while getting an erection is obviously different does sex itself feel different?

fourelementary · 14/04/2025 01:43

I’m wondering if you can experience sexual pleasure and climax with an implant? And if not, then could you have had an active sex life using toys and tongue and fingers etc? As a woman who is hetero, I would miss my husbands erections for sure if he developed ED and we would obviously try to treat any reversible cause etc… but we equally could also ensure we (I?) got the same levels of pleasure and intimacy from other activities so if it was purely mechanical, an implant wouldn’t be necessary for me to enjoy an active sex life.

AverageGuy · 14/04/2025 09:31

Fantastic post @Bionicman Very brave of you to share. Thank you.

LeatherJacketWedding · 14/04/2025 11:35

fourelementary · 14/04/2025 01:43

I’m wondering if you can experience sexual pleasure and climax with an implant? And if not, then could you have had an active sex life using toys and tongue and fingers etc? As a woman who is hetero, I would miss my husbands erections for sure if he developed ED and we would obviously try to treat any reversible cause etc… but we equally could also ensure we (I?) got the same levels of pleasure and intimacy from other activities so if it was purely mechanical, an implant wouldn’t be necessary for me to enjoy an active sex life.

See I naively thought this, but everything changes! ED is incredibly emasculating for a man and I feel incredibly disgusting as a person for craving any other sexual intimacy from my Dh like he’s just a sexual object, there for my gratification. I just feel like pleasuring me is now a chore for him even though he has in no way ever indicated that.
We’d always enjoyed very full and active sex life without any issues whatsoever, but then BOOM! my previously strong and healthy Dh(48) got a cancer diagnosis - completely out of the blue. He needed extensive treatment and we were told that he’d no longer be able to achieve natural erections due to the extent of his cancer and the treatment needed. Whenever I bring sex up he shuts me down by saying things like ‘well you’ll be alright’. I want him to pursue ED treatment so we’ll both ‘be alright’, but it’s a complex issue.

Smithey885 · 14/04/2025 12:14

MarkingBad · 14/04/2025 00:33

Thanks @Smithey885 for an informative and honest post.

I suppose it is difficult not to take it personally for any partner when their partner seems to lose interest and sex diminishes while remaining important to the partner. However it's good to hear it spoken.

May I ask out of pure curiosity, now you have had the implant for a while, and while getting an erection is obviously different does sex itself feel different?

Nope, sex feels exactly the same, orgasms are possibly a little stronger and the fact that any performance anxiety is completely taken away makes sex so much more enjoyable.

MarkingBad · 14/04/2025 12:26

Smithey885 · 14/04/2025 12:14

Nope, sex feels exactly the same, orgasms are possibly a little stronger and the fact that any performance anxiety is completely taken away makes sex so much more enjoyable.

Fabulous! And thanks for answering

I'm sorry you had to go through so much to get there. It can't have been easy for any age but you are so young.

I'm glad it turned out right.

Gymbunny2025 · 14/04/2025 22:04

You say that Viagra was working for you? Why did you decide to pay £££ for an implant? At the cost of £13 k (every 10 years?!) it’s not really an option for most men/couples but glad it’s working for you.

Gymbunny2025 · 14/04/2025 22:11

Sorry- just googled. The implant is a treatment of PD. And even then you had to pay for it 🥺

Smithey885 · 14/04/2025 23:17

Gymbunny2025 · 14/04/2025 22:11

Sorry- just googled. The implant is a treatment of PD. And even then you had to pay for it 🥺

Yes, it was primarily for the PD. I could get erections of sorts, but because of the PD I had a 90 degree curvature so ultimately the only way to fix it was an implant.

The NHS waiting list is around 18 months and you don’t get to choose the surgeon or what implant you get. Most surgeons are low volume and if they feck it up, it’s basically game over so it’s a small price to pay to ensure it’s done properly first time around.

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