My first reply was a response to your initial post. This is a relatively common occurrence believe it or not so the template letter may be helpful to others in a similar situation . In response to your later update I’d perhaps advise that It sounds like things have actually moved in a really positive direction for you, even if it doesn’t feel like it yet.
The fact the school has already recognised his needs without a diagnosis and removed late detentions is a big win. A lot of parents have to fight much harder just to get that level of understanding.
It also sounds like they’re trying to do the right thing by asking for your input, even if it feels a bit like “shouldn’t you be telling me what works?”
From what you’ve described, this doesn’t sound like defiance in the typical sense. The “freezing”, staring into space, and escalating when prompted are very common with ADHD-type executive functioning difficulties. It’s not that he won’t do it, it’s that in that moment he genuinely can’t get started, and the more pressure he feels, the worse it gets.
In terms of the questionnaire, I’d keep it simple and focus on:
What actually happens in the mornings (freezing, slow to start, overwhelmed by prompts)What makes it worse (repeated instructions, time pressure, feeling pushed) awhat helps (low demand, calm approach, predictability)
And then suggest practical things like a softer start if he arrives late, avoiding public sanctions, and having a calm check-in rather than consequences straight away.
On DLA – yes, you can apply without a diagnosis. It’s based on the extra support he needs compared to other children his age, not the label. If mornings are taking significantly more input from you than they would for other Year 8s, that’s relevant.
I also think you’re right about school placement. If he’s doing well academically and this is mainly around executive function and mornings, then mainstream with the right support is absolutely the right place.
The waiting list situation in Wales is incredibly frustrating. The only things that sometimes help are chasing the neurodevelopmental team directly, asking about cancellation lists, and getting the school to back it up in writing – but unfortunately a lot of it is still just waiting.
You’re clearly advocating really well for him, and the fact he’s had 8 good years at school says a lot. This feels much more like a support/understanding issue than a “behaviour problem”.
You’re definitely not alone in this – lots of parents hit this stage around early teens when demands increase and coping strategies start to wobble. There are lots of parents with ND children on this forum who can provide real support and practical advice as they have experience of parenting ND children. My impression from some small interactions on something I posted myself is that they will be very happy to help and be supportive.