After 5 months of all the possible medical tests, we still have no diagnostic for the chronic pain of our 12yo daughter (possible fibromyalgia, possibly not). She has missed school - every week a day or two. There is no improvement and I doubt there will be even after the holiday. The school does very little - apart from being understanding. The kids are constantly bullying her as there are days when things are better and days when the pain is excruciating, and they think she is lying. There are constant nasty, bitchy comments that make her life an utter misery on top of everything else.
We are researching the possibility to join a virtual secondary school - but at no cost if possible - as I had to give up work and hubby's isn't great at all. My daughter is bright - but no genius - and enjoys school (however she has to say that she hates it when in school due to the kids giving her a hard time for enjoying it, how twisted is that?)
We have only looked to Interhigh and Academus but not sure what the kids results for GCSE or A levels (or IGCSE or IBaccalaureate) are for us to make an opinion if their teaching is that good.
We noticed in other discussions that a lot of the kids that got financial support have a diagnostic - our doesn't and we area a long way away from one. We are not sure we will get any through LAs.
Any experiences or suggestions are very welcome.