Anyone's partner have MS?

[SuperAmoo]

My DP (male) has MS and I just want to talk to someone about it because sometimes it makes me so sad.

Hi. Sending you hugs. My mum has MS so I know a bit about it and some of how you are feeling. Have you tried the MS society for support, I think they have online chatrooms although I've not used them myself x

My dad and my late husband both had MS.I can talk about it but my experience became horrific so you may want to talk to someone else.The progress varies tremendously and there are far more treatments now.My dh diesd in 1986 and my dad in 1990.Dad was 72 and dh was 45.

I'm so sorry to hear that Pranma - thank you for posting both of you - feel slightly less alone already. I hadn't thought of MS society chatrooms. Pranma - what age did your DH get MS?

My dh was dx in 1972 when he was 31 but he had had symptoms for about 4 years before that [blurred vision mainly].His was quite slow at first with long periods of remission the worst part was the depression and anger which accompanied the increasing physical symptoms.He died after having spent 23 months in hospital.
My dad was dx in 1954 when he was 36 but was wheelchair bound within 2 years and steadily regressed until by the end he could only move his head.He stayed incredibly cheerful all his life and was telling awful jokes 2 days before his death.
Its a hard road love,I hope your dh has one of the milder types.

hmmm yes depression and anger - I do find I'm at the mercy of his anger quite alot. The worst part though for me is the fatigue. I am very lucky in that he is able to work full time. But when he comes in the door he is spent and he rests all weekend. I just feel so so lonely sometimes. And...I'm sorry to say...resentful that i have to do everything. Because deep down I'm never convinced it's just the MS. He is also the laziest most selfish person I have ever met - so sometimes I feel really pissed off. But I do really love him despite his faults. And despite the MS. I just feel really hard done by sometimes. Like life just isn't fair.

Sorry me me me...thank you for posting back Pranma. That's really sad about your dad and your husband. May I ask, did you ever feel resentful, albeit guiltily so?

My dh was diagnosed with ms last march and we found the last year very hard while we both came to terms with it. It was a huge shock, he had no symptoms at all til he got his first attack. Docs thought he had a stroke at first then after 2 weeks in hosp he was told it was ms. I was devastated and sobbed for days but what can we do except accept it? He started on copaxone last sept so hopefully that will help prevent more relapses.

Thanks for posting elah10 - I found an interesting website today - you might find it interesting too - www.msrc.co.uk/index.cfm?fuseaction=show&pageid=651

Yes SA I did especially as dh was dx within 2 years of marriage when ds was nearly 2.I had seen what my mum had gone through and I couldnt believe I had the same to come.Dh was a lecturer and continud to work full time until 2 years before his death.His eyes were so bad I had to read students essays aloud every night then do my own teaching prep.He drank heavily and couldnt crawl upstairs,he often wet himself when drunk and all the time he would rage and almost blame me for his state as if he had somehow' caught it' from dad.There was no medication except steroids then.My kids had a rotten time.I still have an essay dd wrote at 15 as if she were me.It starts,'I hear the dragging footsteps on the drive and feel the evening stretching endlessly ahead of me.'

Should have said that I remarried 2 years after Derek's death and have been very happy for 21 years.My dc are also happily married with children of their own.I dont think it is usually so bad these days.

Hi,

My DH has MS.

He was dx about 10 years ago. His sister had it too.

He had symptoms for ages but was dx because he went blind in one eye. He has got some of that sight back now.

He works part time in the evenings.

We do ok. I dont think about the future.

I suppose I havent had much time to think about his MS because it lots of things happened not long after his dx. One thing being DD getting cancer and then dying two years later. I think in a weird way it sort of kept our minds off it.

My OH is pretty amazing. He drives me mad but he did before he got MS. He just gets on with stuff and doesnt get angry (I wouldnt be able to deal with that).

We just make sure we dont get in debt and kee things 'tidy' iyswim.

I just hope he stays how he is for as long as possible.

Pranma - thanks for posting again. Sounds like you really went through a rough time of it. How sad for your husband to be so miserable. I know we're very lucky with all the different medication available now. Chegirlsgotheartburn - I'm really sorry to hear you had such a dreadful time, losing your DD on top of MS. No point thinking about the future I suppose. I try not think about it. I have a fairly crap health future ahead of me myself with two chronic conditions so all in all, I could be pretty pissed off with everything - but then as a Christian I have the lovely thought that I only have to get through this shitty life and then I get something nice at the end! Still it's nice to know I'm not alone.

Never alone on here love .Despite all the rough times we had some very happy years at first.If ever you need any advice or support from me just say-I always check the 'I'm On' section first and I'm here most evenings.Cgh you have had a worse time than I can imagine.To lose a child.........nothing to say.Wish MN allowed hugs sometimes-you two deserve them.