Hi
My teenager has been having some health issues lately and we’ve recently been referred to paediatrics at hospital who I’ve been told are going to possibly refer for a brain scan / neuro
The gp who referred said paeds will do tests and talk about family history before deciding if to refer for a scan . I think they’re trying to rule out epilepsy but it could be something else no one knows yet.
There has been a lot of loss in my family when I was a child , all I know is my sister was disabled and had cerebral palsy ( this is what I was told it was ) I remember her having fits and don’t know if also she had epilepsy or not. Sadly she passed away aged 18 , I was 6 and as I grew up I asked my mum how she was disabled I was told she fell down the stairs as a toddler. Growing up I’ve thought about that story whether it’s true and possible etc
Also my mum turned into a hoarder then as now as a adult I have little contact due to many issues and she turned out to be selfish putting a dangerous dog above myself and my children etc I don’t want to go into all the issues but we are almost zero contact and live far away from them.
Then my grandad died when I was 13 i think cancer but not sure , then my Nan when I was abit older again my mum doesn’t tell me what of I know she died suddenly there was a PM and all my mum told me is she was more unwell then thought.
do I tell the hospital there’s possibly epilepsy on my side as I’m not sure but with my sister having fits it’s likely?
If I ring my mum telling her I need to ask some difficult questions it would be hard as she don’t talk about this stuff but growing up I do have questions, she’s 70 now and I’m mid 30s just unsure because she will ask why I want to know medical history and get nosy and then she might not leave us alone and we’ve decided to cut out toxic people.
Also regarding her biological dad we are no contact he has not tried to have a relationship and washed his hands of his own DD 13 years ago he was abusive to us both yes when she was a baby he was jealous of her so relationship ended and I moved away when dd was 6 months old .
I know on his side his brother has learning difficulties but not sure about epilepsy I am really not wanting to contact him tho we are no contact don’t even have each others details so to contact I’d need to call his father’s business . His parents are useless to and said when I left they want nothing to do with there grandchild because I used there son to have a baby- this is not true we were together but then he turned out to be a abuser.
sorry for the long story so what advice please