Hand hold please

[MoserRothOrangeandAlmond]

My lovely husband is currently sleeping in a cubicle in A&E next to me. I've had one of the worst nights of my life.
Tonight I went to an exercise class, came back an hour and 15 mins later to find my 3 year old daughter standing at the top of the stairs (with her pyjamas on back to front) to say her daddy was lying on the floor in her bedroom.

Walked upstairs to find him on the floor, face covered in blood and confused.
Unsure if he had fainted or since he bit his tongue a seizure.

We were in A&E 8pm-4:30 am, bloods and CT head all ok.
Roll on 5:15 when he had drifted off to sleep he had a seizure lasting 5 minutes.
I'm a nurse but when it's your own it's horrendous.

I love him so much, I've know him most of my life! Be have loved each other since we were young teenagers. I'm so worried!
I'm like a swan (calm on the outside and my little feet are flapping away beneath the water)

I'm so worried. I'm alone, lack of sleep, post nightshift and my brain can't turn off,

@SAH07 I can imagine the shock for your son being diagnosed.
We have a camera in our daughters room as we live in a town house.
The strange thing is I looked on the camera after finishing my exercise class to see if our daughter was in bed before ringing my husband so he could turn the oven on for my tea I saw her sitting on her bed with her pretend hairdryer.
I didn't ring as I thought they were just late getting to bed. The camera only focused on her bed, but if I moved the camera I would have saw him on the floor.

I don't know if I want cameras all over for a privacy point of view.
My heads all over the place. Sorry for rambling.

I hope your son is ok xx

@SAH07 thank you for all the information xx

I think the Apple watches have a fall feature. Would that be any good? I really hope everything goes well for you and your husband

@determinedtomakethiswork I've just got an Apple Watch and I'm still trying to figure it all out (I'm not very technical) I'll have a look into it! Thanks!

He hasn't had a seizure for 27 hours so im hoping it's a good sign

I’m sorry this is happening, it’s such a scary time. It is almost exactly a year (7/3) since my daughter had her first seizure. She has been medicated since June last year and hasn’t had a seizure since her medication started.

it was very hard on her losing her independence as we were told not to allow her to go anywhere alone.

I can understand your concerns about him caring for your daughter. I was worried about leaving DD with her younger sister, although happy leaving her with her older brother for short periods.

Just take it one step at a time with regards to your husband being able to have sole charge of your daughter. I'm sure it will all work out

So... they think that his drink might have been spiked as he was out on Sunday for the football. So want to keep him in for at least another 24 hours and give him anti seizure medication.
Also with him biting his tongue they think he's aspirated on blood and he's got an infection.
Going to see him for visiting time x

Crikey OP. What a nasty thing. I hope that means he won't have any more seizures? Poor guy. Sending my best.

Much love. Let us know how you get on and if they find any drugs in his system! Take care

They found a 'hazy' part in the middle of his brain from his MRI. Awaiting a lumbar puncture. He's been on the treatment for this since yesterday morning. He looks brighter and we have had a little banter with each other. It's nice to see a little bit of my 'old' husband again.
I still have a heavy feeling in my chest and feel like I'm going mad as I can't get the image of him having that seizure out of my head.
I go up to our bedroom and that's all I see, the blood on the wall, on our sheets and him having the seizure.
My lovely sister changed our sheets and cleaned the blood up when we came to hospital. But I can't get it out of my mind.
I'm meant to be on annual leave, I had to drive past my work so i popped in and told them what was happening.
I do work with some lovely nurses.
There's also a student nurse who i mentored and an old colleague on his ward.
So I feel reassured that there are lovely people caring for him xx

Also I apologise for the overuse of the word lovely 🤣🤣

*treatment for possible infection in his brain

Take one day at a time. Don't panic about future routines or what if's. Px

It's scary OP. I had several fits out of the blue. Good news is, on medication, I'm now 6 years fit free.

Good luck for the results of the LP.

@MoserRothOrangeandAlmond I saw your update, any more news? How are you coping

He's so low in mood atm, so the Doctor allowed him off the ward for a little bit to see our daughter. She has been fretting for him as well. She was a little nervous seeing him as she said she didn't want to hurt him.
Out of the blue she said.... dad you were on the floor and I was asking you to get up but you didn't listen... so obviously that was when he had his first seizure and I wasn't there.
He's had his lumbar puncture so just waiting for those results.
I'm still getting awful flashbacks and in the middle of the night I feel like he's next to me and going to have another seizure.

I think it's going to take time x

@MoserRothOrangeandAlmond you're all had a rough few days, it must have been upsetting to hear that from your child

Here is some advice about caring for children when a parent has seizures, also a story for your child that might help www.epilepsy.org.uk/living/parents-and-children/parents-with-epilepsy

@SAH07 thank you. I'll have a look at that. Lumbar puncture results were fine. No more seizures so hopefully he's home either today or tomorrow with an appointment with neurology in the near future.
I'm constantly getting flashbacks when I go upstairs to my bedroom and when I'm asleep I wake up thinking he's going to have another seizure and he's not even there!
Spoke with my GP as I can't go back to work atm!
Our little girl has been acting out a lot so I'm hoping once he's home she will settle.
He's so week and his shoulder keeps dislocating so she knows to be gentle with him! Bless her xx

Glad to hear it sounds as if he's on the mend, OP (touch wood.) What a terrifying time for you all.

The possibility of drink-spiking is horrific, but it would mean it was a one-off occurrence rather than a disease. So I'm hoping that was it, and he continues to make a full recovery.

He's home! With an MRI within the next 10 days! Then on the discharge summary they've put down they are querying rare brain disease. Which when I've looked into it it's an awful disease with not a very good prognosis!

I’m so sorry to hear about your husband but glad he’s home now. Try and take things one day at a time 💐x

l am so glad that he is home. 💐💐💐

He slept like a log last night. I had 2 hours. Someone was sitting on my chest all last night. Flashbacks, the lot.
On the other hand it's so nice to hear his voice in the house again

I've been signed off work

Happy to hear he's home x

I'm not sure if anyone remembers this thread.
But I thought I'd give an update, he had a repeat MRI that showed the lesion in his brain which could be this awful rare brain disease has now gone.

However they have found a meningioma which is a small non cancerous tumour in his brain. They haven't really gave us any more information as they sent all this through a letter.
We still don't know what caused the seizures and he still remains on anti seizure medication. He's having trouble sleeping and constantly twitches throughout the night (unsure if this is seizures activity or side effects from the meds).