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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Partner with long term mental illness

46 replies

ChickenNameChange · 08/09/2021 20:18

Can anyone else share how they deal with things when their partner is mentally ill long-term?
Been with DH over 20 years, he suffers with OCD and has had bad times over the years which were a massive struggle to get through but we did and he's been 'ok' for a long time but Covid has led to a complete crash in his mental health.
I say 'ok' because I think he is constantly preoccupied with OCD related thoughts even when 'well' and it kind of clouds everything from activities we do, time out with the kids, holidays, evenings out, the whole of family life.....I think I have got so used to being mentally alert to things that trigger him that I avoid them, compensate for them or become alarmed and on high alert without even realising it. I'm never fully relaxed when I am with him... I'm almost waiting for the next trigger to spoil any enjoyment. I have a lot more fun when with friends or alone with the kids.
This latest illness period has gone on for so many months with small improvement but not to the point where he is 'well'. I am so torn between being supportive and loving and being furious with him and the impact on our lives. Sometimes I wish I'd never married him.
I can't help him however much I say the 'right things'. He has to help himself by following the strategies that he has been taught rather than the compulsions.
He often gets angry and says hurtful things to me if I try to shine a mirror on things and even give him an inkling of the impact that he has.
I can't be honest about how I feel about our relationship as I get comments akin to 'you've made you bed, you need to lie in it' or I am an awful person for feeling resentful as he is ill and can't help it.
He knows just the buttons to press to upset me and make me feel like I am the unreasonable one and not being how a loving partner should be. It should all be about the impact on him as he is the ill one and at the moment, he has other serious issues to deal with too.
I'm so confused, am I a bad person? Should I just put up with this kind of life? These thoughts make me feel like such a bad, selfish person.
I need some light-hearted fun in my life ....and some physical closeness too.
I'm not wanting to be told the Mumsnet response of 'leave him'. I want a perspective on how other people deal with this situation. I'm a bit scared of the responses you might give me - I feel like such a bad person at the moment.
I have missed out all the positive things so you are only getting one side of this situation ..... There are positives.
I even changed my username as I am scared and might just skulk away but I've been on Mumsnet 16yrs hiding this.

OP posts:
ChickenNameChange · 08/09/2021 21:49

SeaShoreGalore I care what people think of me probably because I don't have a strong enough sense of myself and belief in myself.

OP posts:
Cameleongirl · 08/09/2021 21:51

It should all be about the impact on him as he is the ill one and at the moment, he has other serious issues to deal with too.

This sentence really jumped out at me, OP, as well as your description of how he treats you. I disagree entirely with your DH's view; IMO, an ill person who has a partner/family should definitely consider the impact of their illness on their loved ones.

I'm diagnosed with GAD and like @Colourmeclear, I do everything I can to manage my condition - not just for myself, but also for my family's sake, because I don't want my illness to negatively impact their lives anymore than I can possibly help. That's a crucial part of loving relationships, thinking about the other person's needs as well as your own. In the past, my DH did shine a mirror on the impact my anxiety had on the family and I took note of what he said - it's one reason why I first sought help, because I knew he wouldn't/couldn't tolerate my behaviour at that time.

Your DH suffers from a horrible illness, but as a PP said, you're not his punchbag and it's not all about the impact on him. He needs to recognise that, OP, and start thinking about you for a change. TBH, in your shoes I'd tell him straight (as my DH did to me) and walk out of the room if he gets angry/says hurtful things. He needs to start considering your feelings. Flowers

Smorethanthis · 08/09/2021 21:51

@ChickenNameChange I also wonder if I had a more engaged partner would I have spent so much of the last 10 years on mumsnet. I'm sat alone again tonight and just think well yes I may as well be single.

Cameleongirl · 08/09/2021 21:55

When he lashes out, I think it's because he's scared I will give him an ultimatum or say I've had enough and he wants to make me feel bad and that I would be an awful person to do that.

Perhaps you do need to give him an ultimatum, OP? To his rude and abusive behaviour, not the OCD, of course. Tell him you won't be his emotional punchbag any more.

Mossstitch · 08/09/2021 21:56

Don't be like me and waste another decade of your life and your childrens'! I could have written what you said word for word. You become so used to adjusting your behaviour to not trigger them that you are not aware until you leave the bliss it is to do simple things like putting a meal out in a relaxed manner. I used to freeze if my husband came into the kitchen whilst I was dishing up as I knew I would be doing something 'wrong' in his eyes, I'd find myself waiting til he left the room to continue, pretending to do something else. Things don't change long term, there may be patches of slight improvement but it always gets worse again, that's just what chronic mental health illnesses do and whilst you may feel really sorry for them, that is not enough to ruin yours and your children's lives. The excuse is always they will do something when they are better....... Better never comes because they never put in enough effort to get better and they are very selfish and manipulative! Unfortunately mental health problems seem to get worse as they get older, my ex (finally left him after 31 years of marriage) became paranoid and began to frighten me because his 'intrusive thoughts' turned into unfounded and frankly ridiculous accusations. I was used to being snapped at if I suggested he went to the doctor or if i asked him not to allow his OCD to affect the children (eg he had a thing about them treading in dog dirt and used to shout at them to take shoes off on the doormat) but lying in bed frightened to go to sleep in the same room finally pushed me over the edge to escape.

ChickenNameChange · 08/09/2021 22:16

I really do appreciate everyone's posts and the perspectives you have given me. Certainly a lot of food for thought and I feel quite emotional especially hearing about the experiences of people going through similar who understand the complexities.
I'm not ready to give up on this relationship there is still love too and kindness and understanding. But things need to change and I need to insist on us getting help together.
I can only give you a snippet of a life spent together and I'm not saying this to claim that there isn't emotional abuse going on. Perhaps I haven't recognised it for what it is.

OP posts:
litterbird · 08/09/2021 22:34

So sorry to read of your troubles. Taking this first step to putting a magnifying glass on his abuse to you OCD or not. You have a responsibility for your own sense of self and mental health but most of all you must protect your children from this. I would suggest you continue with your own mental health, keep having therapy and build your self esteem. You must not allow your husband to talk to you or treat you in any way but respectful and loving. If he cant provide that then you must look at alternatives because your children will grow up thinking thats how a parent should treat another parent...abusively. Forget what other people think of you....they dont matter one little bit....think only of yourself now....it will be difficult as he wants all the attention on him and him alone. Let him deal with himself you must deal with yourself and protect your children from him.

colouringindoors · 09/09/2021 09:37

It's hard to hear that some of you say he is being emotionally abusive; that's what it feels like but I tell myself I am being too harsh on him as he's unwell and maybe I'm being self centered.

It feels like he's abusive because he IS.

You are NOT being too harsh. You are not self-centered. You're in a toxic situation which is harming you and your children.

Please try and see that you have nothing to feel guilty about. You have stuck with him for 20 years. He's abusive. You are allowed to remove yourself and your children from abuse. You need to for all your health and wellbeing 💐

legoriakelne · 09/09/2021 13:15

@ChickenNameChange

Re leaving: If a person was married to someone who then developed a life limiting illness that put limits on things and their partner left them, they would be considered an awful person. How is this different?
  1. I wouldn't leap to that conclusion because I don't know what's gone on behind closed doors.
  1. You wouldn't be leaving him because of his illness, but because of his separate choice to abuse you.
  1. OCD is not a life limiting illness.
  1. What counts is what you know to be true of yourself, not the erroneous judgements other people might hypothetically make. But I understand how he has poisoned your view of yourself so I hope your therapy can help you heal that.

It is not safe to have joint therapy where there is any amount of abuse in a relationship. Any competent, skilled, reputable therapist would not agree to it because it is documented as being dangerous and advised against by the relevant bodies.

I hope you are able to continue the work you have been doing individually.

SapatSea · 09/09/2021 14:54

I would have a really good think about what exactly you want to change and about your boundaries. Write your red lines down. When you are ready - tell your H you want to have a serious talk with him, sit down alone together and tell him how he needs to change e.g. how he speaks to you. Do the "when you talk to me like x it makes me feel..." so it's more about how you feel. Don't give an ultimatum unless you are prepared to act on it (e.g. don't say you will leave if he doesn't change his behaviour unless you will follow through). If he says he'll change specific behaviours then hold him to it - so the next time he speaks rudely to you or shouts, say in a low clear voice "don't speak to me like that!"

Has your H said he is frightened you will leave? or are you projecting that as a way to mitigate in your own mind how he behaves?

I know you don't want to leave but I found "Should I stay or should I go?" by Lundy Bancroft really useful in helping me set better boundaries and be kinder and more self nuturing when my relationship was struggling when H had a mental health breakdown.

Shoxfordian · 09/09/2021 15:07

He isn’t kind to you
It sounds like you’re so used to him being nasty that you expect it now and you think this is normal but it isn’t. He’s abusive and has been for twenty years

Ijsbear · 09/09/2021 22:30

@ChickenNameChange

Re leaving: If a person was married to someone who then developed a life limiting illness that put limits on things and their partner left them, they would be considered an awful person. How is this different?
It's not life limitting and you're not awful ... and I suspect you've been made to feel you are awful more than once in your life, by other people who benefit by having you under their thumb.

you've given it your all. That phrase "you've made your bed and now you have to lie on it" is one said by universally abusive people. it's also an acknowledgement that you are really unhappy and the other person knows it and doesn't care.

legoriakelne · 10/09/2021 13:53

Life limiting means denoting a medical condition for which there is no cure and from which a person is expected to die prematurely.

It doesn't mean "makes life tough" or causing limitations on what you can do (the word for that is disability), it means the illness is going to snuff your life out decades too soon.

BlackIsQueen · 10/09/2021 14:03

He is using is mental illness as a stick to abuse you with. He is an abusive man and you are being abused. Nobody in their right mind would judge you for getting the fuck out but you have to believe that in order to start emotionally detaching from him so that you can have a clearer view.

Absolutely under no circumstances are you to have joint therapy, it's too dangerous given the abuse. Imagine that the therapist agreed with him - if he's manipulated you into thinking that you have no right to leave a relationship, he could propably do that with a third party.

ittakes2 · 10/09/2021 17:50

I have severe OCD. In fact we have a lot of OCD in our family - we have been diagnosed with genetic OCD. I am sorry I can't relate to what you say happens with your husband in terms of my relationship with my husband. We rarely fight and he makes me laugh all the time.
What I do find tricky is being a mum to teenagers. Its like walking on egg shells. Trying to do my best for them but it not always being what they want and having to negotiate with brains that are still maturing. Has he tried the OCD drug setraline? I was very anti drugs at first but it is meant to be used to help calm the person so they are more receptive during therapy.
If this relationship is not working for you than its not working for you. His OCD shouldn't cloud your judgement on doing what is best for you.

ittakes2 · 10/09/2021 17:57

One thing I would add is anxiety and fear are at the root of OCD. We tend to have a lower tolerance to stress.
One practical tip is to sit down with him and develop a stress thermometer - write a line of numbers 1 to 5. Ask him what he is doing/feels like when his stress is a 1 and repeat this process all the way up to 5 - then for each stage develop a strategy to help him calm down. What seems to be happening with him is he is not recognising his lower levels of stress and he is going from O to 5 with 5 being him lashing out and being abusive. If he was able to recognise that he was at a 3 and was proactive about doing something about it than he would hopefully not get to a 5.
At a parenting course recently it was suggested to us if we want to shout then sing instead. It is a great idea because our body wants to verbalise our stress - so let it but let it verbalise it in a non aggressive way.

Dartfordwarblerautumn · 10/09/2021 19:41

@ChickenNameChange

Re leaving: If a person was married to someone who then developed a life limiting illness that put limits on things and their partner left them, they would be considered an awful person. How is this different?
Hello, I have had these thoughts too. Married for 30 years with 20 years with him having severe and enduring mental illness-+ including psychosis. I was often his emotional punchbag as his paranoia fixated on me being untrustworthy and malicious I argued to myself that I needed to stay, for 20 years, because he was ill and you don’t walk out on marriage because of illness, and because he did commit to complying with his meds and care plan In March I asked him for a divorce. It was incredibly hard. But the crunch was he’d been lying to me and gaslighting about taking meds when he wasn’t. I realised that by then he didn’t care about us, just him. We were divorced by end of June I had a number of episodes of mental illness myself over those 29 years, and looking back I was undoubtedly abused at times. My own health was being effected as a consequence of trying to stay in my marriage and not walk out on someone who was ill. Whilst I am still having to adjust to life without him ( he was and still is my best friend) I realise it just was not healthy for either of us to live together and stay married. I really believe we will both be healthier living apart and divorced. So no, it is no different except that often mental illness in your OP and doesn’t with that starts to impact your own health and well-being- and at that point you absolutely need to walk away to protect yourself Good luck, it is no easy decision
EarthSight · 10/09/2021 22:36

I can't be honest about how I feel about our relationship as I get comments akin to 'you've made you bed, you need to lie in it' or I am an awful person for feeling resentful as he is ill and can't help it

No. Those people can fuck off.

Other than staying with the kids, I don't know how manage to live with him.

Living with someone with serious issues seriously impacts anyone that's close to them, especially if they're not implementing things they're meant to in order to deal with it.

The problem with anxiety and OCD is that often, they first try to control their own actions in order to make it more predicable and safer and alleviate their anxiety. When that's not enough, then then try to control their surroundings, which means people too. You learn not to do things a certain way because it sets them off. Your relationship then starts to reflect them as a person, so if they're tense all them time and obsessive, your relationship and time with them will probably be tense and rule-bound too.

It's awful and it's awful that people are put in this situations, often feeling like they have to leave. I do hope that when/if this Covid situations improves, your relationship will do, but I think you need to ask yourself if you want to spend the rest of your life this way.

Theworldishard · 10/09/2021 22:41

This is a really sad post.
OP you deserve to feel happy, relaxed and content in your life, not tiptoeing around someone else. I know he has mental health issues, but supporting someone with mental health issues is SO exhausting. They can often demand so much and give so little.
No one would judge you for wanting to start again.

OverTheRubicon · 10/09/2021 23:19

@ChickenNameChange

Re leaving: If a person was married to someone who then developed a life limiting illness that put limits on things and their partner left them, they would be considered an awful person. How is this different?
I had this dilemma too. Almost exactly the same, though with depression and anxiety. People who haven't been there simply don't understand. When someone posts about a mentally ill partner on here, there will be page after page of people saying how you should leave if they're not trying to get well. Or like pps here, that their abuse and their mental illness are separate.

But sometimes they ARE trying, and it's still not enough. And the abusive behaviour absolutely can be driven by the mental illness, because the illness is effectively abusing and controlling them, and that results in them passing on the pain to everyone else.

My former DH is in so many ways a wonderful man. Our lovely times were so lovely, and when he's well, he's thoughtful and kind. The bad times were horrendous, all of us tiptoeing around on eggshells while he raged at himself and us and then sobbed and self-medicated.

I deeply regret that I didn't leave in his first major depression, but even then, in my early 20s, I'd absorbed the message that you can't leave an ill person and that a good woman cares for her man through it all. Instead we stayed together, focussed on the good, things would get better with a new medication or job or more time to exercise... Then things would get bad again.

My eldest has undoubtedly been scarred. My middle child seems unaffected, but it took me too long to realise that they never voluntarily do anything with him. Wish we'd separated long ago, I miss him sometimes, but mostly feel that this is liberating for all of us, including him.

NeverDropYourMooncup · 10/09/2021 23:40

He's dragged you down and is now using his diagnosis as a handy excuse to be a shit to you.

Why exactly don't you want to hear it's perfectly reasonable to leave somebody who has negatively affected your life and continues to do so even when you try and be honest about the harm he is causing you?

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