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Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Spasms

16 replies

pocushocus · 07/01/2021 05:17

Hi I know this isn't really relationship problems but I know this is the most popular thread on here and I am desperate . It started 5 years ago . I was woken up by spasms and electric shocks in my vagina . Clitoris . It would happen through out the day but mostly at night early hours of the morning when I would be trying to go to sleep . It would also wake me up constantly. I was very anxious about it and I think it brought in severe anxiety and depression. It got so bad that I was going to leave my relationship of ten years because of the state I was in over it and also constantly waking up all night . Then a few days later I developed tingling and feelings of arousal randomly. This lasted for two years on and off . I have never spoken to a doctor or anyone about it because it's embarrassing. It went for a few months but always comes back . I don't know if my anxiety caused it because I have had bad anxiety for years or this has caused it . It's on my mind all the time because I am petrified of it happening all the time . It has started again these last few days . I have had barely any sleep . I'm in work now and literally half dead . But can still feel uncomfortable down there . All last night I had what felt like a restless Clitoris . No sexual feelings but every time i relax or or nod off it jolts me awake . I have been looking at pgad and I'm convinced I have that . I have even gone off sex with my partner because I think it has put me off anything sexual . Can anyone help me please . I feel so alone and depressed with this . Is anyone else experiencing this ? Thankyou also I am 33

OP posts:
bumhead · 07/01/2021 07:53

Hi @Pocushocus I am sorry you are going through this. It sounds awful. I suffer with restless legs and that's bad enough so I can imagine that this is really frustrating and worrying.

Could you have suffered nerve damage or something like that? I know you said you feel embarrassed but please please please speak to a Dr or a Gynae because this is something that needs investigating. You shouldn't have to live your life feeling like this and you need your sleep.
Please don't be embarrassed about it, I guarantee you won't be the first woman to experience this and Drs hear all sorts every day and never bat an eye. This isn't something you have caused so please don't feel like you need to feel any embarrassment about it. I really hope you get some answers soon xx

pocushocus · 07/01/2021 13:22

Thankyou so much for replying it means a lot and because of you I have built up the courage and phoned my doctor . She said she had heard of it once before but it's extremely rare . I have back issues . Slipped disk , and arthritis also the base didn't form tidy . I had an mri for this 2 years ago . It doesn't affect me apart from sciatica. She thinks it could be that pressing on a nerve but she's sending me fur an mri on my pelvis and also making a referral to a gynaecologist. I can't wait to get to the bottom of this . It's still flaring up now . Also I feel like I could drop off in work 😂. I can't thank you enough . I have felt so alone with what I'm going through . No way would I tell anyone I know . I do think more women and men go through this but are to embarrassed to say anything xxx

OP posts:
EBearhug · 07/01/2021 13:24

I'm so glad your GP is supporting you. Good luck!

Redruby2020 · 07/01/2021 13:31

So glad the first post prompted you to contact your GP, so the first important step is now done, sounds like you have a nice GP and they are doing the investigations that are necessary, hopefully these things will be done soon, and there will be some answers and treatment and you will feel much better, any problem which then affects our sleep is then going to just make you feel awful, is there anything you can do temporarily with your bed/pillows etc or lie a different way which might help if you could be pressing on any trigger areas at night?

pocushocus · 07/01/2021 13:38

@EBearhug

I'm so glad your GP is supporting you. Good luck!
❤️ Thankyou xxx
OP posts:
pocushocus · 07/01/2021 13:42

@Redruby2020

So glad the first post prompted you to contact your GP, so the first important step is now done, sounds like you have a nice GP and they are doing the investigations that are necessary, hopefully these things will be done soon, and there will be some answers and treatment and you will feel much better, any problem which then affects our sleep is then going to just make you feel awful, is there anything you can do temporarily with your bed/pillows etc or lie a different way which might help if you could be pressing on any trigger areas at night?
I have wanted to contact the gp for so long but always changed my mind as saying I got spasms down there would literally kill me to say it . But I think because it's not face to face anymore made it a lot easier for me ha ha . No position is better than another right now 😭 . It's got to the point where I'm to scared to go to bed because I know il be up most of the night with this feeling . I stayed on the sofa for months a few years back so I could watch tv and fall asleep . I was just reading about pgad and I done think I actually have it because I have never had random orgasams xxx
OP posts:
Eckhart · 07/01/2021 13:52

Doctors deal with things most of us feel embarrassing day in, day out. I honestly think it's probably much more tedious for them to deal with people's embarrassment, than it is for them to deal with the actual medical complaints, which is what they're trained to do.

It does sound like a neurological problem, which means there's nothing up with your clitoris. The problem is elsewhere. Poor clitoris doesn't know if it's coming or going (no pun intended)

They might not have seen your specific problem before very often, but they will have seen problems with genitalia and other neurological issues. They may simply find your issue interesting. They don't study medicine for years and years so that they can look at people with medical issues, and point at them and laugh.

Can you get any time off work? If you tell them you've got a medical condition that prevents you sleeping? You don't have to give them any specifics. I can see it might be embarrassing in that context. Your boss should never have to hear you say the word 'clitoris'!

pocushocus · 07/01/2021 14:34

@Eckhart

Doctors deal with things most of us feel embarrassing day in, day out. I honestly think it's probably much more tedious for them to deal with people's embarrassment, than it is for them to deal with the actual medical complaints, which is what they're trained to do.

It does sound like a neurological problem, which means there's nothing up with your clitoris. The problem is elsewhere. Poor clitoris doesn't know if it's coming or going (no pun intended)

They might not have seen your specific problem before very often, but they will have seen problems with genitalia and other neurological issues. They may simply find your issue interesting. They don't study medicine for years and years so that they can look at people with medical issues, and point at them and laugh.

Can you get any time off work? If you tell them you've got a medical condition that prevents you sleeping? You don't have to give them any specifics. I can see it might be embarrassing in that context. Your boss should never have to hear you say the word 'clitoris'!

Your post made me giggle . Thankyou ! I hate the c word ! I really don't know how I managed to say the word on the phone this morning . It's mad because when I'm stressed it gets worse . She prescribed me a numbing cream to put in the affected area 😅 but it's not the tissue but the muscle thats seems to be jolting . Unfortunately I can't get no time off yet . Work has been crazy since the 1st lockdown last year . But I will 100 percent be informing my boss that il be having time off for appointments. Il just say lady issues lol . Xxx
OP posts:
Eckhart · 07/01/2021 14:48

You don't even need to say that, OP. You can just say you have a medical complaint.

Giggling is a good way forward. It's a lighthearted way of releasing the tension you feel around the subject. You can even giggle when you're talking to the doctor Smile

If stress affects it (which makes sense if it's neurological), have you tried things to relax you systemically, so that you're not focusing so much on that specific area?

Think how small this problem is, really, biologically; it's just like going to the doctor and saying 'I think I've got a trapped nerve in my elbow, so the tip of my little finger keeps going numb and tingly'. It'll be treated in the same way, just by a different specialist. Also, it's probably worth remembering that everybody who shows up with a clitoris problem is probably in exactly the same headspace as you. You're totally normal.

Iseeyoulookingatme · 07/01/2021 17:30

I used to wake up with spasms as well and it used to stop me getting back to sleep and could be very annoying and painful at times and nothing I did would stop the feeling. I got myself a vibrator as I thought perhaps I was having a good dream if you know what I mean and honestly I think it's solved the problem I just needed to orgasam but didn't realise it as I was asleep. I no longer have the spasms waking me up.

pocushocus · 07/01/2021 17:39

@Eckhart

You don't even need to say that, OP. You can just say you have a medical complaint.

Giggling is a good way forward. It's a lighthearted way of releasing the tension you feel around the subject. You can even giggle when you're talking to the doctor Smile

If stress affects it (which makes sense if it's neurological), have you tried things to relax you systemically, so that you're not focusing so much on that specific area?

Think how small this problem is, really, biologically; it's just like going to the doctor and saying 'I think I've got a trapped nerve in my elbow, so the tip of my little finger keeps going numb and tingly'. It'll be treated in the same way, just by a different specialist. Also, it's probably worth remembering that everybody who shows up with a clitoris problem is probably in exactly the same headspace as you. You're totally normal.

I have tried so much stuff for anxiety . Valarium tea , chamomile, cbd oil , pain killers . I take codiene for my back and it used to make it feel less annoying . I am not on anxiety tablets form the docter . Dulexotine. Have you heard of them ? I have google it ! Bad idea lol . The side effects are pretty bad . I have had a bad few weeks mind so maybe that's brought this all on more than usual .xxx
OP posts:
pocushocus · 07/01/2021 17:40

@Iseeyoulookingatme

I used to wake up with spasms as well and it used to stop me getting back to sleep and could be very annoying and painful at times and nothing I did would stop the feeling. I got myself a vibrator as I thought perhaps I was having a good dream if you know what I mean and honestly I think it's solved the problem I just needed to orgasam but didn't realise it as I was asleep. I no longer have the spasms waking me up.
Hi 😊 Thankyou for commenting . When I get them in the morning I'm not feeling anything nice sadly lol . No Randiness at all . I can't wait to get to the bottom of it ! Xxx
OP posts:
UniversalFlangeAdaptor · 07/01/2021 18:22

Sounds very much like a kundalini awakening. Happened to me, thought I was going mad. Common in women aged 37-42.

Eckhart · 07/01/2021 20:17

@UniversalFlangeAdaptor

Sounds very much like a kundalini awakening. Happened to me, thought I was going mad. Common in women aged 37-42.
Normally with sciatica?
bebarkered · 08/01/2021 03:57

Hi OP. I'm so sorry that you are suffering with this. Maybe no connection, but, have you been tested for Candida? I've got it, and, I can't sleep at night with the spasming, pulsing, throbbing, squeezing, it's VERY uncomfortable. I've been referred to a consultant, had tests, had untrasound, and, the internal scanner. Absolutely nothing showed up other than Candida X

pocushocus · 08/01/2021 04:52

Guess what ! I had a good night sleep with no spasms ! Woo hoo . I honestly think it is due to anxiety . 100 percent . There is but of a trigger for me and I honestly do think it has caused this. I'm in work now but as soon as I have a chance il fill you in . Bare with me could be bit of an essay lol . I have googled that khalainia I have spelt it wrong lol and oddly enough I have been thinking some of them thoughts but I wouldn't say that's happening to me . Thankyou very much for your suggestion 😊 also definitely not thrush either . I have had that a few times in the past when I have been in antibiotics but git no symptoms of that either xxx

OP posts:
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