Diagnosis, relationship and work..

[Pegsonstrings]

Hi everyone. Like so many others on here, who either read posts or post for advice, I find myself needing a bit of a chat.

I have been under a neurologist due to neurological issues I have been having. It's potential MS, wit MRI after MRI and other tests they are ruling out other stuff first. I feel like my very active lifestyle has been swapped by disability and its really affecting me now. I am single and have been for some time now. I am not looking for a relationship but would not rule it out. My ex was abusive. And I feel very much alone.

Like so many others on here who have families abroad, I have not been able to really chat to anyone other than my manager and a work colleague who today has turned quite condescending during training and the lack of understanding I get, but it's all so new to me and I am trying very hard to maintain normal work. Due to memory fog, and fatigue I am making a decision to stop working as its making my symptoms worse. But I am feeling daunted by telling people as most I have told already tell me to swift my diet, take vitamins or lie down if I get tired.

Neurological issues don't occur due to any of it unless it's d vitamin or b12 deficiency related, which I don't suffer from.
I am feeling so lonely on this forever journey and if I stop work, who is going to support me?

I have 1 adult child living with me who is amazing and has college and a little income where he supports when he can.

I know I am not inventing the wheel and there are others out there suffering with MS and its a snowflake disease, so no one has the same issues. I am getting so many odd suggestions, advice and how I should just get on with life but I feel like I have been robbed of my athletic body and the ability to do very normal things. My physical ability has declined rapidly in the space of 1 year. So has my mental health.

I am otherwise OK, i will hopefully see family again in the new year but have not seen them for 13 months.

I just want a chat, maybe there is someone out there who is on this journey too or has been and can just talk about life. What is it like now? Thank you for reading

I'm so sorry to hear you are having a hard time Pegs, it is a really difficult decision to make but thank goodness you have a wonderful son.
I've had a lifetime of disability due to an accident and I've learnt the hard way the only people I listen to are myself and my medical professionals, I'm not interested in random advice from other people.
I do work full time, I'm lucky my current NHS job can be done mostly sitting.
I tell people at work as little as possible. The less they know the better.
If you've been here long enough, or UK citizen, you should be able to get disability benefits and housing benefits. Maybe discuss with citizens advice or calculate online and see if you can manage on the money.
You will know when you've had enough and want to give up work.
I find as many disability groups as I can online and forums, they can be really helpful and you can get some great advice.
Good luck with it all.

Are you in a union? Your workplace should make reasonable adjustments for your disability so I would look to get support in continuing to work, (if you want to and feel it would be better for your mh). Sorry I'm not clear whether you feel it's the best decision for you or whether you're feeling pushed out, so apologies if wrong end of the stick.

It must be really hard adapting mentally and emotionally to your circumstances .

@madcatladyforever thank you. And I am so sorry to hear about your disability. Would not wish that upon anyone. I work from home and my company and manager have been truly wonderful in many ways. Buy the path is lonesome. I have been in the UK over 15 years and so may have to see if I can get some assistance. Thank you

@thankfully my work is very understanding. I am not in a union but have various benefits from work such as income protection.