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Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Isolation of Special needs Parents

5 replies

rednosty · 30/03/2019 08:55

Spot on Article about how you become isolated when becoming a special needs parent PLEASE feel free to copy and paste to Social Media. The More people are aware of this the more they can help.

raisingtheextraordinary.com/isolation-special-needs-parenting/?fbclid=IwAR3umZpOi80MBZcuFPXnW3Z1ArH2HZN6hMoS3nz7swJ1QkpA20nfxa-bB9E

OP posts:
Prokupatuscrakedatus · 30/03/2019 10:13

There is one other aspect my DSis (mother of a severely autistic child now a non-verbal adult with the mental age of below 6 needing 1:1 supervision) came accross:
Parents of non special needs kids do not dare / feel uncomfortable sharing their "normal" lives (trouble at school, sleeping problems, teenage problems etc.) with her, fearing the reaction of: "I'd be glad to have your problems." (and - as she told me - often receiving this reaction, too. Not from her, she has non special needs kids as well.)

Nnnnnineteen · 30/03/2019 10:46

Without reading the article I can state it is not spot on.
I am not a special needs parent. I am a parent of a child with additional needs. She is not a special needs child - she is, first and foremost a child, her needs are secondary.

Greenmum2019 · 30/03/2019 18:37

Here here

My son, is my son but at times his additional different needs can be challenging and therefore isolates me.... Not just from the outside world but within my own house/family/marriage

Sahara123 · 30/03/2019 20:30

Yes. I am so lonely it hurts, I can’t commit to a group or hobby, everyone I know is now retiring and talking about all the things they can now do with their spare time. I am mentally exhausted and to be honest things just get harder. I get no respite. She’s 30. To be honest I no longer have the mental energy to worry about using the correct PC terms for things. It’s all just so hard.

KitKat1985 · 30/03/2019 20:38

I agree. DD1 is only 4 but has autism and no friends. She doesn't get invited to parties and therefore I don't get to meet many other mums in her peer group. She doesn't like other children much (especially when they get in her personal space) and can hit out at them at times, so going to things like soft play is just a nightmare. She's terrified of a lot of everyday things like hand-dryers in public toilets, which makes just going out generally hard work. It is isolating.

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