Hi everyone,
I’m totally new here and I’m desperate for advice. Please bare with me as I try to explain the situation as it’s quite complex but I have no one else to talk and I don’t know what to do.
My hubby and I have been together for 15 years. Things haven’t always been smooth but with counselling and patience we’ve always managed to save things (had to have counselling 3 times throughout marriage). My DH has autism and we have two children together. A 14 year old who also has autism and mental health issues and a 3.5 year old live wire.
Due to ill health I have always been unable to work and so stayed home with the kids while hubby went out to work, however a year ago my health too a sudden and severe decline and for the last year I’ve been completely bedridden and hubby has had to give up work to care for me and the boys. He done this without too much upset, it was his idea and decision.
However..... he isn’t coping at all. The house is an absolute mess but he won’t let me get a cleaner in to help him. He stays up all night gaming and then is exhausted and in a foul horrible mood the whole day, although due to his autism he doesn’t recognise his own emotions very well and so doesn’t understand when we all think he’s angry (there is no hiding it, a total stranger could see it, he wears it on his face) and generally the atmosphere in the house is horrible.
I managed to convince him to go to the doctors as I believed he was suffering depression and the doctor agrees, so gave him medication. But he won’t take it! He’s not against it, he just won’t take responsibility for remembering to take it and only takes it if I physically hand him the medication and water! He’s also not helping himself by only getting 2 hours sleep a night and he honestly thinks he copes with that. Thing is he’s now falling asleep constantly during the day when he’s caring for our 3 year old and I know we can all fall asleep by mistake, but he doing every day!
He genuinely feels like he hasn’t got a minute to himself, even though Our youngest is in nursery 4 days a week, goes to bed at 7 and goes to his grans every second weekend. Despite all that time, he believes that he doesn’t get a minute to himself and says that’s why he stays up so late gaming (it’s often 4-5am before he comes to bed).
To add to matters I feel like he’s checked out of our marriage emotionally. I have no one else. None of my “friends” have maintained contact or visited me since I got ill and my mum (who I’m close with) has a new job and is away every week and so she can’t visit either. My dad doesn’t do visiting and my sister doesn’t visit either. I am desperately lonely. Ive spent the entire day alone for the last 12 months and when hubby does come to bed he sits and watches you tube ok his phone.
I got super upset one night about how lonely I am and how let down by my friends I feel and I cried for four hours and my husband didn’t even acknowledge I was telling him anything. Didn’t hug me. Didn’t ask if I’m ok. Nothing. He just stared at a wall until I gave up and went away to cry on my own, which he knew I was doing. He gamed.
I then spoke to him abou the fact that he doesn’t spend time with me. I can’t physically go to him some days (some days I can go downstairs for half an hour), I am reliant on him coming to me. I suggested that we find games we could play together. This is something he’s been wanting me to do for years but it’s just not my thing. Anyway, we agreed on games and got them and that night he spent the whole evening with me. Then the next night he came up and we had been playing a game for half an hour when one of his online friends contacted him asking to play. He left me to go play with this guy. I felt totally ditched. After that he stopped coming up until he was tired and wanting to sleep.
So last week I broke down again and cried so much. Asked him why he won’t spend time me and he said “I want to”... but when asked why he doesn’t, he couldn’t answer. It said it all. Again that night he spent the evening with me but it stopped immediately again.
Aside from not spending time with me he doesn’t acknowledge or show interest in me talking most of the time. He can be watching me talk to him but as soon as I stop talking he’s straight back to his phone without even responding.
He’s horrible with the kids at the moment also. Super moody and unpredictable. Can be in a great mood acting like a kid one minute and in a foul mood the next.
I know it’s likely partly to do with his depression but when he’s not even trying to help himself I’m staring to loose sympathy for him. I’ve got a long history of depression so I do understand it affects your motivation etc but this can’t go on. I feel so trapped. It’s not that we’re having massive arguments or anything, he just won’t connect with me and it feels like he’s checked out on me... but I can’t physically care for my children and so I can’t leave this marriage unless I get better. I don’t know what to do. He won’t speak to me. He just goes stone cold silent when I try to talk to him and then I end up upset and looking like a needy person pleading with him to talk to me.... he just says “dunno what to say”.
Usually I’d turn to my friends when things arent good (although not been as bad as this before) but I just feel they have no interest in me either. No one even contacted me at xmas to see how I was. I deliberately didn’t contact them as I wanted to see who would make the effort to stay in touch. It’s all really made me question if I’m doing something wrong but other than not being able to visit them, I’m not any different to before and one of my friends was like a sister to me before. Friends for 20 years.
I’m so sorry this has been a long winded post, I just have no one else to turn to. I don’t know what to do and I desperately need advice and people to talk to about it all. I’m crying almost daily just now and that’s not helping my health. 😔