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Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Severely disabled, severely controlled and having a moan.

54 replies

oceanjasper · 29/12/2015 07:42

I'm 40ish husband is 50ish, been together 20 something years, we have 2 kids early 20s/late teens.

He's always been quite controlling (IMO-he begs to differ) I've never had any access to money at all (SAHM and even child benefit was signed over to him, there was paperwork, not sure if this is still possible but it was years ago) Never been "allowed" out for girly nights out on the town etc. If a mate phoned and asked if I wanted to pop over for a bottle of wine I'd always have to say "Hang on, I'll just ask him if I'm allowed". He'd almost always say yes to that (she's in her PJs, kids upstairs in bed, no strangers in her house- was fine by him, as long as I smiled sweetly, asked nicely)

I'm bit of a homebody anyway, I never really minded not going anywhere, never felt like I was missing out on my youth or anything. I liked being a Mum, was house-proud, liked "pottering" and thought that when the kids were older and needed us less me and him would do stuff together. Days out, maybe the cinema, bag of chips at the seaside, I'm a simple lass not a one for clubbing and fancy holidays or anything anyway.

I had a few girl pals I could call in for a coffee during the day as long as I told him where I was going, when I'd be back, who'd be there (I do recognise this is controlling too but tbh again I didn't really mind, I'm really bloody boring) They often did stuff together, girls weekends to Blackpool, concerts etc, now and again one would say "You know you're always welcome, we'd love to have you there but we know there's no point asking" They'd be diplomatic, never slag my husband off or anything but I'd get the occasional "Oh for once won't you just bloody TELL him you're coming with us!"...after years they just stopped asking.

There were minor instances of violence in those days but they were very few and far between. I know I sound like a complete effin' doormat but I knew what was what and I was genuinely happy. All I ever wanted in life was happy kids, a cozy home, odd trip to the park or whatever and I had it. I did part-time classes to get my GSCEs and other qualifications so I'd have a better chance of getting a job (misspent early youth unfortunately) The kids were getting older, I started doing volunteer work alongside college which coincided with a house move (at his insistence, the old house was "depressing" him, he hated it for still unspecified reasons, that's what was making him snappy/angry so he said, still no idea why) The new house was a dump so I was scrubbing, writing essays, working, painting walls, unpacking etc etc...and my health (never the best, I've always been physically weak) took a nose-dive. No one could figure out what was wrong with me so there were phsyio appointments, hospitals, tests, more tests on top of everything else. I was permanently knackered, in agony and feeling like a complete failure. Other women run homes, have kids, work full time and there was me crying and wailing after 2 days volunteer work per week. Felt so guilty and the odd snidey "Hmmph, some of us have to work full time" comments from mates and family made me feel like shit. My husband's never really worked and I know we were judged as "scroungers"...I really wanted to get a career, finally have a little money, be able to treat the kids, hold my head up...but my sodding health.

Somehow we ended up drinking at home a few nights a week "It'll help you sleep, you're in so much pain" (no meds forthcoming then as no one knew what was wrong)..."You've had such a busy week sweetheart, you deserve a treat"...and then life went to shit. His violence, moods, anger just exploded. I've no idea what was up with him in those years but he just changed so much. The drinking didn't help matters (understatement) and it got to be every night. Then life just went to utter crap and misery for years. I got rapidly worse, started losing my mobility, completed (and passed) my courses but was too ill to start looking for work. I was unable to keep up with the housework so the house started looking shabby and untidy, we were completely skint, money wasted on booze. He got more controlling, I wasn't even allowed to go and do the supermarket shops with him any more. I hated money being spent on drink but I was so weak I thought "Well he's bought it anyway, it's sitting there, I can't sleep for pain I may as well drink with him"...I'm so ashamed of myself. I think I became an alcoholic for a few years.

Back then he blacked my eyes, throttled me, held a kitchen knife to my throat (for throwing stale bread away) kicked me, threw me, broke my specs hitting me in the face (then refused to give me money to get them repaired) so then I couldn't leave the house for MONTHS and months (who's going to go out in public balancing one armed glasses on their face!) Wouldn't let me have money to get my hair cut, so I looked like a tramp. Every small request turned into a battle, weeks or months of negotiations for things like a supermarket hair dye that would eventually turn into "Tell me what you want, I'll get it for you when I do the shopping"...he couldn't or wouldn't understand why I might just want to browse the shelves myself. There was always an excuse, always a PLAUSIBLE excuse "I couldn't get it last week like I said I would, there was an unexpected bill". "I know I said you could come with me last time, it's not my fault you were ill that day". He would scream at me if I answered the house-phone in case it was debt collection. I've now got a bit of phone phobia, calls to my friend got less and less, I don't blame her for not ringing me these days, as far as she knows I never bothered ringing her.

I ended up in a wheelchair, mystery illness was diagnosed (incurable, very painful, now on serious painkillers and cocktail of meds + causes multiple other health probs, lungs, GI issues, major fatigue and more) I could no longer do any housework, home got FILTHY, I got more ashamed, made excuses to not have visitors. My world got very small, just me and the laptop and a few online mates.

He begged for us to move again, the house was "sending him mad" If we moved everything would change, he'd take me out (I was housebound by this point, for no good reason other than "I thought you'd be too tired" or "It doesn't occur to me to take you out, you need to ask more/be firmer with me") He said he was going to step up and take care of me, bathe me more often, help me get dressed more often (living in my dressing gown, unwashed, sometimes unfed coz I can do very little for myself) He'd do more housework, I could apply for DLA and it would be my money to get whatever I needed to help me live a more normal life.

We moved miles away to a tiny village where I don't know anyone, I got DLA (Except I didn't. He took control of that, I never saw it) he miraculously did stop hitting me, just suddenly (no violence at all for 5 years now) I get more baths, I get fed...I still don't get out of the house but he's great at taking care of me when I'm ill, he's always buying me little treats, make up, socks, chocs. I stopped drinking totally, he didn't but even drunk he's never ever violent now.

Last year, for the first time ever (despite everything he always seemed devoted to me) I suspected him of having an emotional affair with a neighbours relative. He says I'm mad, I'm crazy, I'm a bitch for suspecting. The violence has stopped so why aren't I happy now? He says he physically takes care of me so why do I moan about being trapped in the house when I'm ill anyway, why should he be forced to go to places he doesn't want to? It's selfish of me to want the house tidy and clean when he does so much for me (cooking, bathing, sorting meds, collecting prescriptions, GP appointments) I'm never happy, he tries so hard, he's always buying me stuff (true) But I'd rather not live in a hovel and do without the clothes he buys me (that I never get the chance to wear anyway) Cleaning the bomb-site of a kitchen would be a better gift to me than a box of chocolates. Clearing piles of rubbish from the floor so the house is SAFE for me would be a better gift than body lotion...but then I feel like an ungrateful bitch. The kids hate me, they think I moan at Dad too much, it's my own fault coz I don't ask to go outside, I should stop moaning about the house (I am so dreadfully ashamed of it though, it often makes me feel suicidal) but they don't see all the times I plead and get promises that are forgotten about the next day. They don't understand why I want access to money "Tell Dad what to get when he's out, you know he'll buy you whatever you want!"...They think I'm bitter (I try not to be, but maybe I am) about being disabled, there's not a week that goes by without someone screaming at me that I'm an evil cow, but they've no idea what he's like when they aren't here. The promises that never materialise.

He's already made the effort to stop the violence, to calm his temper right down, made sure I was looked after more, so how hard would it be to tidy up and take me outside? I know he does so much for me, am I expecting too much? We had a lovely Xmas, I feel like such a horrible bitch for moaning but this pigsty got me so down, despite how sweet he was. I don't know if how much it effects me is normal. It's SO disgusting though and just looking around makes me want to scream and cry.

The switch from DLA to PIP means I've lost it and I'm fighting with the DWP to get it reinstated, there's no one able to help me get out more, family have their own lives (and think I'm happy with a wonderful husband who takes good care of me physically, I'm fed, I'm clean, he clears up my puke, I'm "lucky") I have nowhere to go, not a penny to my name, no driving license, no passport, no ID. No bank account (DLA was paid at post office-cash only and I don't know the PIN) no credit/debit cards of any kind. No friends anymore (lost touch with everyone) no mobile phone, a phobia of the landline. I'm never alone to even think or breathe (apart from now-he goes to bed a few hours before me, late into the night is the only time I get to myself otherwise there is always someone with me) I can't get myself dressed. I can't even mobilise my own wheelchair so unless someone offers to push me I am completely stuck. I just can't go on. I beg and beg and beg for change I get promises but nothing changes. I want to be the old me, the person my kids loved, who looked smart, read books, had a clean and tidy house, went outside and got fresh air, saw the sky, birds and the trees. I hate who I am it's not "me" it's someone I'm forced to be...I just want to live before I die.

OP posts:
Aramynta · 29/12/2015 09:10

As others have said Jasper, you need to contact Women's Aid and try to get an appointment with the GP or another professional who you can talk to privately.

I also think you should contact Adult Social Services in your area. I don't know very much about SS outside the CPS but I honestly think if you wee to contact them they would help you. Saying that, your GP may be able to refer you anyway, but you need to gather the support of multiple agencies and get yourself out of this situation.

You story is incredibly sad Jasper. Please don't give up. Make a start and get yourself away from this horrid person. You deserve so much more. Thanks

Palomb · 29/12/2015 09:12

Woman's Aid will be able to help. Best wishes to you. Be strong.

sakura · 29/12/2015 09:14

Please try to get out. This is one off the worst situations I've ever read about - and I've seen and heard a lot.
You are so eloquent and intelligent as the poster above said. There is so much more life in you that this .

Sammy1888 · 29/12/2015 09:15

You could, and you WILL be so much happier! ThanksThanksThanks

MoominPie22 · 29/12/2015 09:36

Ocean You don't have many tools at your disposal, but you do have the internet, your laptop and privacy late at night. The internet is your escape route from this miserable existance you're being forced to endure. So maximise what you've got. Get that post of yours out there and circulate it to as many people as possible.
There are lots of people just a click away who are able to help you. I am confident you can and WILL do it. Your 1st step was making contact on here. Your next step is making Real Life contact. We are all behind you.Smile

MrsJayy · 29/12/2015 09:50

Oh god I dont know what to say does your money go into a joint account is this how he gets round it ? Please email womens aid or refugd tell them you have disabilities and in poor health they will support and help you leave Flowers

MrsJayy · 29/12/2015 09:53

Yes adult social services can help you

Hissy · 29/12/2015 09:53

Another one here willing you to get help to get out.

StuffandBother · 29/12/2015 09:55

I don't think you need to tell anyone anything ... I think you should link your adult safeguarding team & women's aid to this thread, I would hope and pray they would know how to tackle this. I'm sorry for the situation you are in Op Thanks

incogKNEEto · 29/12/2015 10:53

I'm so sad to read this Ocean, he is treating you appallingly Sad I agree with other posters, you need to reach out and tell someone who is in a position to help you, Women's Aid, your GP or Adult Social care. You have written your life story so eloquently here, now you need to take the next step towards a happier and most importantly free life. Good luck x

Elizabethreallyismissing · 29/12/2015 13:22

OP what about your children? You say they are early 20's. Would either of them be able to help you? They must be aware of at least some of what you're going through!

RickOShay · 29/12/2015 17:04

Ocean, I hope you are ok. You can get yourself out of this, you deserve all the things you want. I really hope you are ok, and have managed to phone someone. Wishing you strength.

Queenbean · 29/12/2015 17:17

Gosh, this is so upsetting - OP you have been through a dreadful time but this is the first step, writing it all down

Please check that your browsing history is deleted when you use the computer so that he doesn't see this post. I agree with the others to contact woman's aid. Wishing you all the strength possible to get away from this horrible man Flowers

Blueshoess · 29/12/2015 19:51

Hello,

I really think you will benefit from seeing an Occupational Therapist, you should be able to self refer through your GP or council/social services. An Occupational Therapist will give you practical advice and emotional support to achieve independence and meaningful activities.

MoominPie22 · 29/12/2015 21:38

www.mumsnet.com/Talk/relationships/2536305-Totally-ruined-my-Christmas?pg=18

please check out the info someone posted on Coercive Control.

houseHuntinginmanchester · 29/12/2015 21:49

Oh op. I am stunned, I really am.

Please please take the advice of the wise mumsnetters that have already posted and that will undoubtedly post by the dozen after me.

And if nothing else, just keep posting for now. BrewThanks

Akire · 29/12/2015 21:56

If you can't move your chair you should be entitled to a electric chair on the NHS or at least one you pay for out of your DLA. If you are unable to move yourself I don't see how you didn't qualify for even the low PIP?

Could he be lying to you about this? I am disabled woman living on my own. I get help with carers EVERYONE has the right to be washed and fed and live in a clean environment. You have nothing to lose by making a call- you don't have anything. Keep us posted or if you need moral support

MiscellaneousAssortment · 29/12/2015 22:06

Hi there,

I'm a disabled working single mum, and I really get how you can end up in this situation.

Before I got adult SS involved, I was dependent on my abusive stbxh. Who did not take 'care' of me at all, though I was trapped as I couldn't survive without the minimal help he did provide. Which I was grateful for (Pah! Spits at the memory!).

Thank goodness DS was a tiny baby, and I breastfed, so I could care for him -co sleeping, cuddles, store of nappies by the bed... even if you're not eating properly yourself, your body puts breast milk first. Thank fuck. I would have to persuade him to fill up my water bottles, beg him to cook dinner, plead a favour to help me to the toilet.

It was a terrible, dark time of my life, with a small baby, terrified and no idea what was happening as I lost the ability to walk, stand, sit, move etc.

Thank God I managed to get out (or rather, get him out, I stayed in the flat).

You need adult ss to do an assessment as soon as possible. You can self refer, but in this case I think you need the help of your GP to get them understanding how awful this situation is.

You need carers to replace the 'care' of your husband to be put in place so he can be asked to leave.

Women's Aid can help with understanding how to get your finances back under your control. And how to safely get him out. Also perhaps the police.

So, id say there are two calls/ emails you could make to get the ball rolling. Women's aid and your GP.

I hope both these sources of help
need to help you access help within your tiny controlled world. Mumsnetters can help with ideas too.

One thing I think I should tell you, not to worry you or put you off, but in a 'forewarned is forearmed' way: Sometimes people who are used to speaking to women in abusive relationships, they can get the wrong idea about disability. Near the beginning of escaping, I was told very unhelpfully that "everyone Thinks they can't survive without their abusive partner, it's just an excuse". I was so shocked as I hadn't expected my frightening physical deterioration to be dismissed. I know she meant well and was responding according to her own experience, but it's worth maybe having a think about how you'd explain your illness so it doesn't get lost in translation...

It took me months to try again, but I'm glad I did. And I think you'd be glad too, if you can take that first step...

LuisSuarezTeeth · 29/12/2015 22:16

Hiya. Great advice above ^^ :)

LuisSuarezTeeth · 29/12/2015 22:17

How are you, ocean?

RickOShay · 30/12/2015 08:19

Ocean I hope you saw the dawn today.

WanderingTrolley1 · 30/12/2015 08:27
Flowers

I do so hope you have the strength to seek help.

MoominPie22 · 30/12/2015 08:42

i really hope you are OK Ocean and you got to read all the subsequent posts after your original one. I'm worried for your welfare. I'm also concerned that one of them has taken away your only means of communication.

There are, sadly, lots of stories of domestic abuse on here at the moment, but I found yours particularly heart-rending because, unlike all of the other women, you don't even have the freedom to get out of house independantly.

I realise it's hard for any woman to leave an abusive relationship, but you literally cannot leave as you're entirely dependant on one of them 3 to push your chair!Sad

I hope you have access to your laptop and can return to let us know how you are. I doubt you've even read any of these responses or you would've posted something by now.......hope you're OK though,Flowers

Itisbetternow · 30/12/2015 08:46

Hi OP. How are you? are you able to phone WA or social services?

ButImNotTheOnlyOne · 30/12/2015 08:47

Thinking of you and sending gentle hugs.
I'm so sorry. You deserve much much better.
Sadly having been disabled myself, I don't think your situation is uncommon.

Is there anyone who could advocate for you? Your daughters? Is there anything they might do?

Xxxxxxx

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