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Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Help Desperate for advice on elderly mum living in care home who wants to return home to live with us!!!

70 replies

Avalon85 · 05/08/2013 17:05

I originally posted a couple of years ago on www.mumsnet.com/Talk/relationships/a1448462-Feeling-increasingly-irritated-with-elderly-mother-who-lives-with-us

Since then, my mother became more and more infirm and was admitte to hospital. She had a stroke whilst on a rehab ward (learning to be more mobile after her ulcers became serverely infected) and fell, cutting her head open. She now has mobility issues beyond what she preivously had. She's 92, and was finally admitted into a care home as the social workers felt it was best for us all - my husband, daughter, myself, and her). We run a business and work together 24/7 and since she has been in the home, our lives and our marriage have vastly improved. She is using a walking frame now but is very wobbly, is pushed in a wheel chair and is often giddy, and on 2 x morphine tablets, lots of paracetamol, a sleeping pill and has nurse visits at the home to dress her ulcers twice or three times a week. She has been there since April and we visit every other day as I chose somewhere really nice (took ages!!) and its 5 mins from home.

My problem now is that she is always saying she 'wants to come home when she is better' but the hospital feels that this is as good as it gets for her. But....big but here. If we were to create a bathroom downstairs, get disabled ramps, turn our study into her bedroom, allow carers free reign of our house for visits/to cook for her as and when needed and nurses in for dressings etc (we have two small excitable dogs at home too) and put up with all the negativity, round of hospital visits, people in and out, not to mention the worry about whether she would fall when we weren't there, she feels she could come home again.

I am going to sound like the worse bitch in the world but I cant, just cant, go through this again. I love her but I don;t enjoy living with her. I didn;t enjoy it before she was this until. My life had virtually stopped and our marriage was under strain. LIfe is tough running a business and having a 17 year old daughter to parent too. I really cant do this again. The home is lovely where she is and they adore her. She is settled to a degree but was more settled recently until my parents in law started taking her for weekly outings to their home (They got bored sitting in her room at the home for weekly visits - she WONT gointo the day room or interact with the other residents). Now she's been to their house, she wants to come back to see 'her home' (which is actually our home, and my husbands house - he owns it!). She is refusing to settle completely at the home as she thinks she can come back again.

I have now been told for my own health and sanity, and for our marriage's sake, that I need to be the one (only child here!) to tell her why we feel she wouldn't be safe at home with us and why we cant cope with it all again. In the past she has fallen when we weren;t there, has left the gas on, has broken glassware and cut herself, and has (without being too indelicate) made our family home smell like a geriatric ward. Her ulcerated legs absolutely reek sometimes - literally hard to breathe! Imagine being 17 and having friends over with that going on! I know I sound awful but Im trying to be honest. Add to this melting pot the fact that she and I have always had a difficult relationshihp as she was over protective when I was younger and now overly involved/opinionated in our lives.

If she would just accept it I would bring her for visits, lunch etc but I am always aware that it could unsettle her. we've talked to her before and she appeared to understand - we both got upset and tearful but it was all fine when we left. Two weeks later my husband siad he wasn;t having a room in his home he couldn't use and wasn;t having a shrine so he redecorated the room she used to use as a lounge and we put what was left of her furniture in storage at our workshop. We didn;t say anything in case it hurt her as we'd only just discussed it. She has a lot of her own things at the home anyway and a really lovely room with her own electronic bed we bought we etc. However, imagine our shock when the time the subject was raised again, she claimed we had NEVER discussed it with her before and was very angry, literally furious that we were trying to push her out. My nerves have been bad and I was covered with hives until we found her a home. Eventually, they dubsided but when we have one of 'those' conversations with her in the home, I come out scratching again! I just can't live like this with a sword dangling over my head, waiting for her to demand to come home. Its making me feel ill. She keeps saying to me (accusingly) 'I know you don't want me back!!" I keep saying, its nothing to do with want Mum, its now about what we ALL 'need' as a family, as a couple, and that includes you!

She is safe and well cared for, has more visits than she ever did before and round the clock attention. We don;t have to keep looking over our shoulder any more. But this uncertainty is destroying our happiness. How the hell do I explain to her (shes stubborn and quite selfish and single minded) that we have cared for her for 13 years and we just can;t do it all over again. Mentally she is sharp as a razor and twice as cutting when things don't go her way. I dread raising the subject but I know I must sort this once and for all. What the hell do I do!!! Please don;t think badly of me.

OP posts:
expatinscotland · 05/08/2013 18:48

Stick to your guns! And remind her that it is not her decision to make, nor even yours, it is a joint one involving everyone in the home you share with your own family.

NO WAY I'd move her in.

TheBakeryQueen · 05/08/2013 19:07

I think you have already made up your mind that your mum is not coming home to live with you.

I couldn't, in the situation you describe, leave my mum in a home. She may only have a few years left & I know I couldn't live with myself. But that's me.

It's your decision to make & you've got to be able to live with it. Have a think how you might feel in years to come. Do you think you might regret the decision to not have her home?

MNiscold · 05/08/2013 19:09

I do sympathize with you. My MIL is in a nursing home after a stroke. For about 5 - 6 months she insisted she wanted to go back to her home and refused rehab help, treated staff miserably, yelled at Drs. etc. all hoping to get herself out of the place. But - Nurses and Drs. and family all kept telling her she could not be moved as she needed the higher level of care she got in the nursing home. After about 6 mos. she started to adjust, would go to the day room and take meals in the dining room (she had been staying in her room) and will let family take her out for a walk in a wheelchair in good weather or to a son or daughter's home for a holiday.... for a few hours. Then back she goes, and she is happy to be back now.

maybe it just does take time? and for everyone to say the same things to her that make it clear she's not moving.

cloudskitchen · 05/08/2013 19:13

Stick to your guns. Hard as that may seem. You might have to keep repeating it over and over to her. At least you can leave if she gets angry with you (even though that's hard) I suspect she doesn't want to go to the day room as she doesn't want to bond with people that she won't see again as she thinks she's coming home with you. the sooner she knows it's permanent, the sooner she can integrate and start to enjoy the company of the other residents.

auntpetunia · 05/08/2013 19:18

OK so I don't think your awful, I doubt anyone who has been in that situation would. I've been there.

First things first I would say is say very clearly and firmly to her that it's not an option for her to move in with you, let her rant or cry or whatever. Dont Get into any disussion, "it's not going to happen Mum, you are better off here" just keep repeating over and over.

Second I would suggest not visiting her every few days, give yourself some time off, this will force her to interact with other residents and staff. I'd also ask your PIL to leave it a few days at the same time, if their taking her to their home is unsettling her ask them to only do it once a month or take her for a coffee & cake somewhere.

You're not a bitch, you've been brilliant having her live with you, it's not good for your health that's as simple as it gets. You've found a good home, you know she's well looked after. After you've told her clearly as above, then follow the old MN advice of "smile & nod".

Be kind to yourself.

omaoma · 05/08/2013 19:18

two things from experience with very frail elders in homes that might help:

  1. expressing the desire to 'go home' and might be thought about as linking to the sense of loss of their independence and huge emotional as well as practical changes that goes along with residential care. think of it like a bereavement. moving into a home is basically a sign that you are in the closing stages of your life and you can't go back. Plus your 'family' and friends have changed overnight to the people you now live with and carers - neither of whom you choose. It's no wonder people want to 'go home' to how it used to be
  2. visit your mum super regularly, and take her as often as possible on other trips rather than taking her home. Even just to a local caff. How often does she actually get to a) leave the grounds and b) be outside? a change of scenery sounds naff but can be really important for people who are immobile and usually inside. I've heard of old people who hadn't felt the rain in 5 years. it was too much of a health and safely nightmare to let them go out in it :(
omaoma · 05/08/2013 19:19

sorry missing 'expressing the desire to go home is very common ' there

ImperialBlether · 05/08/2013 19:33

I agree that it would be nice for her to get out and do things away from the home. Is there a cafe she likes? Does she read? If so would she like to go to the library? Does she like a supermarket visit where you pick up something she would like for a snack? Are there shops she likes, like M&S or John Lewis where you could take her once in a while to get something new to wear? I know my grandmother got fed up of things not wearing out but still liked to have something new.

alicetrefusis · 05/08/2013 19:58

No, no, a thousand times no.

She is where she needs to be - for her sake and yours.

IAmNotAMindReader · 05/08/2013 22:07

I don't think you are being awful at all. Here's another thing to think of social services have already said they think this is the best option for her, therefore it is highly doubtful they would even allow you to take her back into your home as you couldn't guarantee the same levels of nursing care available at the home and in their eyes she would be at risk.

This happened to my dad. He was my mums carer and she had dementia too. She was admitted to hospital due to an infection and in that time deteriorated. Meanwhile my dad investigated all avenues of care packages he could to bring her home. Despite being told 24 hour care was available the reality was 1) He couldn't get the funding for 24 hour care and 2) even if he funded it himself he still couldn't actually get 24 hour nursing care.

He was then told in no uncertain terms by their social worker that returning home was a much greater risk to my mother and she was very sorry but if he was intent on bringing her home she would have to do everything in her power to stop him as no matter how much he wanted to look after mum he wasn't capable on his own, not with my help, not even the help of care agencies.

Avalon85 · 06/08/2013 09:05

Thank you so much everyone for your support and responses. It means a lot to not feel alone, im very grateful!

There has been a development actually - my husband spoke to my mum initially then we bit did and the outcome is she accepts she is staying at the home! I don't really quite know how we got here but my husband was so worried about the impact on us all that he 'took the bull by the horns' (he's clearly far braver than me,) now she has talked with me and the elephant in the room has vanished, we have agreed to bring her here for a meal once a week and I will be contacting the sw today to explain what's happened.

Interestingly, after an emotional and difficult time for me, I was dreading facing her but all (and I mean all) she seemed really bothered about is that I colour her hair for her when she comes here next week "make sure you get the right colour, it's the beige blonde one," - wish us luck as I still have vivid recollections about the back flip she did last time, swearing we'd never brought the subject up last time. I want to make sure that Elephant stays outside from now!

OP posts:
hellymelly · 06/08/2013 14:12

Oh that is good to hear. We are still not sure how to proceed with my own Mum. All involved agree it would be insane for her to live alone now, but it is her choice to make and so we have to allow that. I am hoping that she likes and is happy in the new home close to me, but if not then we will have to have similar chats with her, and both DB and I are dreading it..

thegreylady · 06/08/2013 14:37

I too am dreading being on the receiving end of such a 'chat' one day.The enormity of moving into 'God's waiting room' and leaving behind a lifetime of memories,nothing to look forward to but an increasingly reluctant visit would have me reaching for a fast track ticket out of it all.I am 69 and fairly fit but for how long?

hellymelly · 06/08/2013 15:19

Yes, I agree greylady, it is horrible for everyone. It does make me think it is best to prepare properly for ones old age in advance, and have all the tricky chats before they are too loaded with emotions. Personally, I would actually not mind my own mother living with us, but our house is too dangerous for her and not adaptable (the kitchen is at the bottom of a v steep flight, the bathroom up another). Also, although as she is now we could meet her needs with some help, as she deteriorates we would be unable to cope at home as we have no other family anywhere nearby to mind her when we are all out. We have been mulling over moving home to accomodate her, but her night wanderings have been getting worse and would be scary to live with (she falls very easily, and has osteoporosis, she is nearly 82). I want her to be cared for in a loving way but also kept safe, it is very hard to find a way to make everyone happy.

thegreylady · 06/08/2013 16:08

My dd and her dh have always said I could live with them in the event but they have two boys [young now but...] and I don't think I could become a nuisance as I inevitably would if I became really infirm.Dh is 77 now and if I am left alone I will begin to slowly downsize-first moving to a smaller bungalow near them,then into sheltered housing and then,when I know I won't manage alone,I'll take the coward's way.
I don't want to die in a smelly institution with even the best of impersonal carers and no hope of reprieve except death.

FryOneFatManic · 06/08/2013 16:54

TheBakeryQueen Mon 05-Aug-13 19:07:27
I think you have already made up your mind that your mum is not coming home to live with you.

I couldn't, in the situation you describe, leave my mum in a home. She may only have a few years left & I know I couldn't live with myself. But that's me.

It's your decision to make & you've got to be able to live with it. Have a think how you might feel in years to come. Do you think you might regret the decision to not have her home?

BakeryQueen, from your comments, I guess you have not yet been in this situation.

My parents had my maternal grandad living with them for many years. Eventually, their health having seriously suffered, they took the enormous decision to move him to a home. This was after one fall too many where even working together, my parents weren't fit enough to lift him up. And he wasn't a heavyweight.

The only way they could get him moved was to declare him homeless and not permitted to return to my parents home when he was in hospital for a UTI. Grandad even tried to persuade the social worker that he was the person renting the house, not my parents, anything to prevent being moved out.

Grandad took no notice of my parents health issues, my mum had other siblings who only did a token amount to help. I tried to help where I could, but having a full time job and young children it was always going to be hard to help.

It was a very stressful time, but there is no doubt whatsoever that my parents decision was the right one. I am certain it saved their lives, as the pressure of looking after my grandad was seriously impacting on their health.

And over the last year, my MIL has been very ill. I have been looking for a new job after redundancy, but ended up putting a lot of that aside to help her. She is now living in a home, which was her decision.

She decided this because we have no room to move her into our home, and while our children are now a lot older than when Grandad was living with my parents, she said she was not going to impact on them by living with us.

hellymelly · 06/08/2013 16:59

Well when you put it like that....Grin
The home I have found for my Mum thankfully doesn't smell of wee and boiled greens, and it is small and homey with friendly staff. There are some amazing places out there. The writer Diana Atthill, an amazing woman (in her 90s) lives in a home in Hampstead full of fabulously interesting literary and intellectual old ladies. Not ghastly at all. She has no children and moved herself there out of choice when she felt she needed to. I think I could be happy somewhere like that, so it isn't always a dreadful fate to be in an old folks home.

hillyhilly · 06/08/2013 17:17

My mil moved into a home in November, it is a lovely place (it doesn't smell!), the staff are empathetic and caring and she is safe and well fed.
She is mostly happy there, far happier and safer than she would have been living with either of her sons, and certainly a lot more content than the last few months of living on her own.
Please everyone, try not to think of it as dumping your relative in a home or abandoning them in some way, the right home can be a great place for an older person to live

twentyten · 06/08/2013 18:11

So pleased op about progress- it is far easier for a non- blood relative to be more objective. Stick to your guns. It will get easier. You have a right to your life too. Good luck

TheBakeryQueen · 07/08/2013 07:23

Fryonefatmatic, it's something we've discussed in our family already. Provided any health issues were manageable (with community carers if needed) I wouldn't put my mum in a home, not in a million years. She's my mum, she's cared for her mum & I know me, my sister & my brother would pull together to ensure she didn't have to go into a home.

When my nan was really poorly (2yrs ago now), and needed 24/7 care, my mum & auntie got through it. My mum was working full time as a community nurse & then doing nights with my nan. We all did a few overnights to give them respite. My nan has spent all her life caring for others, she still cares for her son who is late 40's with Down's syndrome. I know she looked after her dad too when she had 3 children.

So none of us would see her in a home & I wouldn't see my mum in a home either.

The op did want other views and that's mine.

Anyway it appears its all sorted for the op now Smile

TheBakeryQueen · 07/08/2013 07:26

My nan is better now, still going strong in her 80's. If she had been put in a home there is no way she would've pulled through.

BiddyPop · 07/08/2013 12:42

TheBakeryQueen, not all families are big enough or strong enough to pull together though.

I have seen lots of different sides to it.

MIL looked after her own DM at home for 20 years, all while DH and his siblings were growing up, and GMIL was bedbound for over a decade of that time. She still has her DBro living in an annex to their house, he turns 70 next week and has been a double leg amputee (due to childhood polio) since his mid-20s. So she is his carer as well (he is somewhat independent, but couldn't manage without the CONSIDERABLE support MIL gives him). But MIL was a SAHM and her own MIL was the district nurse so able to get a reasonable amount of support and knowledge through her, and the support of the community around her (that's the kind of community she lives in - they do all rally round and help).

Both my grandmothers died in the past year. And 1 grandad 3 years ago, the other 19 years ago. So I knew them all well, and saw the reality of looking after them all.

My Dad's parents looked after each other for more than 20 years. DGM was weak (heart issues) and had other health issues, but still lived at home and had a reasonably full and fulfilled life until around the time DGDad died. One of their 6 DCs that lived still lives at home (eldest girl), and although FT working until 23 months ago, was home every night. 3 other DCs live within 10 minutes drive, and all those spend a lot of time there - 1 DD came a lot of afternoons after school (teacher), while another DD and her DH did the gardening and spent time in the evenings, a DS used to bake them buns and also spend time there. Another DS is abroad now but was local enough for many years and both those DSs would often call into "home" for their lunch and be company in the middle of the day. The final DS lives 3 hours drive away, but would be up for work reasons nearby pretty regularly and spend time those evenings or lunches that he could. DGD went into hospital 10 weeks before he died, as he had a mini-stroke and then a series of them meant he deteriorated and died. But the family all spent a lot of time there at the time (I only really got to see him by calling at afternoon visiting by taking late lunches from work myself, as there were too many there at nights).

DGM was starting to get weaker at that stage and lose her short term memory. 1 of her DDs retired 5 months after DGD died (took early retirement, which she planned but had thought her Dad would be around as they planned to work on editing his book together). Live at home DD still worked, but arranged working from home in mornings initially (only went to office in afternoons most days). And they were lucky to afford private help so carer came in first a couple of afternoons then increased amounts of time. That DD retired almost 2 years ago now, so both retired girls did much of the physical care, with paid help, teacher DD did some too but has health issues of her own, while the local DS continued the social visiting for company and making the buns so she would eat. Both further distant DSs came as much as possible and again were company for all the girls (DGM and their DSis's). They were lucky enough to afford a stairlift, paid carers, bought physical aids and knew how to arrange other help such as renting commode, hospital bed, wheelchair etc. But all 3 were skin and bone by the end of it. (DGM was comfortable and happy in her own place, but it was a big combined effort of the family). I work FT and have DD with SNs as well as DH spending 50% of his time overseas for work, so couldn't call whenever DD or I had a cold or anything (effect could be disastrous on DGM) and I rarely could leave DD with anyone else (not a lot of family support here, except all those involved in caring for DGM). So I would write, phone, and call when I could, bringing baking or homecooked meals for DAunt to heat for herself at least. And I spent more of my little spare time caring for my other DGM on the other side of the city. They were aged 91 and 93 respectively when they died.

My Mum's DF had a stroke when I was 9. DGM rehabiliated him home from hospital, got him walking and talking again, and looked after him well. Over the following decade, he had a series of strokes and she rehabilitated him every time and he was home for most of that period. She got 1 hour of home care a week, although I think towards the end she got a 2nd hour. 1 DD was living 3 hours away, another was overseas, and her DS was trying to rear his own family too. They helped as they could, but DGM did almost all of the care. DGD had another stroke just before my final exams for school, and spent about 5 weeks in hospital before he died, aged 76.

I spent a year living with DGM some while later, before DH and I got married. She was still ferociously independent - I was allowed stay as there was a clear plan for me leaving (wedding date set) but she wouldn't have anyone stay permenantly. As the "boy" stopped cutting grass locally around that time (late-20's lad!!), DH took over doing it for her every 3-4 weeks and we maintained her garden from then on (we were actually cutting the grass the afternoon before she died). When she was aged 94.5, she was the "super sub" on her local bowls team, which won the Division 2 league! But she started to lose her short term memory, and also started to fail physically. I had been filling her freezer with dinners for 1 for more than a decade (I'd make a couple of small shepherd's pies or fish pies when I was making them for ourselves, and bring them when we came to do the grass). 1 DD was now in the city and also brought dinners, and brought DGM to do the shopping regularly (also worked outside home and had a DH and 2 DSDs to raise herself). Other DD would fill the freezer when she was up and do cleaning etc, and sort paperwork, appointments etc. DGM had managed, due to her own age, to keep the 1 hr home help weekly which kept the house basically clean as she started to fail, and the homecare team was able to increase to more personal care visits as time went on, up to eventually 3 times a day. But she needed FT care as she was a danger to herself (almost blew the house up a couple of times, burnt out pots numerous times, had a number of falls etc). She went into hospital a couple of times for long stays, starting really just after Christmas last year and only getting home for a couple of weeks after that - she moved from the acute to the long stay part of the hospital (lovely bright rooms looking out onto parkland, with deer coming into the gardens to feed at dusk and plenty of plants which she loved) 10 days before she died. Again, I had done a lot of visiting to hospital - but there simply was no option for caring for her at home at that stage. And she was happy there - she loved the banter in the dining room, they had a lovely party for her 95th birthday, she was well cared for in clean, warm, comfortable surroundings. And she had plenty of her own things (small rug we'd bought her a few years back, her own paintings - she took up painting in her early 70s!, her own vase for flowers, and others) so it wasn't alien. And she was able to get around as it was flat, they had plenty of walkers and then wheelchairs as she needed more help, and people who were able to help her when family weren't visiting. And as a staunchly independent woman, there was no way she'd accept help at home from her DDs or me in any event. Open visiting meant all her buddies were able to come when they were able themselves, and I was able to come a lot of days from work at lunch as well (which was easier than going to her house - not only in terms of distance and actually having time to drive there and back, but being able to arrive and then leave without the palaver of locks and feeling upset leaving her alone and needing more help but having to get back to work.

All you can do is do your best to look after the person in need of care and make sure they are getting the physical care they need and still getting plenty of social (care is the wrong word, but I don't know the right one - not just visiting but , yes, caring) from you as you are able. Knowing that they are not abandoned but still loved and cared for and part of your family.

DH and I have talked about it ourselves, for our own parents. We live 3 hours away from them all, and cannot physically care for them. My own DM has said that we should put her into a nice home and not feel guilty, she just wants a hairdresser to visit regularly (and not have a comb over), and for us to "bring a tweezers to keep her chin hairs plucked". I know I cannot contemplate having any of them in our house - it's not suitable and we are not there enough (we both work FT and, as I said, DH is overseas a lot), quite apart from being right out of their own circle of friends and supports. But we will support getting them the right care for their needs and maintaining a lot of caring visits ourselves. And hoping that all the various family members will do this as well (smaller family for DH and half of mine are overseas), but knowing that it will probably fall to us to take the lead in decision making, funding and visiting on both sides.

TheBakeryQueen · 07/08/2013 20:18

Biddypop, I think it's about values too. We are not a large family by any means.

I'm not criticising anyone. Just saying what I would do in the given situation. And to ensure that whatever you decide that you don't regret it later.

twentyten · 07/08/2013 22:17

Really interesting post biddy. Thanks

BiddyPop · 08/08/2013 14:00

BakeryQueen,

I probably spent too much time explaining the practicalities and not enough trying to get at the values part.

On all sides, there was a lot of care for the elderly family member. And a lot of love, and wanting to keep them involved in the family even as their physical and/or mental health was failing.

So, for example, the evening before 1 DGM died, there was a gathering downstairs in her house to celebrate the 60th birthday of 1 of her daughters - 10 adults and 4 children having a nice buffet dinner together. Meanwhile, the district and hospice nurses both called over the course of the evening, as DGM was asleep (unconcious) and needed a little extra care that day. But when they left, DGM was settled happily and, while we weren't as actively encouraged as usual to "pop in to see her", we were not told to stay out (she was settled and asleep - no crisis - DAunt was still due to fly out for a birthday trip with very special friends including a recently widowed "birthday twin" 2 days later) so I did see her that night. And she died peacefully the following evening, having been bedbound for almost a year and still a central part of many family celebrations and tears, and just regular callers to her too.

And while other DGM was in hospital/home for most of the last 7 months of her life, it lifted the burden of physical care from us so, certainly in my case, I saw her a fair bit more frequently than in the previous 2 years (living across the city, working FT, DH overseas and dealing with DD's suspected SNs all reduced my capacity for long visits). Which she absolutely understood about, and always gave out for me coming so often and bringing dinners etc even though she loved to see me coming. She was in no way abandoned in the institution, they were all lovely there (staff and patients), and she saw as much or more of her family while there as when she was at home. But she was not just stuck in her chair all day watching tv, she had company, they played cards together sometimes, she got newspapers to do her crosswords, and there were plenty of cups of tea or coffee when she wanted them, rather than having to wait until the carer came in hours later.

The only 1 person who could POSSIBLY have taken that DGM into their own home was my DM. Who doesn't work but has fairly serious involvement in a voluntary organisation at national level, has to travel internationally with DF (expectation of spouses accompanying in the industry and age profile), and has 6 of her own DCs to be concerned about too (all grown, but scattered globally and all have different issues). Quite apart from living so far away from DGM's extensive circle of friends (lots of whom I met regularly in hospital), and having a house unsuited to the needs of an elderly person (think half finished DIY jobs, loads of stairs, small rooms etc). DAunt didn't have room in her house physically and works. DUncle is effectively homeless.

So the values they applied were to support their DMom at home as long as possible (and that was probably longer than wise but they were going by DGM's wishes) and then make sure their DMom was really well cared for physically and do as much visiting as they could when they couldn't source elsewhere and provide themselves the level of care that her changing needs required.

I saw good days and bad days with that DGM. And because I had lived with her for so long, and had such an ongoing relationship with her, I probably saw more than many others in the family (without having the same level of abuse and vitriol aimed at me as was aimed at her own 2 DDs at times - partly her character but definitely made worse by her deteriorating health). She was more likely to not put up the shutters with me. She did want to go home - but only to HER home, not to one of her DDs. And she did know that she couldn't. But she mostly was happy there - some days really happy, others just more content to get on with it - and she was in a lot of pain for parts of it, which didn't help but also she talked about the nurses being able to help with it when "the girl" (late 50s district nurse and late 40s carers) couldn't.

And I know there were also similar good and bad days with my other DGM who stayed at home. Which I saw less of as I was giving my energies more to the DGM who had less support and needed my time more, and both DGMs came from the "stiff upper lip" era so would be less inclined to show it. But I did see some of it and my DAunts have slowly talked about some other parts in recent months.

Neither path is easy. Neither path is perfectly right nor perfectly wrong. All anyone can do is their best at any point in time to deal with the realities of life and the whole family. And with more elderly family members, ensuring that they are well cared for physically while still being part of the family circle is such a hard balance to get right. But if you make the efforts to get the right physical care (however you can do that as a family and not putting all the burden on 1 individual, especially where more than 1 DC of the elderly person), and equally as important, make sure that you continue to include them in family events and the family circle, that's all you can do.