My DS2 age 9yrs has problems with his bowel, his bladder, has severe nut allergy. I tried to get him statemented 4 yrs ago, but his school blocked this saying there was nothing wrong with him. He was assessed for Aspergers, diagnosed, put in the 'grey area' as not to label him for life, again the school say there is nothing wrong with him.
He most definatly has Aspergers, but the schools views had an major influence on his final assesment.
Now, my DS2 is kept in most break times, as he has difficulty with putting anything down on paper. This makes his deeply depressed and violent at home. He has stopped eating.
He goes to school eats nothing, drinks only a small carton of juice 200ml, at lunchtime. He is dehydrated most days. The hospital have written to his school 3 times in the last 4 years stressing the importance of him having fluids. DS2 has visits the hospital every 3 months for his medical problems for the past 5 years. No one tells him to drink in class, so he does not, because of Aspergers he NEEDS to be told to drink. His School is making him ill, no one moniters if he eats or drinks. His physical and mental health are affected. The school listens but does absolutly NOTHING. Moving him to another school would be too traumatic for him. He cannot cope with change. Since reception class he has had a reading age of 12, is brilliant with music, computers, science, does very complicated animations, he is quite gifted....But his hadwriting is non existant he writes literally only a couple of lines very badly. He only does a 10th of what is expected. He has never written more than 5 lines of work, he has never completed any work in school,now in Y4. The school do not see this as a problem?? but still keep him in most break times?? My son is being punished for having Aspergers, I cannot get a correct diagnosis, while he is at his present school, as his school gives false information. The SENCO at his school has no understanding of Aspergers whatsoever. She said to me in a meeting, 'I can't believe he has problems he seems so bright'. DS2 has no comprehension of other peoples feelings, he has no real friends, he does not get invited to parties as he is 'different', wierd. He has no social skills, he is very happy or very sad, there is nothing inbetween. I have had countless meetings with the headteacher, I get lip service, no action. DS2 gets no help at all.
What can I do???
Please???Please, someone point me in the right direction for help and advice, my son is so unhappy.
I am at breaking point.