Disabled Parking Place for Child at School

[Rowan4Keir]

I have an 8 year old son (and wife) who suffers from the rare Familial Cold Autoinflammatory Syndrome Type 2.

There are only 13 reported cases of this in the world and my wife and son are the only cases in the UK. The others are in Guadelope, Northern Italy and South of France.

The condition is is a mutation of the NLRP12 gene at the ninth chromosome, The condition causes his autoimmune system to switch on irregularly and the faulty switch is not always able to switch itself off, therefore his body attacks itself. This leaves him in severe to excruciating pain.

My son attends St John’s Primary School in Edinburgh. He misses about 50% of school because of his condition, however, we do everything we can to get him to school, using a lot of analgesia, as much as possible.

Outside the school there is a painted disabled parking place but this is not enforceable so it is used regularly by people without a disabled pass, visiting the school and most importantly very regularly by two residents of the street where the school is located. This causes me to, at times, carry my son, who will be in severe pain, out of school, across a main road with him, and put him into the car at least 100 yards from the school gate.

The council have been trying for more than 18 months to enforce a traffic order to make the parking place enforceable but one person has held this up initially by submitting freedom of information requests followed by an objection to the traffic order. The objector is one of the residents who uses the disabled space even although he is not disabled. He is also the Secretary of the Local Community Council.

I have been informed that the Council will accept letters and emails of support from anywhere for the traffic order so I have come here for the first time to get some help. It is very easy.

Simply email [email protected] saying your support proposed traffic order TRO/14/28B

You can check out the traffic order at the following URL: www.edinburgh.gov.uk/downloads/download/1523/tro1428b_%E2%80%93_dppp_introduceremove_disabled_bays.

If you feel you can help me get this passed as soon as possible, can you also pass this post on to your network and ask them to do the same.

Thanks in advance.

Thank you very much for your help.

Thank you all for your help.

I will email and share too. The very best wishes to you and your family

FYI I received this from the council.

Thank you for your email supporting TRO/14/28B.

The consultation period for this Order ended on 11 September 2015 and the Council would only be able to consider representations received on or before this date. In addition, the legislation only requires local authorities to consider objections.

An objection was received during the consultation period relating to the disabled bay proposed outside St John’s primary school on Hamilton Terrace. Having discussed the matter with the local neighbourhood manager Mr Andy Matheson, he intends to prepare a Report to be considered by the Transport & Environment Committee at its meeting on 12 January 2016, when a final decision should be made relating to this bay.

Kind regards

Sharon Lansdowne
Traffic Orders Administration Officer.
City Chambers, Room 10.19, Transport, Services for Communities, Edinburgh, EH1 1YJ
Tel 0131 469 3290 or [email protected]

I was just going to post the same e-mail as uhoh.

Best of luck for the January decision. I hope your son is having a 'good' day today.

@Uhoh1973 Thanks for posting that reply. I have been spending all afternoon trying to get someone at the council to explain why there is such a huge gap of time for the report to be considered. I'm totally gutted. None one of the Councillors at the City Council has phoned me back.

Have now made contact with city council and they may hear the decision at the October meeting. Not confirmed though.

You have to wait til January for a decision?! That's awful ?? if you google it there's a story in the news about a mum who waited 6 months for the council I think in Melton Mowbray, to put a disabled bay to be put outside her child's school for her, she enlisted the help of a friend and painted her own bay there in the end and it was allowed, well, nothing was done to stop her, the school supported her and the council finally got their act together!

emailed him...

I don't see why there is a space there if it isn't going to be enforced! apologies if that was stated elsewhere!

good luck!!

edit: have just seen the reply above, oh well, fingers crossed for you.

There is going to be a story in the local newspaper tomorrow. I will post the URL as soon as I find out.

Thank you all for your help.