DS got a statement because we killed ourselves proving he needed one before he got into the school system of hierarchy, misinformation, undertrained SENCOs etc.
We were continually told he wouldn't get one until the day he got one which wasn't worth the paper it was written on. Indeed when we began the appeal against the woefully inadequate provision, the parent partnership (who were supposed to be supporting us but shared and office with the LA SEN bods) told us that there was no POINT in appealing the statement because we were lucky to have one at all given that everything in it could be delivered without having one at all
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My ds would most likely have been one of the children Mrz talks about being in her school but without a statement if it wasn't for the fact I had a lot of inside knowledge into how the system works and also how stacked against parents and their children the SEN truly is.
Indeed, the provision we were asking for was not what the LA 'provided' so they threw inappropriate SALT and OT at ds despite him not needing it (he did need both, but a special type and not as many hours as they were offering), because they had already purchased those services in block contract deals, thus depriving a good number of other children those services in order to win a tribunal against a parent that was challenging their lack of appropriate provision.
That provision failed him, and he is now in an independent special school, which didn't take much of a fight given how much he had deteriorated.
What a waste. His life chances are now at risk, a good number of vulnerable children lost their SALT and OT for a year or so, and he is costing the tax payer substantially more that he needed to.
Direct Payments are supposed to be introduced that would technically have enabled us to purchase the provision ourselves (Thus allowing us to have our cheaper but outcome-based provision) but Local Authorities are refusing these to parents on the basis that services they might chose aren't being independently evaluated and that it risks parents being exploited.
What they fail to acknowledge is that their own shambles of holistic, non-accountable, make it up on the spot provision is also not ever independently evaluated and thus risks parents, children and tax payers being exploited.