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Primary education

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SEN?

14 replies

NeverAgain2 · 21/06/2012 19:03

Hello, can I seek your advice please?

Sorry if this is long, but trying not to drip feed.

DD is 7 and in yr2. I have always been a little concerned about her academic progress, and, more importantly about her confidence.

DD was diagnosed with epilepsy just before her second birthday. She had a pretty terrible time, with lots and lots of tonic clonic seizures before finally gaining control with Epilim.

Last year, after two years seizure free we decided to risk weaning her off her meds. This has been successful and she has not had any tonic clonic seizures or absences that we are aware of.

We, and the school had always put her lack of concentration and slow progress down to her Epilim and a big part of me was assuming that once she was drug free she would find things a little easier at school.

Unfortunately, this has not been the case. At parents evening in February I expressed my concern regarding her numeracy. Teacher said she was struggling, but I had to really push him to get her expected levels and he said that he hoped she would achieve a 1c.
I asked what the school were doing to support her and he said that she was taking part in some small groups and that this had helped ?a little?.
I asked if she should be on School Action, or School Action Plus and he said ?Not at this stage?.

I?m afraid I went over his head and spoke with the head teacher the following day and she agreed that it sounded like DD needed some additional support.
SENCO called me that afternoon and said that after meeting with class teacher she was devising a 1:1 programme and DD would have daily support using ?precision maths? techniques.

I asked that sheets were sent home so that we could support her too. They were for a bit, but not for long and dd now says she has 1:1 sessions for 10 minutes twice a week.

I spoke with the SENCO again about six weeks ago and asked if she thought it might be a good idea to get an assessment from the Ed Psych. Senco said she would speak to the class teacher and get back to me.

Fast forward to today ? I spoke to the senco again who informs me that dd is on the SEN register and subject to School Action Plus (I had not been informed of this!) but is still not making real progress and so will be assessed by the Ed Psych, but probably not until Christmas time as she is in a queue.

I don?t want to wait until well into Yr3 to get some targeted support for dd. I think she has a problem with processing and memory. It is not all maths related ? give her a problem, or set of instructions with more than one, possibly two steps and she can not retain what she is supposed to do.

In real life situations she struggles with concepts ? for example we bought a set of 5 lollies, she and her brother had one each. A couple of days later she asks if we still have the 5 lollies, I say no, you both had one each didn?t you. I ask her how many they have left and she can?t tell me.

Gosh, this has been a rant, sorry. My question is (and well done if you have got this far) how do I go about getting a private Ed Psych assessment and do schools and LA?s take any notice of them?

I feel that I have failed my beautiful, wonderful dd by not picking up on her difficulties and doing something about them earlier.

TIA

OP posts:
NeverAgain2 · 21/06/2012 19:07

sorry for all of the '?' - must remember that mn does not like cut and pastes!

OP posts:
auntevil · 21/06/2012 19:09

This is best posted in the Special Needs section - children. You will find a wealth of expertise and support from parents that have been in very similar situations.

NeverAgain2 · 21/06/2012 19:10

Thanks anuntevil - I will repost there.

OP posts:
NeverAgain2 · 21/06/2012 19:10

sorry, fat fingers - auntevil Grin

OP posts:
Badvoc · 21/06/2012 19:12

By all means you can get a private ed psych report.
Cost varies.
You can also do much to help her yourself if you are prepared to expend time and money.
Check out the tinsley house support thread in sn section and good luck x

NeverAgain2 · 21/06/2012 19:54

Thanks Badvoc - I have had a quick look at the thread - we were considering using a diet to try and control dd's epilepsy, but went down the more conventional route, but Tinsley House looks interesting - will have a closer read.

OP posts:
Badvoc · 21/06/2012 20:50

My ds1 is severely dyslexic and had significant developmental delay as a baby with its associated problems.
This time last year he was 2.5 years behind with reading. He is now reading appropriately for his age.
He is now not having stomach issues and no more constipation.
he is more confident, less anxious and one goes to bed on his own and sleeps through the night!!
He is a different child from this time last year.
I should say though that ds1 also completed a course of ait and rrt which also helped him a lot.

NeverAgain2 · 21/06/2012 20:52

Wow, that is great progress Badvoc.

Sorry, please excuse my ignorance, can I ask what rtt and ait is?

OP posts:
Badvoc · 21/06/2012 21:00

Sorry - ait = auditory integration training. It cured ds1s noise sensitivity.
Rrt = retained reflex therapy. We went to inpp at chester and I would recommend.
I would never have believed this time last year that ds1 would be where he is now....he can now ride a bike, a scooter, has learnt to swim...
I would recommend googling ( can't do links sorry!) both ait and rrt
And see what you think.

NeverAgain2 · 21/06/2012 21:05

Thanks Badvoc, I really appreciate you taking the time to post, you have been really helpful.

OP posts:
Badvoc · 21/06/2012 21:23

No worries.
There is so much you can do, honestly.
It does cost money but compared to things like private tutoring things like ait, rrt and tinsley house are very competitive.
There are books you get for further info:
The well balanced child by Sally Goddard Blythe.
The brain food plan by robin Pauc.
Is that my child by robin pauc.
you can start doing some of the exercises and the eating plan and supplement info for £4 from amazon!

thornbury · 21/06/2012 23:51

If you think she has difficulty with memory, perhaps auditory processing and receptive language too, then she should have a speech and language assessment. You may be able to arrange this yourself through referral by your GP, or the school can refer her.

NeverAgain2 · 22/06/2012 07:55

Thornbury that is a great idea. Her speech is definately very immature and she loses the 'thread' of what she is saying iyswim.

Badvoc - thanks for the Amazon tip

OP posts:
Badvoc · 22/06/2012 08:00

I don't want to put you off going down the NHS/school route but we have not had very good experiences with that.
For example we were told my son had a hernia and that was what his pain was. He was booked for surgery! Thank god we started the t h eating plan!
It terrifies me that a gp, paed and surgeon all mis dx my son. He could have had totally unnecessary surgery!!
Some of the results from the thread are truly amazing...non verbal dc becoming verbal etc.
I am just not prepared to spend my sons educational career fighting for help that is patchy at best.
Even those who have statements still have to fight to get those statements implemented. It's so wrong.
Good luck with whatever you decide x

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