Hi all, I desperately need advice for my hearing set up for 6th June, as I have paniced.
I have a 4 year old daughter with severe anaphylaxis contact allergy to dairy. Her allergy worsened over time, initially only anti-hystamines used to control it, since Sep 2010 she carries Epipen. She started at a children centre when she was 1.5 years old at a place near where me and my husband work in central London. It was reasuuring to be close in emergencies which were many. It was a steep learning curve for staff to get to know her limits.
She has been refused a reception place in the same school becasue we live out of the borough. However I had applied under Medical/Social route which comes before distance criteria in that LA. They simply dismissed the medical reasons and put her on distance criteria. I am now appealing and I believe it shouldn't be the infant class size appeal, becasue I had medical resons and supporting letters.
I have letters from her Paediatric stating that staying in the same place is to her great medical benefit. I can not afford a trial learning time in a new school at her expense,as it would increase the risk of anaphylaxis shock. At the current school they got to know her while her allergy was milder, now it is life thretening. This I believe makes exceptional link between her current school and her needs. She is confident here, her friends know her limits. I also found out that in US small children with anaphylaxis allergy with no reading skills, get a certificate of hidden disability until they are able to read (food labeling). I have mentioned that in my appeal notes.
My question is how can they over write the advice of her doctor and put her in a new school which inevitably increase the risk.Who is responsible for this? Who guarantees her safety? I know that most/all school are able to deal with allergies, but continuity is what is best for which would minimize the risk. Any advice?Similar cases? Is there any material I can use?
Many Thanks