Page 2 | Premature baby failed hearing tests and not reacting to sounds

Mkr1987 · 2025-04-18T16:29:32+00:00

Hello, I have a beautiful baby boy who was born at 31 weeks. He failed his hearing test test at discharge ( 3 weeks old) and we are currently awaiting an audiology appointement ( in May when he was originally due to be born ). he doesn’t seem to react to any of the sounds, which worries me extremely … does anyone have similar experiences ? He is now 5weeks…

Zeitumschaltung · 21/04/2025 09:54

Mkr1987 · 20/04/2025 19:25

I have a very loud 6yo, and my DS doesn’t react to anything either… I started being paranoid watching him reacting to anything either noise we make, that I hate hoovering, as I don’t seem to get him to react to it…

Show quote history

My premie was also the second child, and never reacted to his noisy sibling. I have to assume that he’d already been hearing her for a while before birth and so was used to her.

McGregor33 · 24/04/2025 00:00

my preemie failed every hearing test, we got a baha hearing aid. Have they tested for cmv?

Original poster

Mkr1987 · 29/04/2025 11:00

McGregor33 · 24/04/2025 00:00

my preemie failed every hearing test, we got a baha hearing aid. Have they tested for cmv?

We have not had any of the additional tests yet. Still waiting for the in depth audiology appointement next week…

OP posts:

McGregor33 · 01/05/2025 12:35

Mkr1987 · 29/04/2025 11:00

We have not had any of the additional tests yet. Still waiting for the in depth audiology appointement next week…

Show quote history

I would ask them to check, there’s a small time frame for treatment if it was ccmv ☺️

BunnyRuddington · 24/05/2025 09:58

How are things now @Mkr1987? Have they had the further tests yet?

Celestiel · 24/05/2025 12:03

My son has a cochlear implant. It does very little for his hearing - we’ve had to learn BSL as a family at our expense - hearing aids and implants are nothing like ‘hearing normally’. We were told hearing aids would be fine after long tests measuring brain activity, tests a few years later showing they were barely doing anything for him, had implants - he was absolutely terrified when they were turned on (not the ‘lovely experience’ you see on YouTube…). He prefers sign - but that makes it almost impossible for anyone other than specialist teachers to help him learn how to read, and he will have limited audible speaking - we’ve had 3 different schools in 3 years and only a handful of specialist deaf schools in the entire country, which we cannot afford to move to…

Its unbelievably upsetting that people think you can just add a hearing aid/implant and life is as normal…

McGregor33 · 29/05/2025 10:18

Celestiel · 24/05/2025 12:03

My son has a cochlear implant. It does very little for his hearing - we’ve had to learn BSL as a family at our expense - hearing aids and implants are nothing like ‘hearing normally’. We were told hearing aids would be fine after long tests measuring brain activity, tests a few years later showing they were barely doing anything for him, had implants - he was absolutely terrified when they were turned on (not the ‘lovely experience’ you see on YouTube…). He prefers sign - but that makes it almost impossible for anyone other than specialist teachers to help him learn how to read, and he will have limited audible speaking - we’ve had 3 different schools in 3 years and only a handful of specialist deaf schools in the entire country, which we cannot afford to move to…

Its unbelievably upsetting that people think you can just add a hearing aid/implant and life is as normal…

We had the same with the baha, it wasn’t a lovely experience and if anything my girl looked absolutely terrified as well. Like your boy, she’s not keen on it either and we also use sign xx