26+2

[Newbee123]

Hi everyone I had my baby early. Has anyone else had their baby this early ? My baby will soon be moved to another hospital. What does this mean exactly I mean I've asked the nurses but I'm just so confused. And emotional and just a big mess. How long do they stay in hospital? I know every child is different but I just need some positive stories right now ...

Hello lovely, hope you're feeling ok. My little boy was born in August 28+3 so I know how scary it all is. He was moved when he was 3 weeks old to another closer hospital because he no longer needed that level of intensive care and could be cared for in the hospital i'd planned to have him in in the first place. I was terrified of him moving as had just gotten all used to the first hospital! But it was lovely to know he didn't need that level any more. He came home 2 weeks ago at 36+3 after thankfully a relatively smooth though still very scary journey. If you're on Facebook there's a page 'Parents if Preemies Support Page' which is full of positive stories, advice and a great place to speak to others in similar positions xx

@fancyfrogs hi hun, I'm okay how are you ? Unfortunately I just got told my LO has fluid in his lungs and has chronic lung disease 😞 so I’m very upset. They said he might also come home on oxygen 😞😞 feeling really rubbish after hearing that. How's your little one ?

My 10 year old was born at 26 + 6 and stayed in NICU for 8 weeks. He had recurring chest infections for the first year, but has been perfectly fine ever since. I saw several babies go home with oxygen and they were all fine in the long run as far as I know. It's very scary, but medical care is excellent these days and it's unusual for anything very terrible to happen. Do you have other children?

@Thenose oh wow that's a short stay at NICU! That's amazing I'm so happy for you. And I don't have any he's my first hence why I'm even more devastated 😞

@Thenose did your son go home on anything ?

Hey Newbee

It’s actually very common for babies of this gestation to be diagnosed with CLD (ours was too!) and a lot are diagnosed with this simplify as a default.

Things change fast. We were prepped by the nurses to be going home on oxygen and tube fed at home. But our 27 weeker turned a corner about two weeks prior to leaving the hospital and we didn’t need any of it.

We have no lung issues , she’s 11 now.

*simply

@Thenose omg that's amazing there's some hope thank you so much feel a lot better hopefully my lo does the same. Sending lots of hugs and kisses x

He didn't have to bring anything home, no.

I had a toddler too, so couldn't spend as much time as I'd have liked in the NICU. You'll be able to spend more time cuddling your little one. Make sure you have lots of skin-to-skin, it'll be a great benefit for both of you.

The likelihood is that everything will be okay in the end, but that's easier to grasp in retrospect. I know how incredibly worrying it must be for you now. I hope everything goes as well as possible for you both.

My DS is absolutely fine now - bright, robust, and good as gold - and yours will be too, I'm sure.

My DS was moved to another hospital too. They thought he had a heart problem, so transferred him to a hospital with more resources. We returned to our local hospital after a few weeks once they'd confirmed that it was not as serious as first suspected. I assume the smaller NICUs only keep hold of the 'easy' cases and they transfer to the larger teaching hospitals if anything a little more complicated is suspected. I'm not sure whether this is the case for your little one, though.

@Thenose hi! I hope everything does work out just seems like such a long way away we are 27 days in ! I know it's not that long for most NICU parents but ofcourse this is my first ever baby and first ever time even knowing what NICU is.

Yes he got moved to a hospital closer to home because he was getting better. But now I think he's having problems with breathing as all premmies do. Just wish I could do something to help. How's your little one today ?

How is it all going? We went through a four month stay with our 26 weeker. If you want to talk or ask anything feel free to comment or PM. We had experience of the usual pathologies - eyes, lungs, infections etc. Here if you need it, and would love to hear how things are going now.

Hi @Newbee123 our baby was born 2 1/2 weeks ago at 26w2d and still in ITU out of areas as local hospital don’t deal with very early babies.
I feel a little like you and overwhelmed with all the information, baby tubes and wires. We have been told babies sometimes stay in until near due date or maybe a couple of weeks before depending on progress. Our baby is having issues with premature lungs at the moment but receiving great care, how is your baby?

@Mrslouu first of all congratulations!!! It's such a rollercoaster of emotions isn't it ? And you are probably very confused as to what's going on and how and why did this happen to you. That's how I felt too :( but that shall pass I promise you !! I know nothing I say will make it better just have faith your bubba will pull through they are such strong little things ! Please remember to also take care of yourself. Are you expressing? If so make sure you take loads of rest. And your partner ? Make sure you are there for them too

So my little man came home in January the 3rd and he is doing blooming amazing ! I actually cry nearly everyday because of how lucky we are and how precious he is. So he was exactly like your baby he had something called "Chronic lung disease " and then needed oxygen for the whole stay until it was time to go home he didn't need it anymore it amazes me everyday!we got to take our little bundle of joy home 3 weeks earlier than his due date which is fantastic. So in total he was in hospital for 85 days which seems long but you will forget it all when you get home
But for you what I would advise you is get to know all the machines and everything they give and use on your baby really get to know them this will really help speed up his recovery and also ask loads of questions it's your baby you can ask anything you want! But please also rest rest rest don't be so hard on yourself. Remember your baby needs a well rested mummy too. You got this mama! Be strong we are made for this ❤️

@Mrslouu please private message me if need a chat ! Anytime ! I know how hard it is !

@Sillymummies123 Hi 🙋🏻‍♀️
We are home now thank god we have been home since Jan and wow has it been an emotional ride. How are you? How is your little one

@Newbee123 thank you for your update and how positive it is, glad things are going well for you and your little man.
Yes expressing here, struggled initially and not managing lots but nearly self sufficient but it’s hard to juggle everything and get rest with being out of area.
Gosh 85 days, so nice to get home earlier than expected too.

Still feeling positive and asking lots of questions; steep learning curve. Thanks for the offer of a pm. X