Hi, I thought i'd post on here just for some advice and or experience. To fill you in i'm a very proud netdad, my wife and I had our little boy 11 weeks early. It was a real rollercoaster, but we finally got there. To be honest and all things considered he's doing really well. His gross motor milestones have been slightly delayed, but he's been cruising for the last 5-6 months. He's currently nearly 18 months corrected and although he will walk holding fingers, he shows little to no sign of standing on his own. We've spoken to a GP, HV and pediatrician who have all said "he's doing fine, one day he'll just surprise you" (I don't trust doctors). We have also seen a physio who said his feet are definitely 10 - 2 (maybe more sometimes, because of the time he was in the prone position in hospital) and his toes on his right foot are "drifting". So this could all be affecting his balance. The Paed has said it's unlikely to be autism as he's doing almost everything else, unlikely to be CP for the same reasons. We just have to "wait it out and not worry"... Easy for you to say.
When he is cruising or walking with assistance he leans forward are doesn't seem to like bending his knees, so the physio has decided he needs a Kaye frame. When I saw this I immediately started to panic (flipping google images), but if it will help him, it'll help him. He's also been referred to orthotics and in the mean time we've bought him some timberland boots to keep his ankles straight to try and assist him. But I wondered has anyone on here has got any experience with this type of stuff? Watching him these days is hard, because all his peers are up and walking about and it looks like he feels left behind. He is getting quite upset, which in turn is upsetting us.
Also, the Dr's blaze attitude of "it'll be fine" is so patronising, when they aren't seeing what we see, and they make all of their assessments after a quick 5 minute examination. very annoying.
Any help/advice would be greatly appreciated.