Forum related to Prem births

[SparkleJ]

Hi everybody I'm looking for other posts/forums on here that are related to Prem births. For example My daughter was born at 28 weeks & has PVL, cerebral palsy & epilepsy but I can't seem to find anything??

frustrated

Please can somebody help? Thank you

You could have a look on the bliss forum!

You might want to try joining a Facebook group called Micro Preemie Support Network which is specifically for babies born from 21 through 28 weeks gestation. It is quite a large group and there are lots of parents who might be able to advise?

The SN section has a support thread for parents whose children have CP. Most of them were prems I think. Hang on a tick and I will link to the thread.

I think one or two of those children also have epilepsy, but the thread is mostly about the CP issues. I would guess there are other threads on the SN forum about epilepsy though.

CP support thread

My dd was born at 26 weeks (now 4yrs) - and has cp as a result of pvl caused by her prematurity.

The SN boards on here are really helpful and friendly. There is a cp thread which I M on often.
There is a pvl and a cerebral palsy uk closed group on fb too. I only recently got a fb account so that I could join.

Thank you so much! I didn't get any notifications to say I'd got replies!

I will certainly check out the link & the fb group thank you