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Premature birth

Connect with others and find premature birth support.

Original poster

Currently in NICU with 1lb 25wk very sick baby boy.

674 replies

Supershiv1 · 23/04/2013 10:57

How do I cope??
Have googled but I can't find comparable stories. All others involve babies twice the weight.
Am struggling to be sure I am doing the right thing putting my baby boy through all this.
He has grade 4 IVH & grade 2 so have no idea of quality of life at the end of all this.
Having said that he has fought for 10 days so far. The other parents in NICU have heavier babies and not the bleeds so feel like their problems are trivial compared to my baby boys.
I feel very weepy even though I am trying to put a brave face on.
How much more can my baby boy take? I can't hold him and I just want to tell him it will be ok but I don't know that it will.

OP posts:
Barbarashop · 16/05/2013 20:51

Thinking of you and little Oliver x

wannabestressfree · 16/05/2013 21:00

Thinking of all your family. Hang on in there xx

pizzaqueen · 16/05/2013 21:06

Thinking of you. Sorry I haven't read the whole thread but I just wanted to tell you about my one of my very close friends. She was born in 1987 weighing just 1lb 1oz. After a rocky start in life she grew up to have a completely normal and active childhood, she has gone to uni, travelled the world, speaks a few languages and now works as a teacher abroad.

You would never know the circumstances she came into the world, the only signs of her difficult start are a large birthmark on her shoulder and she wears glasses.

Now medicine has come along was since 1987, although everyone's journey is different keep strong and be brave and focus on the positive stories of the many many people who have come through this to lead long, happy, fulfilled lives.

ariane5 · 16/05/2013 21:15

Thinking of you x

gallicgirl · 16/05/2013 21:23

I hope you're all doing ok and Oliver is improving.
I know it's a little thing but there's a charity called Pop n Grow who provide free clothing for premature babies. The nicu ward has to approach them.

It's a long road but hopefully you'll have a healthy little boy at home before you know it.

Abilee90 · 19/05/2013 03:25

To the strongest mummy on here
I'm on the august due date club and one of the ladies mentioned you. I have every update that you put on the july thread, i just cant get little oliver out of my head.

I couldnt imagine seeing everything you are going through and staying so strong but no matter what there is always hope and miracles to be had. It may seem distant now but you and your little man will be home together in th future. I hope that you have the most amazing support from your dh and family. You truly are on strong mummy.

Satistics are there to be smashed through, clearly little oliver is proving that 35 days old, he's clearly getting his strength from his mummy. I cant share an expirence but i will say is, even in darkest of days kids will come through It, they have a strength that only kids will have. a parents uncomditional love. I will keep oliver, you and dh in my thoughts and send untold amounts of get better vibes!

Never lose faith or hope! Stay strong sweetie!
Also well done to dh thinking so fast!
Xxx

TwentyTinyToes · 19/05/2013 03:44

Thinking of you and little Oliver. X

moreyear · 19/05/2013 05:17

You and little Oliver are in my thoughts.

Isitme1 · 19/05/2013 09:31

Hope everything is ok x

coffeewineandchocolate · 19/05/2013 09:34

thinking of you xx

Mama1980 · 20/05/2013 10:07

Thinking of you and Oliver, hoping for good news. Xxx

MummyOfSunbeam · 20/05/2013 10:24

Shiv I am so sorry for the agony you're going through - poor little darling Oliver. Like the other posters I am thinking of you both and I hugely hope that he is doing better.

hellonewworld · 21/05/2013 10:15

Do let us know how he is doing, any news? x

hellonewworld · 21/05/2013 10:15

Do let us know how he is doing, any news? x

Original poster
Supershiv1 · 22/05/2013 08:06

Crikey. I am overwhelmed by the messages of support.
The last week has again been difficult with another 'conversation of doom' with the consultants as they had to effectively revive Oliver on Wednesday afternoon when he kept having profound and continuous bradycardia and desats. The consultant told us that there might come a time where Oliver simply doesn't respond as he can't cope anymore. Heartbreaking.
We made a decision to try Oliver on steroids, despite possible side effects.
Oliver is on his 6th day of steroids to try and get him off the vent - so fingers crossed.

OP posts:
TwentyTinyToes · 22/05/2013 08:55

Everything crossed here for you and your darling boy. Hoping for some good news. X

Mama1980 · 22/05/2013 09:04

Oh supershiv I'm sorry to hear that Oliver's still so poorly. I know how utterly heartbreaking it is. Alex didn't have the steroids as he'd been given them and mag in utero but there was anther boy in nicu who did and they helped him off the vent. I don't want to give false hope but I know when Alex was in nicu I would have sold my soul for some good news/hopeful stories.
I am thinking of you and Oliver And have everything crossed for good news soon xxx

Isitme1 · 22/05/2013 12:09

Hope the steriods work x

Original poster
Supershiv1 · 22/05/2013 12:09

Mama1980
Yes. Good stories do help you get through the day x

OP posts:
Mama1980 · 22/05/2013 12:57

Is Oliver responding to the steroids? Have they talked to you about Cpap?
I know how difficult it is but remember to eat and drink as much as you can.
Thinking of you all xxx

Original poster
Supershiv1 · 22/05/2013 20:37

I held Oliver properly, against me, for the first time this evening.
He will be 6 wks old on Saturday.
He's responding to the steroids and if he has a good night could be off the ventilator tomorrow (cpap perhaps?).... fingers crossed x

OP posts:
mymatemax · 22/05/2013 20:37

thinking of you and your little fighter Oliver xx

OhBotheration · 22/05/2013 23:03

Hi Super, a lurker here wishing you and Oliver all the luck and good wishes in the world.
My own 25 weeker is asleep upstairs. We were in NICU 18 months ago. Who knew such a wee thing could possess such strength and it sounds like Oliver is the same.
Great news about the steroids, everything crossed for tomorrow x

TheSecondComing · 22/05/2013 23:11

This reply has been deleted

Message withdrawn at poster's request.

Isitme1 · 23/05/2013 09:33

Glad hes responding to the steriods. Do let us know how he went of vent
X