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Premature birth

Connect with others and find premature birth support.

Struggling mentally/emotionally after traumatic premature birth

34 replies

missjulie · 21/08/2010 19:06

Have just joined mumsnet, not sure what i am doing yet!
Am a first time mum, my daughter is 18 weeks old.
She was 7 weeks premature, and in S.C.B.U for a month.
Looking for other mums to chat to about my/our birth experiences, scbu etc....events have finally caught up with me, and i am struggling emotionally/mentally with the traumatic events of premature birth etc....
Am experiencing extremely vivid flashbacks & having nightmares....
Wondered if anyone else in the Inverness area is going through the same thing, and fancies chatting about it?
Willing to meet up in person.
Am feeling very lonely with regards to this.....

OP posts:
care4families · 21/08/2010 19:15

I wish I lived closer to you, have you tried the Bliss website to see if there is a support group near you? Just to say that what you are feeling is quite normal for a very abnormal situation. Try talking to the other mums from the neonatal unit they will be feeling just like you and you can support each other. You could mention to the nursing staff that you would value some support from another family who have been through the unit and are now able to support mothers such as yourself.

missjulie · 21/08/2010 19:20

Thank you care4families, i have tried the Bliss site, there is no local group.
I have spoken to the hospital staff and made my situation aware to them, told them i would like to chat to other mums in my situation.
Really struggling to find local support now that we are home from hospital - been trawling the internet for days now!
I finally spoke to my health visitor this week, and she is trying to refer me to chat to someone.
I have emailed HAPIS, Bliss, and the Birth Trauma Association, but am still awaiting replies from all of them

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care4families · 21/08/2010 22:43

I hope your health visitor can help, do you attend follow up clinics at the hospital? Perhaps the staff there could put you in touch with someone nearby. You can always telephone our local support group, they meet at the Wirral Resource Centre on a Friday afternoon, we are closed for the holidays at the moment but try at the beginning of September 0151 608 8288 1 - 3 pm. Or look up your nearest group in Scotland and give them a ring.
Another organization that might be able to help is the NCT and ask if any of their members who have had a premature baby would be able to chat to you. They have a newsletter you could post a message in.

missjulie · 21/08/2010 22:46

So do i.
No, only going next month for our first follow up appointment.
Twas at our parentcraft reunion last monday that i realised how bad i was when i sat in the car and cried for ages before i could actually walk back into the hospital - it was the midwife here that made me get in touch with my health visitor.
I have been in touch with the scbu unit to ask if they can help, or recommend anyone.
Thank you for your help. Shall have a look there.

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missjulie · 23/08/2010 18:53

Oh god.
I am soooo very disappointed.
My health visitor just phoned me to say she received today a letter from the community mental health team. They say they can't help me as it is not mental illness.
I am sooo upset.
I can't believe this.
I have spent every waking minute since last Tuesday clinging onto the hope that an appointment is imminent.................

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PheasantPlucker · 23/08/2010 18:56

Does the NNU you were at have a counsellor? Ours did, and she came out to see me when I was struggling at home when we took dd1 home after a 3.5 month stay. She was really helpful.

missjulie · 23/08/2010 19:01

No, i just phoned them in floods of tears...............

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IngridFletcher · 23/08/2010 19:04

The NCT have a Shared Experience Helpline run by volunteers who can put you in touch with someone to chat to who has gone through similar. The number is 0300 330 0774. You don't have to be a member.

missjulie · 23/08/2010 19:07

Thank you.
I have been in touch with the NCT, and am awaiting a reply from them.

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PheasantPlucker · 24/08/2010 08:43

Do call Bliss, they have phone people I am sure.

missjulie · 24/08/2010 08:45

Ok, thanks. x

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missjulie · 24/08/2010 19:04

here goes, my story.....cut down version!!!

Waters broke very unexpectedly Mon 12th April 10am, whilst at hospital at first time mums physio group! 'Pains' in lower back commenced.
Ammitted to ward 10, high dependancy
31 weeks and 6 days.
Internal, waters broken, cervix not dilating.
On ctg machine
Internal swabs taken
Given steroids x 2 jabs, 24 hours apart to develop baby lungs. Staff from SCBU came to chat to me to warn us of what to expect.
Admitted to ward, bloods taken, put on drip to slow down contractions.
Pains continued through the next 4 days, some extremely bad, was on and off the ctg machine like a yoyo. Various bloods taken, internal swabe, internal exams, BP checks, ultrasounds etc..........
Stopped drip to slow down contractions after 2nd steroid injection on the Tuesday & said they would just leave it now, and if i went into full blown labour they would not stop me.
Waters continued to 'flow' throughout the 4 days!!!!!!!
4am Thurs 15th - had had horrendous night, was telling staff things were def happening, having 'contractions' 7 mins apart (wrote all of this down at the time), was extremely scared throughout the whole of this - midwife told me to "stop writing things down, try to relax, forget about it all, and get some sleep" - i cried for the next hour, scared out of my wits...............i had to buzz 5.30am - dif mw came to sit with me, on ctg again, totally had kicked off, but no1 believed me....................by 7am, i was being whisked off to labour suite - and on the way whist being wheeled there on my bed they landed on me they had swab results back, and had Strep B!!!!!! - So they bunged AB's into me asap, phoned hubby, who arrived 7.30am - whilst i was really far on with contractions.
On gas and air (good stuff!!) - experiencing labour pains in thighs (1 thigh has never recovered)
ny about 12noon, i had diamorphine inj. and was fully dilated, and told should have a baby in an hour..........
1 hour later........no baby!!!!!
I was adimant i did not want a section - so so scared of this, had been having nightmares about it, am so squeemish with my own body, weird, as am a vet nurse, and can be up to my arm pits, and in my element in theatre!!!!!
Anyway.............to cut a VERY long story short........2pm, still no baby, finally put me on a drip to speed up contractions, this was sheer hell, they were just banging in one after another, i kept falling asleap between contractions........was so tired, 4 days of no sleep.
was so so worried.
3.45pm, still no baby!!!!! (almost 4 hours fully dilated)
various internals - could not understand why baby not coming, i was not progressing.
anaesthetist cam to chat
rushed to theatre...................
spinal
internal
no luck
could not deliver with forceps
had to have emergency section
incised me at 4.30pm - and it was hell - the drip to speed up contractions had totally impacted Evie in my pelvis, she was stuck............registrar said...."where's the other leg"? i remember thinking - what do you mean where the fuck is the other leg.
I also remember thinking, just give me a gun................i wanna die.............
they had to call on other members of staff..............5 of them were now scrubbed up and inside me..............there was LOTS of shougling! It was horrid! The registrar was physically 'banging' into my husband............
I remember thinking, with my vet nurse experiences, that a seciton should not be taking so long, what the hell was going on, where is my baby.............
Finally..................at 17.01 (!!!!!) they pulled Evie out...............no cry....................then a cry...................
She was rushed over the the soooo many members of staff in theatre especially for her arrival - my husband told me she was a girl, they held her up so i could see her - not touch her.................the consultant came round to see me and said whislt being sutured up "Liam and Julie, what a lovely little baby boy!" You could have heard a pin drop in theatre...........we all looked over at the neonatal staff who were frantically trying to undress her!!! - they held her up - "no, it's a girl"
God it was awful.
That was really just the beginning................
Then all of the scbu experience...........meningitis, brain haemorrhage, apnoea, hypoglycaemia, strep b, anti b's, caffeine, bloods, so many decisions - soothers, cup feeds, bottle feeds,,,,,,,,,,,, it went on and on and on...............meanwhile
i was having post op probs - severe leg probs, abd oedema severe - inflammed - resulted in antib's - could hardly walk - having to express, and try ot get to scbu to see our girl
Not being able to touch her - no skin to skin - had our first cuddle at day 2, not allowed to hold her close, and first skin to skin at 4 days..............
all midwives contradicting each other - some about expressing - apparantly taught me wrong thing..........hardly any milk - 1 midwife told me my mere 40 mls a session - a week later was no damn use and i should give up - my milk pretty much dried up at this point due to the stress..............
There were just soooo many bad things...............
Evie was named on day 3, which was hard, as we weren't getting to hold her.....................was horrid
All of the machines were so scary, despite my thorough knowledge of them in the vet world.
Our wee girl was all alone, it was so scary.
I was numb
To be honest i think i have been numb until a few weeks ago..................
Then, despite saying i could stay in hosp as Evie in scbu, and i was having post op complications, they kicked me home - is a longer story than that, but i will take up the whole of the internet if i wrote about it all.............i could hardly walk, and i was sent home with my cyclexine injections, which Liam, my hubby, had to inject me with daily!!!!!!
I was then re-admitted 2 days later as an emergency.........suspected dvt..................this was a Satureay - scan on Mon - came back negative, think it is sciatica, leg STILL not right, 18 weeks later!!!!!!!
Finally home again, then having to deal with abdomen oedema, severe leg oedema, and very sore right leg, as well as expressing all the time, and visiting scbu on a daily basis, it was HELL. Midwife in scbu really upset me as i wanted more than ANYTHING to breast feed, my nipples are tiny apparantly, and although her mouth was tiny, it just wasn't working.tried cup feeding, nipple shields, one midwife ended up FORCING me to bottle feed. It was horrendous. Made me cry so so much. Liam walked in as i was crying during bottle feeding and kicked off a huge row at scbu....it needed to be done, i had been rail roaded into it..................
We got Evie home a month after she was born, and she is just fin,, not sleeping really (except for last few nights), but other than that fine.
Once home, we at every feed were trying to breast feed, top up with formula, and express. Every single feed was running into each other.
It was hell.
I was so stressed.
My milk depleted from 60mls per pumping session, to around 10mls.
It was awfuul.
I tried so many things.
No joy.
The more i cried, and the more stressed i got, the less milk there was..............
In the end, my husband forced me to give up.......................i still have not dealt with this, but i do know that it was the right thing for me..............
I cry a lot whist feeding Evie, as i am extremely upset that i can't BF her. I cry at damn Aptamil adverts on the tv!
That, in a nutshell, is my story, a lot cut out, but the just is there!

Am so scarred by it all..............

Julie

OP posts:
happyland · 24/08/2010 20:17

Sounds horrific. And remarkably similar to my own birth experience at Raigmore. Fell down the stairs at 32 weeks and thought I would have to go in for a check up as thought waters were leaking. Didn't leave the hospital for 2 and a bit months. Ward 10 too.
same stuff about leaking for days, steroids, anti-d, antibiotics, a very ill little boy whose heart kept stopping etc etc. I am in Edinburgh now but up and down the country all the time.

I would be very happy to meet with you or chat at least, so you can talk about it with someone who knows. I requested my maternity notes from the hospital eventually, then requested a meeting with the midwife in charge at the time.

It was very difficult and emotional but they did take me through the whole thing step by step, chart by chart and explained very patiently why it ended up in an extremely traumatic c section ( three epi inc spinal didn't work, could still feel the cutting. They got my baby out and then i fitted. Only then did they sedate me) I didn't see him for two days and held him a week after.

He has just turned 3 and a bouncing, albeit small, little boy. Time heals but I did definitely need answers and talking to people about really helped. It still does.

Am here if you need me.

missjulie · 24/08/2010 21:47

crikey!
thank you for sharing.
sounds remarkably similar, but horrendously diferrent too!
Are you a lot 'better' now??
Would be lovely to meet up..........xx

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happyland · 25/08/2010 19:51

I am 'better' but doesn't stop me reliving it and shedding the occasional tear even now. pm your email and we can arrange a meet - prob over wine and tears. xx

missjulie · 25/08/2010 21:18

Glad you are 'ok' hun.
Can't fathem out how to do pm!
Be lovely to meet. Wine & tears sounds good!!!
[email protected]

Julie xx

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seemego · 26/08/2010 13:34

Hi missjulie. I've done a quick namechange for this as what I am about to say might make me very recognisable.

I have a ds who was born at 31 weeks and was very poorly in SCBU. I am also a mental health nurse by profession. I'm sorry that your referral to a CMHT was turned down, but the criteria they use to accept people is that they must suffer a severe and enduring mental health problem.

However, you do sound as if you may be suffering PTSD - Post Traumatic Stress Disorder, whihc would not be surprising under the circumstances. This is often not well recognised, but can be treated sucessfully with cognitive style therapies. I would suggest you go back to your GP and ask for a referral to Primary Mental Health Team, who usually do short term work and have CBT therapists.

Some of the other posters have also given very good advice. Talking about your experiences with people who have had similar traumatic experiences will help enormously. Also going through your maternity notes may help you understand what happened.

If it's any consolation, things of course will get better - honestly. Be kind to yourself. If you can find some local like minded friends you can start to socialise gently with that will also help.

My ds is 8 now and I still can't think about the circumstances around his birth (we nearly lost him) without a little shudder and a cry. But he's fine now, and as others have said, time does heal.

Very best to you and your daughter.

loopyloops · 26/08/2010 13:45

Hi

Last year (14 months ago) I had a scan showing that one of my twin daughters was stillborn (32 weeks) which led to the emergency caesarian of DTD2. Everything was very traumatic, obviously including the prematurity as well as the bereavement, and the fact that we had just moved house to renovate and had no-where to live.

It was only once DD started to sleep a bit better and the house was livable that I fell apart. By this time everyone had assumed that I was fine. I clearly wasn't, but no amount of hints to the GP or HV made any difference. Then, one day, I took myself to the GP and demanded that I see someone.
Many months later, after GP chasing it up, I was referred to the perinatal mental health team, and was diagnosed with PTSD (symptoms very similar to yours). I have been having psychotherapy EMDR (google it), which has really helped.
I agree that you should go back to your GP and explain that you think you had PTSD, and insist on a referral. They might not have a perinatal mental health team where you are, but there should be some service available to you.

Well done for realising you need help.

Sorry I'm no-where near you, it would be useful to me too to have a chat with someone who understands.

Much as it hurts, talking or at least thinking it through really helps. What you write earlier was probably very useful for your brain to process things. I wonder if it might be worth writing it out in full, just for yourself, including all the small details that you can think of? Just a suggestion.

Take care. :)

missjulie · 26/08/2010 16:38

Thank you seemego for your advice, kind words and thoughts. I really do appreciate that.
My HV is appealing, i should hear the reault today - fingers crossed.
Yes, it does sound like PTSD - i have been doing a lot of reading about that & it sounds exactly what is going on with me.
I did manage, through another mum, to get an appointment today with a cpn, the appt went very well indeed. Meant to be seeing her again in a week or so.
Am glad things worked out for you.

Loopyloops - thank you also for taking the time to 'chat'. My word, you poor love, i can't imagine how you yourself must be feeling. It is such a shame you are not closer. Would have been lovely to meet up.
I am going to write things out, but purely for my own benefit, in more detail, just need to psych myself up for it!
I feel a little better this afternoon, after this suprise appointment, hope i can manage to see her several times - was a bit of a fluke that i got to see her.

Going to wait and see what the HV manages too, hopefully, they will get me in through the proper channels too.
Am thinking of asking for my notes, and for an appointment at the hospital to discusss things.
If i get nowhere with HV, i shall ask Dr to refer me, and yes, i shall google that - someone else suggested that too.

If you ever want to 'chat' just let me know, i do think it helps to talk, cry, talk, cry......

Thank you ladies.

Julie

OP posts:
hildathebuilder · 14/09/2010 14:29

Miss Julie

How are you doing now, I joined you on your other thread but can't find it at the moment, but just wanted to see how things were going and whether the counselling was helping yet.

ladylush · 23/09/2010 10:45

Hi missjulie - what a dreadful time you had Sad Can relate to some of it. dd was born at 31+5 when my waters broke unexpectedly 3 weeks earlier. I leaked constantly during those 3 weeks - it's a horrible sensation isn't it. I also had group b strep but they didn't find out until a week or more after my membranes ruptured. I think my labour was triggered by a temperature spike/possible infection. I knew I was I was feverish but mw dismissed it, saying the room was hot. I asked her for a tempadot and sure enough my tpr was raised. I then started getting pain. I knew I was in labour. Mw did a trace - nothing on ctg trace. But I knew! I begged her to get a doctor - was so worried about the baby. Within an hour the contractions were unbearable and 1 min apart. When I got to the labour ward I was apparently 1cm dilated - strange how contractions can be so frequent and painful even at that stage (though I think prem labours can progress quickly). The anaesthetist came to see me to discuss spinal block/epidural options (planned section due to breech presentation). However, I then suddenly realised that they'd given me an anti-coagulant earlier that day (prophylaxix). He said in that case I'd have to have a GA. I cried Sad Was so worried about the baby - really wanted to see baby born. But it was worrying that they didn't know I'd had the heparin. Anyway, dd is now 14 months old and a real delight. I hope you are able to work through the trauma of the birth and enjoy your baby

ladylush · 23/09/2010 10:52

missjulie - you were given terrible advice re bf Shock I was only getting 20ml when I expressed but eventually they sent a letter to my gp recommending that I be prescribed a galactagogue (domperidone in my case)- a medication which increases milk supply. It worked a treat and I was able to bf dd for 10.5 months (I stopped then because I wanted to - she finally started accepting a bottle and I wanted to prepare for going back to work). But even when I was only getting 10-20 ml they kept encouraging me, telling me not to stress about it.....they'd top her up with bm from the milkbank til mine improved.

missjulie · 17/12/2010 18:17

Hello hildathebilder!
Many thanks for your posting.
Sorry for the lae rely, not been on here in ages.
I have been having a real bad time, but am not seeing a counsellor regularly - which i had to fight so very hard for!!!!
Am just trying to take one day at a time, that's all i can really manage at the moment. It is amazing where the tears/flashbacks etc come from when you feel 'normal' and then the next minute you are in floods of tears!!!!
Hope all is well with you!!! J xxx

Ladylush - many thanks for your post!
Sounds like you had a horrible time too!!! Sounds like you are doing really well!!!
How are things going??? xxx

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jjkm · 17/12/2010 22:08

This reply has been deleted

Message withdrawn at poster's request.

missjulie · 20/12/2010 23:57

Oh my word! You poor, poor, poor love!
You have had a horrendous time! And, you have taken the time to chat to me!!!!!
Thank you!
How old are your girls now?
i do hope that things settle down for you.
How long do they thnk that they will have to stay n hospital for?
I too wish you all the best, you and your little family.
Take care,

Julie x

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