Any M.E. / CFS parents willing to help me in some research, please?

[SirBoobAlot]

Have got the go ahead from MN to post, just so you all know (and I am posting in several topics ).

Right, so I have had M.E. / CFS for two and a half years, and I have a six month old DS. Whilst I was pregnant there was so little infomation around in relation to the affctes of M.E. on pregnancy, birth and post-natal. Speaking to another sufferer in RL about this recently, I have decided to attempt to compile a book.

I would like to speak to people who are currently pregnant, have recently given bhirth, and those who have a slightly older children. My plan is to produce almost a "guide" - with tips on how you coped, the honest difficulties, how you found being pregnant, giving birth and coping afterwards was affected by suffering from this illness, and how the illness has affected your choices and the way you have parented further down the line.

If anyone is interested please post in responce to this and I will provide my email for you to contact me. Thanks

Have you tried contacting the ME Association to ask if they could pass your request for info on to local support groups?

Great idea btw! I have Fibro, not ME, but there are similarities and I'd love a good book on pregnancy and Fibro.

They are on my list to call for tomorrow I have been thinking about this for a while and finally decided to do it.

There are a lot of similarities... Maybe I should expand to cover both? What do you think? I must admit I only know what I have heard from friends about Fibro. Hope you are having a "well" day today

I was diagnosed almost 3 years ago with M.E and am currently 25 weeks pregnant....

Am tentativley interested in your book as i too found little information.. however knowing the nature of the beast being so unpredictable in so many different people i am wondering how wide will your book cast it's net?

Are you planning are more "this was my story" type thing or a fact based research number?

I am trying to gather as many people as possible to cover all ranges of the illness, and compile a collection of suggestions along with experiences. Certainly not my story, as I am rather dull

Am planning also on contacting several groups, such as the ME Association japhrimel mentioned above, and (hopefully) a few specialists. I'm not a medical professional, nor do I wish to give the impression of attempting to be. I just remember when I found out I was pregnant - shock pregnancy - and thinking, "Oh Christ, how on earth am I going to cope with X / Y / Z with M.E.?" and not being able to find many answers. Its providing those answers, or at least attempting to, through the experiences of other sufferers I am wanting to achieve.

Hmmm - sounds good - and good on ya for finally deciding to do it!
Another specialist who is supposed to be very good down here (noticed that you live in Brighton as well) and is (well was) on the board of the M.E association for Kent and Sussex is Dr Susie Rockwell.
She was the one that diagnosed me and takes a very holistic/diet approach to management.
No doubt you've heard of the lightning process which for me is quite controversial, but in my travels of being ill have come across a couple of people who have done it with miracles happening. That might be good to cover in your book as well especially if you can find someone who's done it during pregnancy.