Going out of my mind - molar or ectopic??

[elnmummy]

Hi
I've posted a couple of times since I started bleeding at 5 weeks; but this is going from bad to worse at the moment and I am so scared. Has anyone any experience of this situation?

In 2004 I miscarried my first baby at 8 weeks and found out 2 weeks later that I had had a partial molar pregnancy. I was followed up by Charing Cross hospital in London for 6 months and subsequently have gone on to have 2 wonderful DDs who are 4.5 and 2.5.

We started TTC #3 about 5 months ago and I was thrilled to get a BFP on Sat 1st May 2 days before AF was due. On the Tuesday night I had bad cramping like AF coming, went to the loo and was bleeding like a normal period. This went on for 8 days (AF normally lasts for 4) but I was still getting + HPTs throughout. Because of this and my molar pregnancy I went to see the GP to say I thought I had had a chemical preg and did I need to contact Charing Cross for follow up again (which has to happen after any subsequent pg whther it goes to term). She referred me to EPAU and so last Weds I had a scan when I should have been 5 weeks. This showed nothing in the uterus and the doc noted free fluid in my pelvis. He couldn't see my left ovary but wasn't concerned. They sent me for bloods and called later to say my HCG level was too low for an ongoing pg (48) and I should repeat HPT in a week - they also thought a chemical pg and levels were takin a while to go back down.

Well on Weds I did the HPT and it was positive again (CB digi 1-2 weeks). Called EPAU and went in yesterday. No scan just bloods. The blood request form said ?ectopic ?molar. The doc said we were looking for the levels to fall. When they (finally) called back the HCG had risen slightly to 59. I now have to wait another week to go back and have more blood taken - they want me to stay in the hosp for the results to decide what to do.

I've also had some real pain like constipation/trapped wind and the odd sharp pain in my tummy but nothing major. The wind pain has eased but is still there when I go to the loo (TMI sorry). I did tell them this.

Google's awful isn't it?? So now I am terrified that I have another molar pg or even worse; the form of gestational tumour that can develop after a molar pg; or an ectopic pg. I'm scared I will need surgery next week - the nurse said they are treating this as a pregnancy "of unknown location" and not nec ectopic. I said are you treating it as a molar and she evaded it just saying "lets wait until next week". I keep convincing myself that the worst is going to happen - DH tells me the odds are so low but the odds of a molar pg happening once are so low yet it happened; the odds of a recurrence are 1 in 80 which is a lot higher than the 1 in 2000 chance of it happening once.

I guess I am just looking for anyone who has had a similar experience; or advice or just some reassurance; I am not sleeping very well and my poor girls are just being plonked in front of the TV as I can't concentrate on anything. Can't stand the thought of waiting another week and having to carry on as normal and go to work etc.
Thanks x

Oh god, I have no experience or advice but didn't want you to go unanswered, you have to wait a week? That's shocking, really, what are they waiting for? just to test your bloods again? Can you insist on another scan or soemthing?
Poor you, you must be goign crazy with worry as well as normal awful horribleness of MC, I am so sorry, x

The boards are quite quiet on a sunday morning but I am sure someone more helpful will be along in ab bit. Please stop googling!

No more googling, you will drive yourself insane!

I had an ectopic pg/pg of unknown location in sept. My levels hovered around 350 slowely rising to 1100. Bleeding on and off, prune juice likebleeding was the big giveaway. I had one injection of methatrexate at 8 weeks pg. We couldn't ttc for 3 months. In jan we ttc and got a bfp, I am now pg (22 weeks). There is hope after an ectopic.xxx

Praying your levels start to drop. Massive hugs I know the heartache that it comes with. Sorry no molar experience to share just the ectopic scenario. Thinking ofr you. xxx

What a horrible thing, so sorry this is happening to you. I had a partial molar in 2006, then a mc in 2007. My levels carried on rising slowly for a bit, can't remember all of the details but remember that I was terrified of another molar pregnancy or worse. Anyway, it wasn't so just to reassure you that you could be fine. I remember the worry well, we had to wait for a week as well and it was just the longest week ever. Take care and let us know how you get on.

Thanks so much for the replies it really does help to know you're not alone.

JackBauer - we have to wait a week so the doc can see what happens to my hormone levels. I guess what's more worrying is this time they're not letting me go until the results are back.

Meanbeansmum - what a horrible experience; congratulations on the baby - hope the rest of your pregnancy is relatively uneventful!

danceswithfools - thanks so much; that really gives me some hope.

It really is the waiting that's horrible; and the fact that we haven't really had chance to get through the fact we've lost a baby. That's been taken away in the worry of what's wrong and when we can TTC again!!
Thanks again x