I removed my mirena at the end of March as it was due to be changed and DP and I had had a few 'shall I get it changed, or just out because I'm not getting any younger and we'd like a child' talks.
We went with out. So I started to google (dun Dun DUN!) to find out what to expect from my removal experience. My thinking being will it be prudent to take a painkiller before hand, wonder if I'll bleed a lot (have to admit I was worried about this one as I bleed for months after it went in...), will it hurt?
It was whilst looking for this info that I came across a whole SLEW (literally thousands of accounts) of anecdotal evidence from women suffering detrimental side-effects from the mirena, who were simply being told there was NO WAY their symptoms could be attributed to it. With most it seems that the symptoms take some months to be noticed, so most of them do not attribute it to the mirena... but find on removal most, if not all, of them disappear rapidly.
The 'imaginary' side-effects are I experienced were unexplained weight gain (particularly around the middle, even in though practising a restrictive diet and exercising very regularly), acne/bad skin, greasy hair, nausea/dizziness, abdominal pain, sore 'PMS' boobs that I'd not had before but most debilitating - mood swings and depression. I took anti depressants several times over the course of the years I had the mirena, which never really seemed to help much, and I kinda thought I was going mad as I was depressed with no 'reason' to set it off. At times, my actual life was amazingly fantastic and all I felt was awfully down or wanting to bite everyone's head off.
Anyway, suffice to say I also didn't imagine it was the mirena - but reading about all these other women who were having the same experience as me was a defining moment - it was coming out, no doubt.
Almost immediately, the clouds I'd been living under for so many years (I had it NINE YEARS!) lifted. The first week I lost 5lbs with NO CHANGE to my diet or exercise (not much more after that, but it was still telling), skin dramatically improved - again with no change to care routine - and my nagging lower pain (which I had given up ever getting diagnosed as all inital testing was negative, my mirena was happily in place, and as it didn't ever get worse or other worrying symptoms develop... well, just thought I had to live with it) also vanished.
Mirena WILL work well, even fantastically for some women. But many women do not process the synthetic progestin well and manifest adverse side effects. But as the party line is 'the hormone is released locally, you can't get side effects' our experiences are being all but dismssed by the medical profession (even though an accepted side effect is breast tenderness - hmmmm, if the hormone isn't getting into the blood then how are breasts being affected? I guess they'd say 'but it's a much lower dose than the oral pill' Yes - but not being processed through the digestive system - going straight into the blood!).
Eh, I'll jump off my soap box for now... but please research a bit further how these devices have affected many women and if it turns out it affects you the same way you will be forewarned and so can opt for removal. Well... if it ever gets in! Ouch at cervial shock