Just been told my twins are "MCMA" and may not survive.

[MistyRuby]

I'd be so grateful if anyone out there has any advice or experiences to share regarding MCMA twins?...

I'm 10 weeks with identical twins and was told devastating news yesterday by the consultant that they are "MCMA"(Monochorionic-Monoamniotic), meaning that they are sharing a sac and a placenta.

Apparently this is extrememely rare, affecting 1 in 35,0000 pegnancies.

We have been told that there is a 50% chance that they will die before full term, or that the cords will tangle around their necks.

I have done some research online which suggests that other mums have had MCMA twins who have survived, as well as some mums who were diagnosed with MCMA only to then be told at a later scan that a thin dividing membrane wall had been found within the sac.

Any stories of survival or personal experience would really help me right now- thannk you.

[minitoot]

I know nothing about this but just want to say my heart goes out to you. I hope everything ends well.

[silverangel]

Hayley, coincidentally a lady has just posted on TAMBA today re safe delivery of her momo twins at 32 weeks!

[silverangel]

Hayley, coincidentally a lady has just posted on TAMBA today re safe delivery of her momo twins at 32 weeks!

[VivaLeBeaver]

A friend has just had healthy McMa twins at 37 weeks. Had lots of scans but no problems.

[3under2]

Hi, just thought I'd join this thread, I'm 13 weeks pregnant with momo twins. There really dosnt seem to be alot of info about it except alot of Internet pages saying only a 50% survival rate!! Is it really that bad :( My first was IVF so was over the moon to have fallen with twins naturally, such a horrid black cloud. A few words of experience would be great. Many thanks

[BikeRunSki]

Hi, a girl I work with had MCMA twins about a year ago. She was very closely monitored, scan every two weeks and had them by cs at 36 weeks. They were small, both under five pounds, but fine after a few days in SCBU. Now "caught up" in size and bouncing around with their big brother.

[DanniMcEvoy]

HI, Congrats on having Twins.
I have 3 month old MCMA twin girls.
When I found out I was having twins I was so excited but then I was told about how high risk it was and all the different things that could go wrong...I was so scared. I'm only 19 and didn't have my family to support me.....BUT DONT WORRY the doctors tell you about all of it because they have to. This does not mean it's going to happen. My girls were born at 33weeks 5days, they spent 14 days in hospital and were home and healthy. I had no problems except the early labour, but as soon as they realised I was sent to have my c-section. I was made to spend 2 months in hospital before the birth having CTG monitoring at least 3 times a day. It was a real pain in butt, but at least I had the peace of mind that if there was any cord entanglement, or pre eclampsia or anything I was there...right where I needed to be. Weekly ultrasounds made things easier! As long as you remain healthy and be aware that you are more at risk of going into early labour, do as the doctors say and remember that you're the mother - if you think there is something wrong let the doctors know, and make sure they check you out. You Know Best about the Babies inside of YOU!
GOODLUCK

[Emgolding]

Hi Hayley, how are you? Are your little ones ok? Did Misty ever get back to you? I'm doing exactly as you did a year ago searching the web for mums who've had MCMA twins which I am. Please contact, whatever your news. X

[Emgolding]

Hi, I've MCMA twins & I was hoping for some advice or just hearing from some mothers who have been through this & knowing their experiences. Please post, you feel scared & alone. X

[Anonymous1996]

Hello, I’m not sure if anyone will respond but I had a scan a couple of weeks ago and was told I was having twins, I was 9 weeks then and I’m now 11 weeks, I was told they share a single sac and on my notes the person doing the scan has put MA/MC which I’m pretty sure is meant to say MC/MA because I can’t find any information on MA/MC, after a lot of research it seems as though this type of pregnancy is risky and quite rare.. I’m feeling a little deflated and upset as I’m not sure what to think.. I’m just hoping to read some other peoples stories, thank you

[Merrydoula]

Stay positive, don't let anyone guilt trip you into a voluntary termination. The survival rate for mono twins has massively improved xx

[Anonymous1996]

@Merrydoula
Thank you, I've heard from my friend that someone she knows also has monochorionic-monoamniotic twins and with close monitoring everything was fine, guess all the things I've read has just made me freak out a little bit, I'm trying to stay positive