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Ventriculomegaly - any experience anyone?

8 replies

mrsdarcy · 13/04/2005 05:17

I am 25 weeks pregnant and a scan has shown that the ventricles in my baby's brain measure 12.5 and 11.7mm (the upper end of normal is 10mm). A virology screen was normal, and in all other respects the baby appears to be normal. I am being referred for a foetal MRI scan in two weeks, and have been offered amnio to see if there are any chromosomal abnormalities.

Does anyone have any experience of this? This was already a stressful pregnancy as my last pregnancy ended with a 2nd trimester miscarriage, but now my stress levels are off the scale (hence the 5am posting!).


OP posts:
CrazyDi · 13/04/2005 08:00

I can't help you but am bumping to keep this post at the top as I can see how worried you must be. Good luck and loads of hugs

mrsdarcy · 15/04/2005 19:38

Thanks CrazyDi.


OP posts:
mummytosteven · 15/04/2005 19:41

i think people on this thread had similar scan experiences:-


mrsdarcy · 17/04/2005 19:16

Thanks Mummytosteven. Unfortunately my scans have all been carried out by my consultant so she probably has the measurements right. However it is comforting to know that people can go through scares like this and things can work out fine.
thanks again

OP posts:
hub2dee · 18/04/2005 21:45


gwenynbee · 21/04/2005 15:27

My heart skipped a beat when I saw your message. Ventriculomegaly isn't heard of very often, and the information availble is baffling and far to academic for me to understand. My baby was diagnosed with ventriculomegaly at 22 weeks in June 2004. He was perfect in every other way.

My baby boy's measurements were considerably higher than that of your little one's. 27mm as opposed to the "norm".

I would take it as a positive sign that you have to wait for an MRI in 2 weeks, I was seen to immediately due to the severity of the measurements.

My thoughts are with you, and I can fully appreciate how you must be feeling. If you are worried about antenatal testing, please contact - they've been my lifeline the past 10 months. Good luck, and I'll be keeping an eye out on your threads. x

hub2dee · 21/04/2005 15:50

What a great link, gwenynbee. I hadn't come across it.

Lots of lurkers will be hoping babba's MRI next week goes well, mrsd.

gwenynbee · 21/04/2005 23:28

Glad you found the link to Arc useful hub2dee! I can't rave about them enough. They're a fantastic organisation, and I have made lots of special friends through them.

If you need any advice or support please phone the helpline MrsDarcy! They have qualified, empathetic counsellors at the end of the line. Thinking of you! x

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