Choroid plexus cysts on 19 week scan - can anyone reassure?

[Diege]

Has 19 week scan on Tuesday, where isolated cpcs were found. Now I am almost reassured by the consultant who told me that when seen in isolation they aren't considered a problem, and even with my age (38)my risk of chromosome problems (esp Edwards) isn't increased (she said if they had seen another marker she would have given me a 1% chance). Furthermore, I work as a researcher alongside antenatal screening Wales, and know that, if seen in isolation (which mine were) Welsh Trusts don't even bother reporting (I'm in England but work in Wales)...But still, I am a worrier and wondered if anyone had had the same experience so that I can put this to bed and enjoy the rest of the pregnancy!! (ok, move onto somthinbg else to worry about ).

BUMPING for you Diege.

Anyone?

One second behind me !!!!My bump was wasted!!!

There've been other threads on this too somewhere but don't worry I'm not dismissing you!

I had this too at 20 weeks - I was 35 and also had hbp as soft markers. Sonographer told us about them, and advised we come back next day for consultant scan. We went home, googled, cried, didn't sleep.

Next day went back. Consultant was very reassuring, told us the chances were exceptionally small as there were no other of the very very obvious signs of Edwards and she didn't really know why the sonographer worried us so much. She told us 'go home and enjoy the rest of your pregnancy'

DS is now a very happy, healthy, gorgeous, cheely, funny intelligent little boy.

Now - ENJOY THE REST OF YOUR PREGNANCY

Thank you IKLBOO, that's very reassuring . Am I right in thinking you had an additional marker to cpcs? (not sure what hbp is?). We are also having boy which tbh is a real surprise too after 3 dds!!

My son had these at 20 week scan - I was a state, and made it worse by going and googling it!! What worried me was why they mentioned it in the first place...the sonographer kept saying it was nothing to worry about, but there was a part of me thinking, well why bring it up?! (wish I'd been scanned in Wales!) Had a talk with my midwife about it, and he called someone at fetal medicine unit for me to talk to as I was getting so worked up, she said that it was before scanners were so shit hot that they were considered significant...as now they can check other markers very accurately. My son was, of course, perfectly healthy.
While I was pregnant, I posted about my worries a few places, and had masively overwhelming response to reassure me. Hope you enjoy the rest of your preganancy!

Hello!

I've just been through the exact same thing!
Had my 20 scan last week where 2 cysts were found in the lo's brain.
The sonographer was useless at the time and got us really worried, said he could really not say anything more about it and that we should take it one step at a time (!) I was referred to University College London Hospital yesterday and had another detailed scan where no other markers or abnormalities were found.

The sonographer at UCLH was extremely reassuring from the start. She said that it's common and normal, most of the time they go at around 24, 28 or 32 weeks, sometimes the baby is born and the cysts are still there, there is no impact whatsoever on the baby's brain or development.

She also said that usually, and more and more, if this is the only marker found you do not get referred as it is considered normal.

If you really want you can have an amnio to check the chromosomes but there is a risk of miscarriage and it is so common that we decided it really wasn't worth the risk.

I read a few posts where women had more than one soft marker, had lods of scans and saw them disappear one by one or get better or just be "one of those things" and still had healthy babies at the end of it.

I have been through hell the whole week after they found the cysts and before the scan yesterday and got really depressed about it. Now I feel 100% reassured and we won't go for another scan to check the progress, it is not needed.

One of the things they wrote on the report is: "The risk of Trisomy21 from the screening test was low (1 in 3000) and I have explained that as an isolated marker this finding does not change that risk. The parents understand that chormosomal abnormality can only be excluded by invasive testing and they wish to avoid this in view of the risk of miscarriage."

Everybody was telling me not to worry and that it was going to be fine, yet I couldn't stop myself from non-stop crying.

You can move on and worry about something else, that's what I did ;)

HBP = High Blood pressure - and the fact that I was 35/36 years old made them count it as another 'marker'
Just try to relax now and enjoy the rest of your pregnancy

I had this and also another marker. Was prepared for my baby have ES. Declined all further tests. He doesn't have ES.

BTW do you know if your baby is a boy or girl?

Thank you all so much for your messages, they do help .
IKLBOO, I also have HBP (well, historically in pregnancy, although was low/normal at last appointment) and am 'old' 38, 39 when baby will be born, but consultant that she still wouldn't increase my risk based on just one scan marker. We're not having an amnio, so I don't know why I can't let this rest. Just wanted one scan that was normal!! (had dilated kidneys on all 3 scans for dds).
Theresonlyme: yes, we did find out sex - a boy!!
Oh and June have been following your story too on June thread - am actually on the due in June list (due 21st June) but haven't posted much!

Oh meant to say JEML that my sonographer said the same - that the markers for ES are usually very obvious,so would be hard to miss in an anomomaly scan, and that they are starting to see isolated cpcs as normal development. Agree with you, why mention them then???

When I spoke to the ante natal results helpline they said ES was less common in boys.

I would assume they have to tell you everything they see that could be cause for concern.

If they didn't, I am sure some people would be quick to sue if their child was born with problems that had been foreseen or suspected.

I think the reason why some trusts don't report isolated cpcs is that they don't see it as a 'cause for concern' though (although would if seen with other markers).
Think I might actually give ARC a call - they have been very helpful in the past

Have just spoken to really lovely lady at ARC who says that the National guidelines are changing so that isolated cpcs won't be reported across the UK in the near future. She was reasuring, so will try to let it go now and find something else to worry about instead