Risk of Down's Syndrome....how do you convert risk into a percentage?

[ButtonMoon]

I have seen somewhere on here that some of you clever boffins can convert the 1/? risk into a percentage risk.....how do you do it?

socci my amnio was carried out to detect a life-threatening condition, edwards syndrome

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because it's commoner. 1/800 i think, whereas edwards is about 1/8000 births.

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no it's not, but i would not have continued with a ds pg either.

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I think people have a better idea than you think. It's just that they choose it's not for them/their families.

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I wasn't given the impression by any healthcare worker that having a DS child was the worst thing that could happen. they answered my questions clearly and left me to make up my mind, even when i tried to push them on certain stats etc they were perfectly clear that it was my decision and mine alone.

It's such a difficult topic. When I was a midwife I cared for several women undergoing a termination for abnormality (not always Down's Syndrome). The society we now live in puts so much emphasis on perfection that often people think a termination is the only option. It's a very difficult and personal decision and not one I'd like to have to make. I am 39 now so am at higher risk if I have another baby. I didn't have any tests with DS as we'd been through so much agony to achieve a pregnancy that I was just prepared to cope with whatever I was given.
Another pregnancy would be much more difficult though. I'm 39, there's another child to think of etc, etc.
Feel for anyone who has been through all these difficult decisions and has had to make the termination choice.

Tamum
I did give consent to have blood taken, for all the other things they test for in pregnancy. Such as anemia etc. I didnt consent to the triple test.
I didnt make a formal complaint as I too much else to worry about during that pregnancy.

Thomcat, I am very pleased to see such a proud mother with a DS child. If I get similar results ( if i decide to have the test that is) your the type of person I would want to come to for support.

Well I'm glad we're friends still Bundle, but honestly that is absolutley not what I was saying, I was saying that it was expected I would have tests and I didn't, it was a personal opinion and situation and one I have heard echoed by some women, the feeeling that they were expected to have tests, that's all, and I was saying that I didn't regret going along with their presumptions. Glad we got it cleared up, I hate misunderstandings like that.

That is a massive compliment Cori, thank you. I hope you don't need to but I'd be honoured to talk to you. However it's incredibly easy to be positive when you have such a great kid

To put in my two tuppence worth - I was high risk of Down's with both my ds's.

I was around 1 in 120 with both boys.But the minute you hear "high risk" it puts the fear of God into you (well it did me).

The only honest advice is go with your instincts.

I had an amnio as I wanted to know one way or another.With ds2 he was never lying in the correct position for the amnio so after 5 attempts we gave up.But I worried right to the bitter end.I am a real worrier and that's why I chose to have the amnio, I just wanted to know....

But everyone is different and only you can decide what to do, although it's a gut wrenching decision

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Well had a long chat to DH about pros and cons of nuchal and we have decided not to have any tests done at all. We reckon that it' not the end of the world to have a child with DS or whatever and are prepared to take whatever life throws at us, plan for all life and that.....thanks again to all ....you have all yet again helped me think through issues.....and get things straight in my head. I feel like a weight has been lifted....nothing like real experiences from a wide range of people to help......got a bit controversial at times though

ks it wasn't 5 attempts with the needle in that sounded wrong!

with ds1 it was 2 needles as the first needle nearly went through the placenta so I had to be sterilized up again and a second needle used, but with ds2 every time the doctor was ready with the needle ds2 moved and so she couldn't go ahead as he was in the wrong position so I was told to come back in a few days to try again. So after 5 separate visits I gave up as he was always in the wrong position..(he's still a stubborn boy!!)

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