Experiences of ventriculomegaly and heart abnormality found at 20 week scan

[Mylittlemushroom]

I am at my wits end. I had my 20 week anomaly scan today and my baby has bilateral ventriculomegaly, fluid on the brain with 15.1 mm left vehicle and 14mm right ventricle. There’s also an abnormality with the fourth heart chamber. I’ve been refered to fetal medicine consultant for further tests.
please please can somebody share their experiences if they have been through this. I would really appreciate it right now to keep me sane.

Giving this post a nudge OP hoping others will post and help you ❤️ am sorry I don't have advice for you but hoping you can find some support soon, sending strength x

Perhaps this charity can support you?
www.arc-uk.org/

I’m sorry @Mylittlemushroom. I have no advice. But sending love xx

@Mylittlemushroom Im sorry you have to go through this i really am but remember your child isn’t necessarily domed there many children who been in bad situations should as this and when on to live happy lifes.

I really hope for your child to have a good recovery.

Thank you for your replies. It wasn't a good outcome. Our little boy has many defects, AVSD a large hole in his heart but the consultant told us his brain is more of a concern which would have left him severely disabled as well as having trisomy 21. They found 7 major defects and said an MRI scan would probably have found more.

.The consultant urged us to think about continuing with the pregnancy as we already have 3 little girls to think about and his quality of life wouldn't be good.
We are so heartbroken as our little boy was so wanted and loved already.
I never imagined going into hospital at 22 weeks to end the pregnancy that was planned and so wanted.

It hasn't been an easy pregnancy, I bled on and off for the first 14 weeks and with every checkup and scan, nothing was ever of concern

Our 12 week scan had lower chance of trisomys like on my previous pregnancies so i had no reason to question anything, but I have since looked over the report and my NT was escalated at 2.6 the PAPP-A was slightly below average too but none of these findings were communicated to me, if they had been I would have gone private for further testing and might have found out more about his brain condition. I know these readings are within the normal range but at age 34 it contributes to a combined risk score that might have approached the high-risk threshold. I am angry and looking for someone to blame but its nobodies fault really. We were just unlucky and our baby boy was too precious for this earth.

Sorry for the long post but I'm so devastated as i can still feel my boy moving and have to wait a week to go into hospital to deliver my precious boy knowing I won't be bringing him home.

I'm so sorry OP xxx

Whenever you need to talk with ppl who really understand, SANDS has support for you & family

www.sands.org.uk/support-you/how-we-offer-support