Baby with possible Spina bifida

[diamonds2023]

I’m posting to ask experiences of babies born with spina bifida.
im around 19 weeks and babies head size is small with shape slightly abnormal with suspicion of Spina bifida. Consultant was unable to get a good image of spine to confirm but that is her suspicion.
I am asking for experiences and if anyone has been through the same please ❤️

I know a little boy who is 3 now with spina bifida, his mum had surgery about 25 weeks gestation, then she delivered at 35 weeks. He shows no physical signs of the condition though he does have it genetically speaking. He runs, full bladder control (better than many 3 year olds) etc. Get as much information as you can and see if you are a candidate for surgery.

I know an adult with spina bifida who is older, uses a wheelchair but can walk very short distances, drives, works full time, married and has 2 children